Verti I have nystagmus almost always. When it gets bad I have to go to bed and just wait till it passes. My eyes feel sore if I clench the muscles tightly, or keep them shut too tightly in an effort to stop it. The best way is to just relax the face area, focus on a point in the room, breath very deeply and try to slow the eye movements down. Most of the times it works for me but sometimes it just doesn't. I'm sorry you experience this as well. The neurotologist told me it was a side effect of a damaged vestibular system.
Thank you for taking time to reply. I had an episode (for lack of a better word) of nystagmus yesterday & later had a migraine which has lasted all day today. I don't know if there's any connection between migraines & nystagmus. I feel nauseous when this happens & don't know if it's from anxiety or MM. It also seem to be worse when my allergies are acting up. I'm sorry you have this. I wish a miracle would happens & someone would find a cure for MM. I can dream, can't I?
hallo, I also have nystagmus, yesterday all of a sudden. i was at my daughter everything was okay and suddenly I felt I was loosing my balance, then I was sitting down and it started form left to right, I had the feeling that I could trigger it if I was looking very much right, although my ill ear is the left one. My husband drove me home, I could not walk properly without help, and in the car I thought I would need to stop because I started to feel sick. At home I laid down and it went after 2 hours and let me very exhausted. I dont know where to put my eyes when I have it, is there a technique to slow down the eyes movement? I sometimes read, that one just to fix a point but how? all the points are moving!! Kind regards oxygen
I am so sorry you have this also. I have noticed that sometimes if I lower my head forward my vision gets blurry as if nystagmus is about to start. It's a weird/strange unexplainable feeling.
I lay down and cover my eyes with a dark cloth. Even if my eyes open it's still dark. It's a silly thing, but it helps me.
My solution is to sit still with my eyes closed and focus on the tip of my nose. The act of bringing my gaze to the center of my nose does help slow the side-to-side nystagmus. I can actually feel the stomach queasiness diminish and the movement stop as it all slows down.
When I have an episode I can't tell what my eyes are doing, because if I can, I try to close my eyes which helps. Saturday I was in the grocery store with my husband and I usually am at the front of the cart unloading the groceries while he is getting his debit card out to pay for them. All of a sudden I had to sit down. Fortunately there was a bench nearby. I didn't have a full blown attack, but I noticed that all the hubbub in the grocery store was really bothering me--the lights, the people walking all around, the noise--it was all making me feel very uncomfortable. So I had to just sit there and close my eyes until we left.
I've had 2 episodes today where I felt my eyes get locked in a position & my vision is blurred. Once when my glasses felt warped & my lens were not positioned correctly. I felt nauseous & had a headache & the left side of my face felt full. The other time I bent over for something in the shower & my vision went out of focus again. I had to get out of the shower with my eyes closed.
I used to bouncy eyes just before a vertigo attack. I never got the full rotational room spinning vertigo. Things just moved back and forth.
Hallo, I had it today again and I just recover, I was at home and I had to lay down. It lasted around 2 hours. I am like you Trisha I dont get the full rotational vertigo but this nystagmus were things are moving mostly horizontal. When I get it, I absolutely cant move my head, I mean physically I could but it makes things much much worser, it is like my head is much too heavy for my shoulders. I wonder if this typical fo MM or more for MAV. I am a bit fed up to say it smooth Oxygen