I've been to a GP, a few ENTs, a couple PTs (one of whom was very helpful in re-training my brain from the nerve damage), but still suffering with all the basic Meniere's symptoms including occasional full-on attacks. Physical therapy plus supplements plus avoiding triggers seems to have helped, but there is still a lot of Meniere's left. Have not tried a neurotologist, but not sure that would help anyway? Would be curious to hear if anyone has had any good experiences in that vein. If anyone thinks they've got a great recommendation in Texas (Austin or DFW or San Antone all more convenient than Houston, but whatever) for a neurotologist or any other professional who you think can really move the needle on this thing, I'd be glad to hear it. My suspicion is I mostly just have to keep doing what I'm doing, but I want to make sure I'm not missing any potential tools. Thanks.
Here's a link to the VEDA website list of providers for vestibular disorders. This is how I found my very helpful vestibular therapist.
I am in DFW and go to Dr. Hahn at the Dallas Ear institute. He is excellent and not hesitant to prescribe antivirals if you ask.
Thanks, Kevin. I appreciate that. Can you (or anyone) explain how a neurotologist would approach this differently from an ENT? I've been to a few ENTs and am wondering if I'll benefit from the different perspective. Seems worth a shot, anyway.
Meniere's is a disease of faulty signals between the inner ear and the brain, where the nerves connected to the brain are picking up random firings from the damaged hair cells of the inner ear. ENTs are trained on ears, nose and throat conditions. ENTs are not generally trained in vestibular function or parts of the inner ear connected to the brain. Neurologists specialize in brain function, but aren't trained in ear or vestibular functions. Neurotology is the inner-ear specialty that crosses the bridge between ear and brain, and that is why they are most likely to be knowledgeable about Meniere's. Keep in mind that Meniere's is not a readily treatable disease, so not all neurotologists keep up with it. Ask about the doctor's experience with Meniere's and treatment protocol.