What's Worse

Discussion in 'Your Living Room' started by Santa, Nov 6, 2014.

  1. Santa

    Santa Member

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    What's worse aural fullness,almost deaf or clear ear with lots of tinnitus and vertigo every day?

    I thought this valacyclovir was to get rid of vertigo. With me it is clearing my ear some, but causing vertigo every day.
     
  2. Vicki

    Vicki Guest

    I don't think valacyclovir can cause vertigo, it does have dizziness as a side effect though, but many get worse before better when starting antivirals, unless you are having a reaction to it, that I cant say.

    You can try acyclovir and see if you feel better on that. I have read on the net some people get side effects from valacyclovir, but I cant say if that is what you are experiencing. Also acyclovir is tolerated better by some people, like me for example.
     
  3. June-

    June- Well-Known Member

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    Antivirals are to get rid of viruses. The virus may cause vertigo or other ear symptoms. In my case it got rid of hearing loss, tinnitus, distortion etc. Depends on what damage the virus is doing. I notice you are around live music. That can cause and aggravate ear problems. I know you dont want to hear that and i dont have an answer but you may want to track the music exposure and symptoms to see what effect there may be.
     
  4. Hollyflo

    Hollyflo Member

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    Hey Santa. Sorry for your frustration!

    I switched from acyclovir to valacyclovir just yesterday in hopes of making more progress on hearing recovery…and all else of course…and so far no noticable side effects nor were there any on acyclovir.

    I noticed a big drop off in dizziness once I stoppd the Dyazide.

    It is crazy making this cause-and-affects puzzle indeed!
     
  5. Santa

    Santa Member

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    Doesn't Dr Gacek's study says valacyclovir gets rid vertigo.

    My experience several months ago I wasn't having an issue with vertigo. My issue was the aural fullness and tinnitus. I started acyclovir and after four days I had clearness, but then I was having vertigo every day/other day.

    Then the acyclovir stopped working on keeping my ear clear. And the aural fullness returned. For five weeks I was full and no vertigo. Three weeks ago I started the valacyclovir and after a few days my ear went clear again. Then a few day s after that I have had vertigo every day or every other day.

    The vertigo is not as bad as it used to be. I can still function with the help of valium. But, I am still wobbly and worn out. And I don't feel as bright and cheerful as I usually am. I know the valium It is commonly used to treat a wide range of conditions, including anxiety, panic attacks, insomnia, seizures (including status epilepticus), muscle spasms (such as in tetanus cases), restless legs syndrome, alcohol withdrawal, benzodiazepine withdrawal, opiate withdrawal syndrome and Ménière's disease. The only thing I have on that list is MD.

    It possesses anxiolytic, anticonvulsant, hypnotic, sedative, skeletal muscle relaxant, and amnesic properties.

    I don't know what hypnotic means, but it does work as a sedative, muscle relaxant. As far as amnesic I have not experienced. I can sing and play songs for hours from memory.

    I have now completed three weeks of valacyclovir 1gram 3x's per day for three weeks. Hopefully, the next three weeks ( 2 grams per day) will keep my ear clear and the vertigo will stop.

    My hearing is only 50% of my right ear, but that might get better.

    Saturday November 15th starts my "Santa" season. Along with my regular work days I will not have a day off until Dec. 21. If you ever want to see my website as "Santa" go to www.santaclaustallahassee.com and look at my photo gallery.
     
  6. BayMama

    BayMama Member

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    As I understand it, Dr. Gacek's study says that acyclovir and valacyclovir gets rid of vertigo for many people--apparently when it is caused by a herpes virus. I just looked up the potential side effects of valacyclovir. They include dizziness but not vertigo. Dizziness can be a side effect of acyclovir, too, but it sounds like it's less common. However, when you say you can function, but are wobbly and worn out, I wonder if you mean dizziness rather than vertigo. Vertigo is when your surroundings seem to be spinning. Dizziness is when you feel off balance. If you mean dizziness, it sounds like it could be a side effect, and might be worth talking to your doctor or pharmacist about. If it really is vertigo, it would seem that your vertigo is not coming from a herpes virus, but your aural fullness and tinnitus are. I can't remember, have you explored other sources of vertigo, such as MAV and BPPV?
     
  7. enjoy

    enjoy Member

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    Hello Santa,

    Ever since I started Valtrex, my dizziness which comes in the evening has already stopped and it will continue that way, i believe.

    My hearing is still not completely back to my usual yet. But it is no longer dipping to zero anymore past few days.

    Side effects wise, I have googled and have seen a few articles especially those with liver and kidney issues existing conditions (and a few others), are advised not to take this.

    Just remember to drink lots of water.

    Your good results are probably on the way to you soon.
     
  8. Vicki

    Vicki Guest

    good news! enjoy
     
  9. Santa

    Santa Member

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    Yes, I have read up on MAV and BPPV and I am 99% syure I don't have those. Maybe what I am calling vertigo (right now) is more dizziness.

    What is weird is most of the time when it hits me I am sitting still. And out of nowhere this wave of overwhelming, ( I don't know how to describe it ) feeling of uh-oh here it comes. It's like a bad hangover feeling. I get a little overheated feeling, I get brain fog, I can't walk very well, I can't turn my head to the left or right without feeling like I would spin out.

    The last episodes have not been as intense as they used to be. So, maybe I'm getting better.

    And, yes I do drink lots of water. Gave up the caffeine and I start my day with two large glasses of water.

    Thanks for listening. Good Health to All
     
  10. June-

    June- Well-Known Member

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    Santa, there are other things that can cause those kinds of feelings. Have you had a checkup with the primary care dr lately and described this?
     
