Hi, all. I have a couple of questions for those of you with balance problems. I've had Meniere's for 18 years, went bilateral 9 years ago. I've tried every treatment, you name it. I even did the you-know-who-from-down under regimen for two years, but it didn't have much effect. In spite of the dizziness and other miseries, I was able to walk normally most of the time. That changed early this year. I started losing my balance big time. It felt like my feet were slipping on ice. I've been on a walker for six months. My specialist started me on vestibular rehab exercises. They seemed to help a little, but I still needed the walker. After several months, I got frustrated and stopped the exercises. Bad idea, because this past week, I've not been able to even stand up without feeling like I'm going to slip and fall. I'm back on the exercises now and praying for some improvement. I don't want to end up in a wheelchair! My question is, those you with imbalance, did the exercises help, and do you have to keep doing them indefinitely? Have any of you stopped doing them and had a regression? Thanks, and bless everyone who has this awful disease. Ron
Hi Ron I am sorry you have to go through all of this. I did do my physio therapy exercises and I continued until I felt good and the physio person discharged me. She gave me the whole pack of exercises just in case I needed them. I never had to look back and I have been physically active (gym etc) ever since. ( I was very fit before MD, then because of it I stopped my fitness journey for some 3 years) Do not give up. Preserve. All the best to you.
That's great that your exercises restored your balance. We're all different. My specialist told me i would be doing vestibular rehab for life. He was right, because when I slacked off on the exercises, things got a lot worse.
Hey Ron Good to see you back…..sorry you are struggling. You should call John Hopkins and look into their balance prosthesis. Clinical trials. I talked to a guy who lost all his balance from gent poisoning from a stomach infection and he is back running marathons and riding his motorcycle.. Feels great.. Talk soon my friend Bulldogs/Joe
Thanks, Joe. I read about that. But it looks like they can't do because I'm bilateral. It causes some hearing loss, and I don't have a good ear to fall back on. But I'll ask my specialist about it. Hope you're well. Ron