How long to develop

Menieres begins with dizziness and balance issues. You often begin with getting out of bed too quickly and find yourself staggering. Eventually the dizziness becomes vertigo and that causes the nausea leading to vomiting.

I had Menieres for 7 years before diagnosis and went from attacks every 18 months to monthly then almost weekly. I am now free from Menieres for almost 9 years by taking two vitamins.

Please read my post "The Cure for Menieres Attacks" in this Forum for details on how Menieres attacks the inner ears as well as how you can stop Menieres with just two vitamins.

All I ask is sufferers try them for a month to see effects. In you case as a "beginner" you should feel better in a week. The dizziness will eventually go away.

 

I have also just seen an ENT who thinks I have menieres. I go today for a hearing test and a VNG test. I began having symptoms in 2004 of tinnitus first then the "spells" of feeling unbalanced. I always dispute the term "vertigo" because the room does not spin for me. I feel like I am floating on the ocean. I literally feeling like clinging to a bout or on a cruise in rough seas. I have never tended to get motion sick, loving carnival rides and roller coasters, I did not get a weird feeling feeling at heights. I also did not experience nausea during these first episodes. Over time, and usually before the doctors finished all their tests the symptoms subsided. I often simply felt as though I was tipping sideways, because it appeared the room was making a 180 degree shift and I would think, "oh my! I'm falling sidewise." But as soon as I would reach out to grab hold of something, everything oriented properly. No nausea, no spinning, no blurring, no nausea. Just that stupid whooshing and ringing in my ears. Sometimes at first, looking back now on medical records I would have confusion, even driving all the way home and then not remembering most of the drive. So to answer your first question, I have been having theses symptoms off and on for 15 years. Every time going through every test there is to eliminate immediate life threatening issues and then to the MRI, cardio, EEG, balance, walking, MS (all except the lumbar puncture, which I will never let them do). Each episode has lasted a little longer and been more intense. The last one was in November 2015 and lasted into February. Weirdly enough this one started October 2018 and while exacerbated and dibilitating symptoms have once again subsided the tinnitus and sudden "room shifting" and floating is only occasionally. The ENT and what I have read mentioned stress can be a factor. I teach and that end of year can be a stressful time for all. I am going for a new brain MRI because this new neurologist wants to compare to the 2015/2016 one because mine also showed white spots, but at the time I was told "could just be normal aging". This was the first time a neurologist told me however that my EEG showed "depression , but you probably knew that." Which I found interesting because I have suffered from depression and anxiety my whole life although I use diet and exercise to alleviate that rather than medicate anymore. But that's another issue. Only now do I rarely get a slight nausea when the floating feeling comes on, but as soon as I grab something and tell my brain to get its act together the nausea passes quickly. One more thing, the neurologist had me on meclazine to fight the floating feeling, and the ENT immediately took me off. He said the brain will work hard to fix itself and the meclazine masks the real problem so not helpful. Although I did feel much more steady on my feet when using. He has me taking a diuretic now. Too much info I know, but at tleast this forum has giving me a voice and maybe others can related because I have spent 15 off and on telling people, friends and family how I feel when these spells hit and then go away feeling a little crazy. Especially when they spells subside and bunches of money spent finding out nothing.

 

Jim & Cinda your symptoms are what I'm currently experiencing. I will see ENT and Neurologist in the next 3 weeks. I expect to go down the same bump road that you have experienced, nothing to look forward to.
Recent CT scan & MRI of Brain has shown nothing at this point only to negate a stroke. I not sure if MD is what I'm experiencing.
The medication i'm taking contains similar ingredients as B6 and I have had some tiny improvement with the vertigo after 3 days, the doctor has only prescribed this 3 days ONLY so i take the last tablet tonight.
But I am definitely going to try B5/B6 tomorrow morning doses to try and reduce or eliminate the vertigo.
I will post my progress in the 7 to 10 days and hopefully my symptoms are gone before my specialists visits.

 

Jim, sorry to hear that you are having problems with balance. I believe this disease (or its symptoms) come in many shapes and sizes. I do not recall having had any previous balance issues 30 years ago when my first vertigo attack hit and landed me in the ER. I then went 25 years with off and on vertigo along with tinnitus, fullness, and hearing loss. Then five years ago I started with frequent disequillibrium but no vertigo. To tell you the truth I'm not sure what's worse. With vertigo, it was severe for a day followed by a day of tiredness but then I moved on for weeks or months with no Menieres. With the disequillibrium, it stayed with me for weeks on end and was more disruptive to daily life. In either case, it sucks.

The other thing you mentioned with your MRI has me concerned about the quality of your doctor. In my case, I had an MRI 20 years ago which showed an arachnoid cyst about the size of a softball on the left side of my brain. My general practioner told me that was my problem. I waited two months to see a brain surgeon who told me my vertigo attacks had nothing to do with that cyst. In his words, "Any first year medical student can tell you that balance is unrelated to the left side of your brain." He told me to go to and ENT and I was finally diagnosed with MM. I only mention that because you may want to make sure the person reading your MRI actually knows what he/she is talking about.

I cannot help you with question #2 but Solari is responsible for this fantastic site and I'm sure he would be more than happy to help you.

Best of luck.

 

They take a MRI or CT to make sure you don't have a fistula. If it showed that there's something there and they didn't do anything about it ... find a good lawyer.