Labrynthectomy

Discussion in 'Your Living Room' started by JonTheJonJon, Sep 2, 2014.

  1. JonTheJonJon

    JonTheJonJon New Member

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    I am scheduled for this procedure on the 26th of this month.

    I have been dealing with MM since 1998. My doctors have tried every med, diet or injection possible. This is my last chance towards a normal life.
    I have been on disability for the last year and a half. I suffer with about 3-6 attacks per week. Sometimes more, sometimes less.

    I am here wondering who else has had the surgery and what they thought. Recovery?
     
  2. redwing1951

    redwing1951 Well-Known Member

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    I believe you will be doing the happy dance after the 26th! I am serious when I say this. I had a laby almost 2 years ago and am completely free of all symptoms except for tinnitus. The tinnitus is mild and does not keep me from doing anything I want to do. Recovery took about 2 weeks. I was in the hospital less than 24 hours and walked out on my own. Wishing you the best and get out your dancing shoes!!
     
  3. June-

    June- Well-Known Member

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    Just want to wish you good luck. Please keep us posted.
     
  4. Bulldogs

    Bulldogs Well-Known Member

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    It is the best decision you will ever make and it will give you back a normal life.

    I would not hesitate to get a 2nd one and use a Cochlear Implant to hear. I cannot and will not live with vertigo. Life with vertigo is no life IMO especially when you have options.

    I predict in a month after surgery you will be normal and will not return to this forum as there will be reason to.

    Joe
     
  5. JonTheJonJon

    JonTheJonJon New Member

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    Well, I have to say that is quite refreshing to hear. I have been very nervous. I was scheduled to have the surgery almost a year ago, but I cancelled. There is very little information online about laby reviews/true effectiveness.
     
  6. nicmger

    nicmger Member

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    I wish you all of the luck and speedy recovery. I have not had the surgery but have absolutely no reason to doubt it's effectiveness. Congratulations on moving forward with the decision and for getting your doctor to agree - some doctors keep wanting to wait (not sure for "what").

    Congrats. Good Luck. Take care
    Hope you come back and give us updates on your success!
     
  7. Vicki

    Vicki Guest

    I too wish you the best! Please keep us updated on your progress.
     
  8. Stacbird

    Stacbird Member

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    I just had the surgery one week ago today. I was in the hospital less than 24 hrs. I was dizzy when I first came out of surgery but it didn't last long. Have not been dizzy or puking since! I still haven't adjusted to everything yet but am working on it. Walking and doing the head shaking exercise. Went to town for the first time today. The vehicle ride sucked, Trying to be patient. Good luck.
     
  9. Bulldogs

    Bulldogs Well-Known Member

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    You are right on schedule, walk walk walk and when you think you can't do anymore walk a little bit more.

    Push yourself to the edge just not over it. In two weeks you will be driving down the highway at 65 mph.
     
  10. redwing1951

    redwing1951 Well-Known Member

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    Joe is 100% on target when he says to walk. Walking is a huge part of the recovery process. Walk on different Terrain so the brain gets a good workout. Also yoga is great for balance.
     
  11. feelinggoodnow

    feelinggoodnow New Member

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    I had the laby in June 2013 - I can say I have been 100% symptom free.

    Good luck!
     
  12. Vicki

    Vicki Guest

    I love hearing..symptom free, congrats! feelinggoodnow
     
  13. acujen

    acujen Member

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    JohnTheJohn, so how do you feel now?! Stace, you say you "don't feel dizzy anymore" (one week out), so what is it that you feel? A general imbalance?
     
  14. Stacbird

    Stacbird Member

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    I have the imbalance but I think I it is just not as bad because I have had 2 gent shots before. I still have the woozie feeling when I turn my head or tilt but it is easing up also. I was dizzy when I woke up from surgery and I was able to just keep my eyes closed and I didn't spin. The spin wasn't as bad as the spins before I had the surgery. it didn't matter whether I had my eyes open or closed I spun. The next day after surgery I quit spinning. I felt like I was going to spin but did not. Day 7 I went for my first car ride and it was awful. But went again that evening and I walk several times a day. My eyes are still a little out of focus. I can't watch television for long periods of time. That to is getting better daily.
     
  15. acujen

    acujen Member

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    I guess all the adjectives we use are so subjective: woozy, dizzy, off balance, light-headed, spinning. It's so difficult to explain. I had a VNS 2 years ago AND 3 gent shots, so I guess I thought this Laby would be a walk in the park. Wishful thinking! I'm glad to hear you're feeling better. I'm only day 5, so maybe impatience is my problem!
     
  16. Stacbird

    Stacbird Member

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    Hang in there. I am impatient also but hearing these success stories are keeping me going.
     
  17. Michel

    Michel Member

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    I had my laby 20 months ago. Post surgery, I was never dizzy, woozy, or anything of that sort. Just a major case of occilopsia - my eyes just couldn't follow my body movement. It's funny now - I remember the morning after my surgery going for a walk (with a walker) around the hospital halls wondering how I was ever going to get past this crazy sensation. But....by day ten, I was back to work, and day 14 I was driving again !

    All of these symptoms will pass before you know it.
     
  18. nicmger

    nicmger Member

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    Was wondering if you had the surgery and how you are doing?
     
  19. yanksgirl

    yanksgirl Member

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  20. acujen

    acujen Member

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    Hi Yanksgirl,

    I just saw this post... 6 months late! The VNS was a failure for me. It knocked out my hearing (which was very good before the surgery) and left me feeling like crap. The vertigo eventually came back, although never with the intensity of pre-surgery vertigo. I had a LABY about 8 months ago to kill any remaining function in that ear. To be honest, I feel sick about the whole journey with this ear and wish I had the positive attitude that so many seem to have on this forum. I feel bitter and frankly, pissed off, at what Meniere's has done to my life and my personality. It's incredibly depressing to see "normal" people going about their day, while I have to think about every move I make.

    I do not have vertigo, but have the symptoms you often post about yourself. To be fair, I do have some good days. Recently, I feel quite off-balance and it's scaring the living daylights out of me. Going bilateral is always in the back of my mind. It's a shit way to live.
     

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