Like some of you, I have been in remission for a while (10 years) and the day before Easter, I had a bad vertigo attack. Three weeks to the day later I had another one. It took eleven weeks after that to get another one. It is a terrible disease especially the vertigo. The thing that gets me is how different doctors and all good ones have diffeent information on MM. One tells you one thing and different doctor tells you something else. I have done a lot of reading on what causes vertigo and MM. I wish there was a way for doctors to get a picture of the labyrinth or inner ear to see if there is really fluid in it or a particle rubbing on the small hair cells. I am told they cannot. The reason I want a picture is so there can be a definative diagnosis. What if there isn't any fluid or particle then I could focus on perhaps emotional or psychological reasons for the vertigo. Anyway, I am grateful that this website is still here and that there are so many nice and knowledgable people on this website. I look forward to reading your posts.
That's the state of the art now, they dont even have an agreed upon definition or way to diagnose it, so of course there cant be a cure of such a nebulous thing. But the good news is so many here now have found very effective means of controlling the disorder and doctors are starting to get a clue. If you have been gone 10 years i think you will be pleasantly surprised about the amount of success people are having now. Good luck!
In my case, I had been 2 3 neurologists, 2 very well known and they all said YOU HAVE COCHLEAR HYDROPS! They had to shout to get it through my head because I was in denial. Cochlear hydrops is a version of menieres where it has not (yet) reached the balance parts that cause vertigo. It's not so much question of if we really have it, but what 'it' is. in many if not all, yes, we really had menieres. But i agree, that it is probably very hard to do studies when there seem to be various causes of menieres syndrome. the trick for us sufferers is to find which treatment is the one that works for us. Some dy i think the doctors will be able to identify and diagnose a half a dozen different causes and figure out which one a patient has and therefore which treatment is going to work fod them but they aren't there yet.
I am currently seeing a Neurological Chiropractor who claims that my left cerebellum is not firing correctly. According to what I have been told the cerebellum is supposed to be able to override the vestibular messages sent from the ears. It is supposed to be able to say after receiving messages from the balance system the room is spinning, (in essence) I gathered information from the joints, muscles etc... and the room is not spinning calm down. And it supposed to be able then to stop the vertigo. If it is not firing correctly it doesn't have the power to do that. This was a discovery of the VNG. There are exercises to fire that portion of the cerebellum up. I am exploring everything. I hate the dizziness, the feeling that at any second the vertigo is going to start and of course I hate the vertigo. It is awful.
"They" as in the people who've had success, if "they" actually had menieres or not. I know I have MM and have had great success with AV's. I am going on 1 year and 7 months of no vertigo attacks after dealing with them for 47 years. I have been diagnosed by several doctors and several ENTS through my life. I also believe I have MAV as well. But the acyclovir successfully controlling my vertigo backs up a viral cause of Meniere's. The best we can do with MM is control symptoms and many have had success with that through various treatments.
June I don't think he is out there. When you drink dizziness occurs because it suppresses the cerebellum. We all need to pursue our own solutions.
I agree in how it sounds, but the V.N.G. I took showed that my left cerebellum was under firing. Merely by taking my left arm and my left index finger touched a series of dots on a piece of oak tag on the wall and touched my nose fires up the cerebellum. This afternoon I felt very dizzy and vertigo starting and did those exercises for 45 minutes and the vertigo stopped and I do not feel.dizzy. I am not saying it is for everyone, but most of the time it works for me. The dizziness returns and I try again. I hate the vertigo as we all do. Sometimes the vertigo wins. I had this 10 years ago and it went away on.it's own. I pray that for every one.
Thanks to all. It easy to feel isolated with this awful disease. A problem shared is a problem halved as they say.