I'm so thankful to have found this forum. Everyone who has responded to my posts, thank you. I have really bad days sometimes and this has helped give me some hope that this is crap is curable, it will just take some time to figure out the cause. It's awesome to be able to share your story with people who actually get it and are currently or have previously dealt with this hellish disease.
It gives me some much needed peace. Going to all these doctors, most of whom blow me off leaves me feeling so depressed, anxious and hopeless.