Next steps?

Hi all,

Well this is my first post here, but I was a member on the old site, recognize some of your names. I could use some help deciding next steps for me to try...

I was dx with menieres 7 years ago, first four years were horrible, but I was vertigo free for last 2.5 years, and about a week ago it came back. During the first four years I tried everything - diuretic, no salt, steroids (pills and injections), allergy testing and shots, antiviral (altho only one for one month, so maybe I need to try longer?) JOH for eight months. NOTHING had any effect. What did work?

Well, I decided I did not want to wait any longer to start a family, got off all medications, and got pregnant. I had a bad vertigo episode about month 3, ended up in the hospital for a few days on fluids to make sure I did not get dehydrated and the babies were ok (yes I have twins!) and then since then was great. No vertigo, my ear would clog up from time to time but not as bad as now.

So now I have been having vertigo every day or every other day for the past week. Just for about a minute each time, been trying to control with mecklizine. Today I had a long one, lasted for an hour.

I am so frustrated because I really don't know what I did other than being pregnant (and that can't be a treatment plan!) that made me feel better. As far as what I've been doing different lately that may have brought it back - I have been sick A LOT over the last two months. The kids started at group daycare June 1 and we all have had runny noses and sore throat since then. So maybe it is an immune system thing?

I am turning it to the experts, as I am lost and don't know what to do next. My doctor, fwiw will just do a hearing and balance test and tell me other than diuretic there's nothing to do but wait until it's bad enough he will give me gent. Injection (grr). What should I try? Who should I see?

 

Thanks for the input. I had thought about MAV some time ago, but my dr said because of the low level hearing loss it was definitely Menieres. Hmm, maybe it's both. I always get my vertigo episodes in clusters, like every day or so for a couple weeks, and then it usually calms down a little. And sometimes the actual vertigo would be long (hour or longer) other times just a few minutes. And I feel pretty terrible most of those two weeks - off balance,ear clogged, objects I look at seem to vibrate (if that makes sense). For those that have it, does this sound consistent with MAV?

I did a quick search and see the diet/trigger recommendations so can try those. Curious, those that are treated for MAV, do you see a neurologist or oto? Since my doctor dismissed not sure he'd be up for investigating with me, so need to decide who I could see for second opinion...