The Meniett

Discussion in 'Meniere's Disease "Database"' started by Linda1002, Sep 27, 2006.

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  1. shimmerrrr

    shimmerrrr New Member

    I have used the meniett for over a year. It has not helped as of yet. My imbalance is very severe and the room does not spin I just lose all sence of balance and my ears feel like they are going to burst. Still trying to find help.
     
  2. hlricherson

    hlricherson New Member

    I am considering using the Meniett but need to hear some more positive info before I spend big money on it. I printed out all meniett postings as of today. If you have the Meniett, please let me know if it worked. Thank you. I am very dizzy, I hope this makes sense.
     
  3. jenleigh

    jenleigh New Member

    I used the meniett for two years ,I think it what all in my mind that it was working cause not using I feel the same ,anyone want to try I am willing to sell mine ,and Yes ins is tuff
     
  4. Linda1002

    Linda1002 New Member

    To check for info about the Meniett, go to the Home page and use the "search" feature.
     
  5. German1

    German1 New Member

    Thanks for this Link.... i think that is interesting information.
     
  6. nursenancyvan

    nursenancyvan New Member

    I had severe with "cluster episodes" of severe spinning with nausea and vomiting. :mad: I had a endolymphatic decompression (left ear) with little relief. I started using the Meniett 8 months ago and have not had an attack. I also try to stay on a low sodium diet and take dyazide twice a day. I find that I feel better when I try to get regular exercise.
     
  7. lizzy

    lizzy Relax and enjoy the view

    I am so happy to hear the stories of success with the Meniett. Next month I have an appointment with Dr. Jon Isaacson an otoneuro in Hershey PA. He endorsed the Meniett in a recent article posted on this site. He was one of the MDs who ran the studies out of Hershey Medical Center. I'm really interested in trying the Meniett because my local ENT told me he couldn't help me medically only surgically...so I'm hoping to give the Meniett a try and have as much success as some of you.

    FYI Dr. Isaacson is no longer with Hershey Medical Center but in private practice in Hershey as of a few days ago.
     
  8. annemarc

    annemarc New Member

    I'm considering getting the Meniett device. I've had Meniere's for 20 years but with only occasional vertigo in the past. Unfortunately this last episode has lasted 5 months with regular vertigo attacks. It's so difficult to live like this.
    Any advice?
     
  9. Andrea1962

    Andrea1962 New Member

    If you have exhausted the diet and medicine options, I would certainly consider it to be the next step.

    Best of luck to you!
     
  10. DanC

    DanC New Member

    For those considering a Meniett, have a look at the Enttex P100. An independent study suggest it is just as effective. I have a Meniett, have not yet tried the Enttex myself but going to get one; it is only about $120. I think this will be far more covenient when away from home (like every day, at work, etc)
    Study was published in 'The Balancer', issued by Meniere's Support Group of NSW Inc. I don't have a copy so don't know which vol no. I read it in my ENT specialist's office.
    http://www.enttex.com.au/pages/p100
     
  11. ToniG

    ToniG Guest

    I've heard about that. But, my meniett is portable and I use it in the morning, I use is consecutively, usually for 30 minutes. It's worked for me and Medtronic has been an accomodating company for me.
     
  12. DanC

    DanC New Member

    I posted this in another thread but maybe more appropriate here.
    Would like to relate my experience with the Meniett:
    I had grommets inserted both ears May 06. I started using Meniett about three days later. It immediately started relieving the fullness in my ears, and the tinnitus, which had been changing and worsening at an alarming pace over the previous six months, seemed to stabilise - the rate of progression seemed to significantly slow at least. I used the Meniett three times a day and found that consistent use lengthened the periods of effectiveness - initially it only gave me an hour or so relief at most; after four-five days of use the fullness was not returning and I felt so much better.

    This coincided with improvement in balance, virtually no attacks for about five months. I then noticed that Meniett did not seem to be working as well. After about two more months, attacks from slight dizziness to loss of balance, nausea returned. Was not until February 07 that doc discovered grommets were blocked (one partially, the other fully). Three sets of grommets later over four months and I started to get relief again. Doc put in T-tubes, then a larger diameter grommet, then finally back to a conventional grommet - same as I started with - after successive failures due to blocking. The latest set has given me a few months of relief and the Meniett appeared to be effective.

