I've read many places now how tired people with Meniere's are after vertigo spells. I have almost been the opposite. I'll stop spinning--maybe after a brief 15-20 minute nap, and then think, "Well--I might as well go to that performance I thought I'd miss or get that errand done." It has seemed bizarre to me that I can feel so completely horrible and then go do those things, but it has worked. I usually don't feel 100% afterwards, but definitely able to function and not tired. Maybe just a bit woozy. I'm wondering if this indicates that I'm not dealing with Meniere's. I will add that I have only had vomiting along with the spinning a couple times and both those times were in the middle of the night, so I did sleep several hours afterwards. Thanks for any help.
http://www.masseyeandear.org/about-us/videos-and-podcasts/rauch/cervical-vertigo/ the link above has very good short video's about various things that can cause vertigo
I agree with June. You may have other things going on as you have had your menieres vomiting episodes in the middle of the night followed by sleep. The mini spins can be caused by bppv and or cervical vertigo. I never knew if I had bppv, cervical vertigo, MAV or menieres at different times or all together at once. Searching for a diagnosis used to drive me mad. A full blown menieres vertigo attack with being sick both ends is impossible to recover from immediately from but the other type of vertigo i.e. bppv or neck related can come and go. Although actually vomiting after spinning is a relief if vomiting makes the vertigo go away. Its when the spinning and vomiting lasts for hours and days that is the real desperation.
I agree as well. Vertigo from MM left me incredibly fatigued I would sleep for many hours afterwards. when you get vertigo is it positional? when I had bppv the second I moved my head out of the vertigo producing position the vertigo would stop and I would feel fine. Not exhausted or sleepy.
Thanks so much for all of the responses and helping me think through this. I watched that video June. When I do get vertigo it is not that brief, like the bppv and cervical vertigo he describes. It is not set off by moving my head (I think that's what you mean by positional, Vicki). At first it seemed to start out of the blue, but more recently I noticed it started while using the computer or in a moment of briefly elevated emotional stress. The computer stuff seemed to be from eyestrain, so I think that was MAV. I have new glasses now and that seems to be better. When what I call vertigo happens the room around me seems to be in motion. If I look at a specific point it moves. At its worst the whole field of vision seems to be spinning pretty rapidly, usually upwards. At that point I need to close my eyes. Laying on my side helps. I did respond very well to the Epley Maneuver. Interestingly after receiving it in the office I was very tired--for about a day after. I learned the home maneuver and was not as tired after that. I was able to use the home maneuver to actually stop spinning a couple times, though the last time I tried that I wasn't as successful. The physical therapist told me that usually she does the Epley Maneuver just once or twice and the person is done with vertigo for a while, but for me it only seemed to last about a day and a half. Then I learned the home one and did that once a day. After about a week it seemed to stick, and now I'm just doing it occasionally when the vertigo comes back--maybe once every week or two. I expect it to be less now that I have the new glasses. I also sometimes feel what I call dizzy--which is just off balance. Touching a wall helps a lot when that happens. And sometimes I feel nauseous. I used to have this think happened where it felt like I didn't quite know where one of my legs was in space. That stopped after I started with the Epley Maneuver. Very confusing! But I'm glad to be learning from you all and trying to sort it out.
I am exhausted after a vertigo attack (even a short one). Also can NOT close my eyes during the vertigo as it makes it SO much worse. Not sure what is causing your vertigo but meclizine might help you a bit - it doesn't help my Meniere's but the couple of times I had something else with off balance and eye movement (causing nausea) it did help. Good luck
I needed to do the epley maneuver at home many times too. I had it done by vestibular therapists and doctors but it always came back. Once I stared doing it at home is when I stopped having bppv I havent done the epley nor had bppv in several years. Your symptoms sound MAV like to me. Have you tried the MAV diet? Our database old and new has a good deal of information on MAV
It turned into a hard week for getting on the computer, but I wanted to stop in and say thank you for the responses. My current belief is that my vertigo is from MAV (I'm doing much better now that I'm getting used to my new glasses), but may have some tendency for unsteadiness from all my ear issues, whatever they are, and some BPPV thrown in.
MAV is what I was going to say. After a true migraine H/A has past with the help of Maxalt, I have an almost euphoric feeling. It can be part of the POSTdrome of a migraine attack. I have a Dx of MAV with everything else I have. Dx was made by a neuro-ophthalmologist, she is known to be the MAV expert here. I am not sure if I am having an MAV attack without a headache after I have been "sick," so that pattern is really hard for me to follow with all I have going on. But, back to you, yup, after a migraine headache has been aborted, good times. I think it has to do with the blood flow being back to normal as opposed to the constriction of veins and blood flow of any type of migraine.
My attacks left me feeling like a had a very bad hangover for a day. I had to sleep it off for a few hours. Except the drop attacks. After those, I would be OK.... scared but not feeling hungover.
I'm glad your shunt was a success. Are you bilateral? I am, but thinking of having it done. I wonder if you're tired b/c your body still feels like it's fighting the vertigo?
I haven't had vertigo for over a year and a half and my stamina is too below what it should be and I tired more easily than others. My mom used to say "Ï was born tired" she wasn't far off considering all we know now about MM.
I wonder how much is fatigue of compensating for balance problems and for those of us with viral etiology if any is similar to chronic fatigue syndrome. Just a wild thought that entered my mind.
I have also thought that some of the fatigue is likely to come from the brain's work with balance issues. My fatigue was at its worst after doing the Epley Maneuvers, and I thought that because my brain was readjusting to a new normal. The strain of trying to hear my contribute as well.