Acyclovir/valacyclovir Great for vertigo! What is great for aural fullness?

keep on mind acyclovir leaves in the body in 6-8 hrs. so adjust when you take your doses accordingly if you find symptoms acting up before the 8 hours. 2400 mg a day can be broken up in different ways.
Some take 800 mg 3 times a day some take 400mg 6 times a day, it depends on the individual and how they feel. Whatever works best for you.

 

Im so glad your ent was open to you trying an av Holly YAY! fingers crossed!

 

also Holly make sure to eat foods with a higher lysine to arginine ratio. too much arginine will bring on symptoms and fight the antivirals

 

Yes keeping an eye to this and that is probably one good reason to keep taking L-Lysine even during heavy doses of AV!

I will take it more than three times a day which seems more doable since you can take with food or not.

The 'symptoms' issue is an inquiry I made on the Why Taper thread. Maybe you can look at that if you havent already?

Fingers crossed.

 

Hollyflo made this inquiry:

Also for those of you who hae been of JOH regimen and started taking AV's, did you also stay of L-Lysine too? If my logic holds, it would seem that one would restart L-Lysine after stabilizing with a maintenance dose but would love to get opinions on this!

There is no demonstrated or described reason both prescribed antiherptic drugs (such as acyclovir) and lysine can not and should not be taken simultaneously. Lysine is known to disrupt herpes replication. Why wait to use it until antiherpetic drugs have first been used? Both suppress herpes virus replication, but by different biochemical processes. Taking both together simply attacks the active viruses from two different treatment angles, providing a greater chance of thorough virual suppression.

Others have pondered this question, too, claiming that if they took both together they wouldn't then know which one (if only one had this effect) actually had the greater efficacy. For those who wish to investigate the comparative efficacy of lysine against antiherpetics, by taking these agents separately, go for it. But most of us simply want relief, and the addition of 3000 mg of lysine t.i.d. (without food) daily costs only a few pennies, without side effects.

When I devised my Meniere's treatment regimen (over about 5 years), I threw everything possible at the condition, and learned that relief came only with a useful combination of agents, including (and primarily) lysine, all described here:
http://www.zoominternet.net/~kcshop/JOH.pdf

If I still had Meniere's symptoms and were prescribed antiherpetics, I'd take those and the substances in the regimen, giving an elevated chance of success.

Each, of course, will have to decide on this personally.

--John of Ohio

 

Thanks JOH. That is what I am doing. I just wanted to be sure that I wasn't at cross purposes with what I am taking. I appreciate your input very much!

 

Oh boy I wish logic could take this whole discussion on Meniere's! Suit me just fine.

New to this but one thing I am getting some degree of certainty about, beyond the disease sucks, is that there is no one best approach that works for everybody all of the time. For me, I was just glad not to walk out of my doubting ENT's office without a AV prescription to try. I gunned for valacyclovir and got acyclovir. Reaing the posts, some is AV's work for some not for others and viscera. I am crosing my fingers that some relief happens within 6 weeks to report to my ENT. It'll be hard to make the case the AV's work she prescribed the 'wrong' one. Hope that is a road I don't need to go down but will. Desperate.

 

I have my fingers crossed for you. Hopefully you get relief. Congrats on this success and little bit of hope!

 

Holly if an antiviral is going to work any one of them will give you symptom relief, but the unfortunate thing is av's no matter which one do not help everyone.

 

Seems to be true of everything with this condition. Just going for something gives a sense of empowerment and hope. No false expectations though.

 

The good news is it helps many more than it doesn't help according to some Dr's They see about a 90% success rate in symptom relief with their patients taking antivirals.

 

Hello,

Holly here reporting in almost 48 hours after first dose of Acyclovir. No reactions, no side effects, no weirdness and woke up feeleing ever-so-slightly more spacious in the affected ear and such better energy and stamina and sense of overall well-being. Wahoo!

 

I'm so happy for you and that you feel better already. That's a very good sign. Let's hope you don't get the two steps back that some of us experienced. It's a good feeling, isn't it!

 

Yes and I am prepared for two steps back but not three

 

Yay, Holly! Sounds like a good start. I got really nervous about the "two steps back," but when it happened (I had some very weird tinnitus, it was like I was in an echo chamber), it didn't last all that long and was well worth it.

 

Good to hear! Holly, fingers crossed!

 

Holly, if you didn't already I suggest reading this thread from the database.
http://menieres.org/talk/index.php?topic=32.0

Since your issues started with daily migraines you could very well have MAV as well as MM many of us do, me included. Try to avoid the triggers mentioned and see if that gives you even more symptom relief.

 

Thanks Vicki.

I did read this and again just now. When my migraines showed up suddenly two years ago, I did the Heal Your Headache book protocol which didn't do much and I was on it for 4 months. Then I did a hair analysis and took a thousand supplements a day to rebalance my mineral content and other things which included getting the build-up of calcium in my tissues out. I think this had the biggest impact. I stayed on this for 6 months and had actually much better results. I then wound some of the suggested migraine triggers back in without any negative impact but a much more free and happy life.

Unfortunatly my then MD had prescribed hydrocodone for lower back spasms then I discovered that this was creating rebound headaches. I needed it to get moved out of a cabin I was living in that I suspected strongly had mold. It took six months to find a moldfree place that would accept me as a tenant since I hadn't been able to work in 2 years.

In that time, about a year ago, amidst the headaches, I discovered the unilateral hearing loss and increasing tinnitus and went to see that MD again which is where the MM diagnosis began but not finalized until around Sept 1 this year. No longer responding to prednisone and my hearing loss now more consistantly showing up on audiology tests, the official medical diagnosis is chronic migraine and MM.

I am back on the migraine diet, doing JOH regimen, and tapered off the hydrocodone which was complete 5 weeks ago. The neurologist said I needed to do this for them to get a better read on my headaches and I have been reluctant to start any new meds because I need to know what is happening more on the natch so I am not confusing symptoms with drug side-effects. I did have the botox shots in the head per my neurologits' suggestion to mitigate the withdrwals from the hydro. That is about worn off maybe another 2-4 weeks for sure. Also did a bunch of research on ototoxology and rebound headaches of prescription drugs which included many my various MD's have suggested I be on are on. I have eliminated them except certain ones on a very limited as-needed basis. Once I started the AV's I stopped the Dyazide since this can be contributive to dizziness, hearing loss and tinnitus but I felt I needed to give it a go to satisfy my ENT and get more range to try 'alternative' approaches which has proven to be a sound strategy since she prescribed the AV's Wednesday

So here we are. Since I def have the hearing loss on one side only, no sudden onset migraine symptoms just ongoing headaches…never really 100% gone…and the other classic MM symptoms sans the full on vertigo…so far…I wouldn't know how to make the case for MAV or what the medical treatment would be beyond what I am doing. BTW I am also taking 400 mg of B-2 and Petadolex's Butterbar now both for 4 weeks.

Vicki, if there is something I am missing, please let me know and why you suspect perhaps MAV now that I have written my sorry novel for the last two years…leaving out some other extreme stressors that have no doubt kicked this all up.

Many thanks for you Vicki and others here!