    Recently I've had an interesting development. Another specialist recommended cease using the Meniett. He suspects another possible diagnosis - otosclerotic inner ear syndrome. I did cease using and the feeling of fullness returned and tinnitus has got much worse. But balance has been fine until a couple of weeks ago. However, I suspect it was a couple of weeks ago that the grommets again became blocked. So possibly [in my case] the control of balance problems is on account of having clear grommets in place alone. Possibly the Meniett is relieving endolymph pressure and associated feeling of fullness only. Possibly (in the past) tinnitus relief occurred indirectly due to the stabilised inner ear fluid pressure. Just lately this is not the case, my tinnitus has been atrocious.

    I initially attributed responses to Meniett that are not necessarily the case. Again, not surprising as two variables were changed at once. Just missed that initially; saw Meniett and grommets as a single treatment since Meniett requires grommets.
    Unfortunately, this still not enough evidence for me to know accurately what is going on in there. Bottom line is, Meniett has made a big difference and hopefully is stalling the slow damaging effect of endolymph overpressure. I'm now back to using it. The feeling of pressure and fullness has mostly gone, seems to go completely now immediately after using the Meniett and comes back after a few hours to only about 10% of the peak fullness feeling. So use three times a day is working for me as far as treating fullness in the ears. Tinnitus though, this time - no improvement, absolutely killing me..
     
  13. LisaB

    LisaB New Member

    Hi Dan, your story is interesting. My doc first put a tube in, and I felt a relief, definitely. But not enough. When I started using the meniett, I felt awesome, and it did directly help my fullness also, definitely. Although this is not its claim it really helped me. I also had lots of problems with tubes. It seemed when I had a relapse it was because of my tube being blocked. Finally had T-tubes put in, that helped, but then my symptoms became very bad and the meniett seemed ineffective, except if the attack was very minor, otherwise the attack just came on too fast and I got sick immediately. For the 15 months it worked it was a godsend. Glad I tried it. Lisa
     
  14. DanC

    DanC New Member

    Thanks Lisa. Your experience does seem similar to mine..
    Do you not use it anymore?
    I have thought at times, 'this Meniett is not working anymore, I just can' be bothered using it..' Have since thought, 'it has worked in the past, must be another reason why it is not working now', so have made effort investigating what other factors could be. So, saying now, 'don't write it off if it has worked for you in the past but is not working as well for some reason'. Could be an indication of other forces at play rocking your boat..
    Regards
    Dan
     
  15. LisaB

    LisaB New Member

    Hi Dan, I did stop using it finally. My problem was my attacks just came on too fast anymore, even regular use of the meniett did not help as a preventative. I made the leap and had gent shots (which helped some) and finally had labrynthectomy surgery 8-3-07. I have now been vertigo free since, a big decision but a blessing for me. I wish you the best. Lisa
     
  16. Violet

    Violet New Member

    Hey guys....I have little/no vertigo to speak of, but I do have a lot of fullness/tinnitus (it's insane. HATE.) It still sounds like this might help me though, right? I think I am going to ask about it. I just do not want shunt surgery! nonono!
     
  17. DanC

    DanC New Member

    Hi Violet, I do have a Meniett; but since discovered another device that does a similar job; it is called the ENTTEX P100. You might want to consider this first, not only because it is only about $120, but quite convenient for travel, no recharge required, etc.
    I was about to get one, despite having Meniett already, but a doc believes he might be able to operate (a stapedectomy) and fix my problem altogether! So holding out buying this just yet. I have read an article in 'The Balancer', a newsletter published by Meniere's support group of NSW comparing the two - a trial was done - and ENNTEX rated equally as effective as the Meniett.
    BTW, I am completely objective third-party, nothing in this for me! Jusr reckon the price tag of Meniett might mean many are going without this treatment (mine cost AUD5,500.. And I've had problems with it, although Medtronics have been very helpful in resolving this..)
    All the best.
    http://www.enttex.com.au/shop/index2.html
     
  18. LisaB

    LisaB New Member

    I find the enttex very interesting. WHY won't they ship to US? Because it's not FDA approved? Thanks for the info, Dan. Sure wish you luck with your treatment. Lisa
     
  19. Buffy-Again

    Buffy-Again New Member

    Thank You all for your advice. My doctor recently told me about the Meniett device. The insurance company said they would not pay for it because it is experimental, so I am taking your advice and contacting medtronic.
    I am doing all of this because I had the sac decompression surgery and I felt wonderful for about 8 months. Now I have taken HUGE steps backwards and I want a life back. I have recently started having sudden drop attacks. I live in constant fear of having more.
    I just wanted to say Thank You reading all this information has given me HOPE again.
     
  20. ToniG

    ToniG Guest

    Good luck, Buffy. Medtronic is a wonderful company. If you need any info I can pm you with contact emails.
     

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