New here

Discussion in 'For Friends & Families of Menierians' started by dizzylizzie, Sep 25, 2012.

ATTN: Our forums have moved here! You can still read these forums but if you'd like to participate, mosey on over to the new location.

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How does this work?

Poll closed Sep 28, 2012.
  1. Need instructions on how to start new topic

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  2. Don't think poll is what I want but can't find other way to start new topic

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  1. dizzylizzie

    dizzylizzie New Member

    Just joined today. Diagnosed with Meniere's 7 years ago. Until this year only had 2 or 3 full blown attacks a year. Since May 2012 have had as many as 5 or 6 attacks a week. So depressed about how this disease is crippling my activity level. Hard for friends and family members who do not suffer from MD to understand. Couldn't find a support group that met in my area so joined this on line group.
     
  2. Elarandra

    Elarandra New Member

    Hi and welcome! I'm new as well, but it seems like there are a lot of very knowledgeable people around here. Hopefully we can both learn something and better learn how to manage this disease.
     
  3. jimmykicker

    jimmykicker New Member

    Hi. Glad you came to join. Let me start by saying that there is a lot of good folks here. Not only that but you may find some hope. Personally I don't have vertigo but had horrible hearing in the affected ear and I am a musician ....nit a good combo. I am currently feeling the first relief I have felt in 3 and a half months due to excellent doctor care and help from forum members. PLEASE. ...spend a lot of time looking through the pages. It is worthwhile. I am fairly new here myself. There are a lot of folks here that know q great deal about it and coping. Please let me know if I can be of any personal assistance.
     
  4. Peapod

    Peapod New Member

    Welcome dizzy. On my first visit to my new doc, he said more than one attack a year is unacceptable. He also said there are too many good treatments now to suffer with it. I couldn't agree more. Let us know how you're doing.
     
  5. dizzysheba01

    dizzysheba01 New Member

    I'VE HAD MM FOR 64 YEARS AN HAVE COMPLETELY LOST MY BALANCE FUNCTION AND MOST OF MY HEARING. GETTING AROUND IS DIFFICULT BUT MY ROTARY WALKER HELPS A LOT.

    YOU MIGHT TRY CONTACTING AN OTONEUROLOGIST OR NEUROTOLOGIST AS MANY CALL THEMSELVES. THESE DOCTORS ARE EXPERTS IN DEALING WITH DIZZY AND BALANCE DISORDERS. NOTICE THAT IS NOT NEUROLOGIST BUT NEUROTOLOGIST. A NEUROTOLOGIST HAS FULL QUALIFICATIONS AS A. NEUTOLOGIST AND OTOLOGIST. THEY ARE GOOD!

    LOL MY OTONEUROLOGIST NAMED HIMSELF DR. DIZZY. THERE IS HELP OUT THERE.
     
  6. n632

    n632 New Member

    Welcome
    So sorry for your suffering...this is an amazing forum and you will receive so much advice...are you seeing a specialist? Zofran for the vomiting, meclizine for the dizziness and some kind of benzodiazepine for the spins ( ie Xanax, valium, clonopin) the combination stopped attacks for me if I got the meds in quick enough but then had to lie down in a dark room, with a fan for an hour or 2...
    Best of luck, Nicole ORlando, Fl
     
  7. abroxter

    abroxter New Member

    Welcome! :) My you sound very similar to me. I had only a few attacks only after being diagnosed about 3 yrs ago. I feel the same.... upset, frustrated, alone.... so much. But then I found this and these people are SO amazing! So helpful and supportive. We're all in it together. Hang in there.....
     
  8. bulldogs

    bulldogs New Member

    Nice, too meet you, sorry it had to be here and not somewhere else. Make yourself at home, look around, ask questions and always know you have options to slay the beast that lives in your ear.
     

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