Cochlear Hydrops. Help!

Megan. When did your symptoms start?

 

I have read that in a very small segment of patients on betahistine, asthma is exacerbated and chest tightness can occur. Guess you were one of the lucky ones I think since you are in the early stages of this condition, it would be worthwhile to try the antivirals. As you have read, many get worse before they get better on AVs. You said you tried JOH. I find the lemon bioflavinoids really help my ear fullness. Did you try those? Also, have you had allergy testing? I am confused about the fullness being in both ears. Hopefully others will comment and provide you input.

 

It looks like diarrhea may be a side effect. I do not see constipation listed. I take JOH and Monolaurin. I am thinking of asking my doctor for a script for AVs. I am unsure about depression, but I thought another member might have mentioned that. Did you search any of the older posts for for information? A lot of people get better and don't come back here.

 

I saw where one member tapered back the antivirals after being on them for awhile to a lower dose. Good luck and keep us informed.

 

Can anyone more knowledgeable about AVs help Megan with her questions?

 

Doesn't mean I'm knowledgeable but I'll chime in. 400 mg of acyclovir seems like a small dose to start out on. Some folks like me started with 1000 mg of Valtrex 3 times a day then after about 3 weeks move to 2 a day. Gauge your results at that point.

 

Having the pressure is both ears seems like it could be Migraine Associated Vertigo (MAV)..or Vestibular migraine ( as you said you do not have vertigo) Have you considered that? I unfortunately have both..mav and menieres.

Betahistine has also helped me, sorry you can not take. I do the JOH, but never was able to get correct meds for anti viral, so can not help you there.

Sorry you have to go through all of this.

 

If you are going the anti viral route you need to go all in on dosage.

3 per day of Valtrex or famvir for several months. It may help. It might not.

My theory is the younger you are the more likely a virus is the culprit. You are young for MM. I was 28. Most are in 40s/50s when they start.

You have nothing to lose by trying anti virals. If you are worried about the side effects then your symptoms havent gotten that bad yet : )

Reach out on PM if you have any questions...get well soon!

 

Megan, you need to get a copy of the Heal Your Headache book by David Buchholz off of Amazon. You do not need a headache to have vestibular migraine. You can search this forum for hits about MAV... A post a member named Vicky made was very helpful and pointed me to the Buchholz book.

Also there is a website called the Dizzycook. If you go to her homepage it is her recipes, but if you look at her menu she has some good links and she tells her story.

Also there is a special migraine diet, you think you are eating healthy and then you find out onions, all citrus fruit, bananas ( just to name a few) can all be terrible triggers for a vestibular migraine. Dizzycook has a list of the foods you should and should not eat.

I follow the diet strictly plus I do not eat any gluten or sugar, but I am also triggered by barometric pressure and humidity...which stinks...cause obviously can not control.

Unfortunately I have been to two neurologists with limited experiece with vestibular migraines...the best specialists seem to be in Boston, Baltimore, Minneapolis and California.

This disorder not only makes you feel terrible but there is no clear cut answer why we have it or what sets it off. Everyone seems to have a different story. So while you are dizzy and feeling poorly you have to read through all the many posts and decide what the best regime is to start first. Which just makes the head Dizzier. But for now the forum seems to have more answers than some of the doctors out there.

So read some on MAV and then decide...and please let me know what you think. I hope you do not ever get vertigo, but even if you do not, I know the ear pressure and disequilibrium feeling can be debilitating.

Best to you. Bonnie