Does anyone have Menieres and MAV? Or can some give me their personal experiences/feedback on MAV? TIA
Never been told I have MAV--but all my symptoms point to it! I have all the symptoms of a migraine--but the pain. The head pressure, dizziness, nausea, etc. Sensitivity to loud noise, bright lights, large stores, restaurants, etc. Add that to MM and it's pretty tough sometimes. Hope you don't have either and certainly not both. Have you been told you have one or both?
Do people really get both MAV and Meniere's as different entities, or are they really just different labels for the same thing but seen through the eyes of different physicians?
Thanks.... I have been diagnosed with MM but now I have gotten a 2nd opinion to discuss everything further. Now he's thinking I may also have MAV.... before he can give me the full insight he is just starting from ground zero and we are doin a full work up.
I have MAV with some meniers symptoms My symptoms are daily brain fog a feeling of being hungover everyday, difficulty concentrating, nausea, sensitivity to lights/noise, tinnitus, ear fullness,occasional intense headaches On 2 occasions I've had loss of disequilibrium for a few hours followed by distorted hearing for days but my hearing has came back to normal levels I'm now on a modified diet, stress management,had the lights around me in work switched off and on nortrytoline and I have to say I'm now at about 80%, the ear fullness and brain fog are my worst symptoms now
I have symptoms of both, bit with MAV I don't experience the issues with sound. And light only bothers me with my classic migraines. But everything else seems right on line.
Does weather trigger your migraines? I find that in extreme weather changes and high humidity is also a trigger for me. I have an appt scheduled to see a neurologist in May. My neurotologist believes that the menieres is no longer an issue. All of my symptoms are migraine related. The medication they use for migraines sure has some nasty side affects, from what Ive read.
I saw a Neurologist x2 over the last 4 years. Both said my symptoms could be due to 'silent migraine syndrome'--didn't mention MAV--I learned that here on this board. That meant I had all the symtoms of migraine--without the pain. One Neuro said it's certainly not 'silent', meaning it was causing me a lot of distress, therefore not 'silent'! That was a compassionate statement I thought. Both suggested a migraine med--one tried me on Nortryptyline--10 mg. and it made me feel 'awful' so I opted to go off of it. He told me to increase exercise, walking--whatever, and that should help. I don't get 'ear pressure--but it feels 'shut down' and that may be what folks mean on here by pressure in the ear. I get the pressure all over the top (inside) my head--feels like movement going on at times in my head, making me 'off kilter' and dizzy and some imbalance and mild to very bad nausea at times. This is a 'daily thing' with me causing a lot of anxiety and depression off and on too.
how long did you try the nortryptoline? it took me about 2 weeks before it started making a difference, it made me feel awful for the first few days but you need to stick with it
Yanksgirl, i have the exact same symptoms you do....almost constant lightheadedness/pulsating pressure in my head, no real pain, just pressure. i have a neuro appointment this Tuesday....anxious to see what he says. I've waited over 2 months for this darn appointment - neuro docs are hard to get in to Upgrader - did a neuro prescribe the nortryptoline? Does it work for you? When you say brain fog, is that a physical thing (lightheadedness/dizziness) or is your thinking and concentration is affected (nothing really physical)?
Im in the uk, it was the ent specialist who suspected that is wasnt meniers and that it was possibly migraine related, he referred me back to my local doctor and he agreed to put on migraine medication Nortryptoline has definatly shown a big improvement, i was probably operating at 35 % now i would say im at 80% but it took persistance with the tablets to get there Pre nort i was getting dizzness and light headedness, my symptoms now are brain fog as in not being able to think clearly/difficulty concentrating, the only physical symptom im getting now is a feeling like there is fluid trapped in my right ear but that comes and goes Im to take the nort for another month then im going to review things with my doc, it may take another med to get me back up to 100%, topomax has had some good reviews
Dizzybee that pulsating pressure you feel in the head sounds like migraine to me, you dont have to have a headache to experience migraine
Thanks so much for the information I've been researching a lot and my symptoms feel like migraine as well. It's aggravated by stress, i can definitely say that.
You should check out the below forum for information, if you read the stories there I'm sure you will find people with similar stories to yourself http://www.mvertigo.org/forum/viewforum.php?f=1&sid=c06defbdee505bd0384939268851807a
