Just read this forum. Nice to not have to try to describe the struggles with this complicated disease/ I'm a good old Swamp Yankee from Connecticut, US. Very small town, not too far from the Home of the UCONN Huskies.
You will never get it back, just have to accept the changes, adapt and try a new life direction. Sorry to say.
I've heard that many a time, and it does give a bit of hope. Im in my first five years with this vestibular adventure, Ive heard the first few years are most difficult. I believe that is true. Everything changes when you can feel the rotation of the earth a daily basis. I spoke with a lady who got it 20-years prior to me, she has hearing aids and has adapted well enough. In her case she told me the disease just "burnt itself out." Let's hope time is on all our sides.
Yes. That is true with me and with many I've known that have dealt with this for years. Everyone needs to figure out what aggravates it or trips attacks and learn ways to avoid those triggers. My first year was bad but gradually things improved with me and by the 3rd year with it I was doing rather well in comparison, here I am 20 years later and haven't had a full-blown attack for probably 15 years. I do get milder symptoms and have to be careful always, but it's worth the efforts and the sacrifices. And I'm from Oregon.