  11. PapaJoe

    PapaJoe Member

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    For many here, the vertigo is a form of migraine and can be caused for a wide variety of reasons. IMHO the symptoms you give sound like MAV (migraine associated vertigo).

    If you haven't already, see a otolaryngologist who may want to order an MRI to rule out any physical or structural defects, and see your regular doctor for a complete checkup, including endocrine.

    Anti-virals can help if you're suffering from inflammation due to a virus. It has helped some, it didn't help me.

    For me, the problem was poor gut health, and stealth dental infections. These assorted infections generated toxins that cause migraine symptoms, which for me do NOT include headaches, but do include vertigo. Dental infections can generate some potent neurotoxins, and not all dental infections have obvious symptoms.

    Anti-fungals, antibiotics, probiotics, diet change and root canals helped me.

    Look up "vestibular migraines".

    Migraine is a neurological condition and only about half of the people that have migraine get headaches. The other half get vertigo or other non-specific symptoms. Most everyone with migraine get brain fog and auras (that feeling, sometimes visual) that you get when an attack is coming on (the 10-20 minutes that lets you get to a safe place if you're lucky) :-X
     
  12. nicmger

    nicmger Member

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    Santa, in April of this year I had a month stretch of being dizzy (not vertigo with room spinning) every day, all day. If I turned my head too quickly I would become off balance. Was very tired (makes sense as the body works extra hard trying to make things correct)...etc... I tried my meclizine (which I never bother with as it doesnt help the vertigo at all for me) and within a day was feeling much better. I could tell when the meclizine was wearing off and time for a new dose.

    Perhaps pickup some Meclizine (available over the counter in the US; and even in generic version at places like Walgreens) and give it a try.

    Good luck. Feel better soon.
     
  13. burd

    burd Member

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    PapaJoe... very well said.
     
  14. Pakrat3

    Pakrat3 Member

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    One of the big differences, I think, between a migraine event and a CH or Meniere's event, is whether or not the dizziness or vertigo originates with a full ear. As I understand it, Meniere's is caused by Hydrops. No Hydrops, no Meniere's. My question to those who have suffered from Meniere's related vertigo, luckily I have not, is whether they ever suffer from vertigo when there ear is not full? Is it possible to have a Meniere's related vertigo attack without a full ear? Per the definition, I'm guessing you shouldn't, but once the sensory is damaged, I was wondering if this just happens anyhow. I have CH and have only had a few dizziness attacks following a very full ear. I might add, this was before I ever tried JOH or antivirals. I am currently taking most of JOH (since 01/2014), and Valacyclovir (1000 MG/day since July, 2014). I generally have very little fullness in my right ear, and it does fluctuate a little. My theory is if we keep the fullness and pressure down, then we shouldn't progress to the nasty stuff. Do most of you agree with this theory?

    One last thing I wanted to add regarding Lysine in the JOH regimen. One of the really undesirable consequences of taking Lysine, especially at higher doses, is that it can cause your cholesterol to sky rocket. When I started taking it as recommended by JOH, my cholesterol went off the chart in only a matter of a few months. I never had high cholesterol, but once we determined this was causing high cholesterol, my PCP wanted me off of it. He then prescribed Acyclovir and then later I got my Nuero to prescribe Valacyclovir. Once off the Lysine, my cholesterol returned to normal. So, be careful!! You don't want to have a heart attack while trying to treat your Meniere's.
     
  15. Hollyflo

    Hollyflo Member

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    So…I switched from acyclovir to valacyclovir on Tuesday. At first no impact. On Friday morning I rolled over in bed and the spinning began. I can stop it within a few seconds thru head position and eye contact forward. Now Sunday and this is going on each morning. Now I notice that if I tilt my head to the side of the bad ear, the horizonal spinning comes up but as soon as I straighten my head again, it's gone. This is the first time this has been going on for several days. Also seeing a NUCCA chiro which could be adding to the mix.

    The good news is the fullness is gone, all but the high pitched tinnitus remains (the roaring and clicking harder to deal with for me) and perhaps some hearing is returning. I was with a new friend yesterday and it didn't matter which side he walked on :) My energy is strong, headache not bad, playful, clear, bright mind back. Optimism back.

    I plan on doing the Eply Manuever that bytheBay suggested later after being out. Not ssue what this portends but wanted to share what is happening here.

    Any comments?
     
  16. Vicki

    Vicki Guest

    sounds to me like BPPV and yes do the eply it sure take care of it, might have to do it more than once though and keep your head straight after for 2 days, don't look down or turn fast or bend down for 2 days and sleep in a 45 degree angle for 2 days after
     
  17. Vicki

    Vicki Guest

    this is what I used and got rid of BPPV when it kept coming back when being done by doctors and vestibular therapists

    https://www.youtube.com/watch?v=pa6t-Bpg494

    you need to start on the side that causes the vertigo.
     
  18. Hollyflo

    Hollyflo Member

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    Thanks Vicki. I was scouting around for the link that bytheBay sent with no luck. Have one more NUCCA tomorrow am so best for me to wait if it is that specific and a two day thang. It just seems odd that this is showing up concurrent with the change in AV's….
     
  19. Vicki

    Vicki Guest

    there is a test to see if you have BPPV your ent or vestibular therapist can perform it, not sure about a NUCCA practitioner I don't know much about them or it.
     
  20. Vicki

    Vicki Guest

    I'm wondering if the NUCCA could have knocked the crystals out of place
     

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