How did you determine it was the Lysine causing your high cholesterol? Based on this article and some other things I've read, Lysine actually reduces cholesterol. It seems it might only be an issue only if you already have high cholesterol, high triglycerides, or some sort of heart condition. http://www.livestrong.com/article/295544-does-lysine-raise-cholesterol-levels/
What is weird is most of the time when it hits me I am sitting still. And out of nowhere this wave of overwhelming, ( I don't know how to describe it ) feeling of uh-oh here it comes. It's like a bad hangover feeling. I get a little overheated feeling, I get brain fog, I can't walk very well, I can't turn my head to the left or right without feeling like I would spin out. ------------------------------------------------------------------------------------------------ Santa, this is the exact feeling I have been getting the last few days. I have been on Acyclovir for 10 days now. I experienced some ear clearing and have been feeling optimistic until I got hit with this dizziness. For me, I had frequent vertigo for years. I would experience 1 day of violent vomitting followed by a day of tired recovery and then I would move on. Sometimes for weeks or months until the next episode. Then, after years of this, I started to experience disequilibrium for days either out of nowhere or after an attack. Then I started JOH in 2009 and was good for a few years until this past year with the return of disequilibrium. This dizziness, however, is completely different from the vertigo and the disequilibrium. I do not drink a lot of water but hopefully will remember to do that. Have others experienced this dizziness in the beginning with anti-virals and did water take care of it or did it eventually resolve on its own once the maintenance dose of 1g per day occurs? Thanks for any help.
The recommended amount of water each day is half your body weight in ounces. Then add more if you work out or do heavy work where sweating is going on or if you drink caffeine or alcohol. Then maybe more too with AV's. I am on with this for a very long time and it helps everything. When I went on acyclovir and stopped the diuretics, my dizziness let up a lot. Then I swtiched to valacyclovir and on day three, I could create the spins by tilting my head in the direction of the bad ear. During those days I would break out in a hot sweat at weird times too. Today that is mostly gone and I didn't do anything differently. It kinda feels like the valacyclovir penetrated more deeply and quickly and maybe upset the virus sending it fighting and hanging on with both fists! Today I am noticing my hearing today almost normal, the distortion gone, the tinnitus a minor ringing, no fullness, no roaring, no clicking and no headache! YIPPEE!!!!! 8)
Wow!! This thread is really full of some great stuff. We should write a book!! In 2012 I had three bouts of vertigo about six weeks apart. Each time I was lucky to make it to my bed. Only once did I throw up. In 2013 three more bouts of vertigo. One time I thought maybe I just drank to much alcohol, but that wasn't the case. I went straight to my sleeping bag. The other two times I was sitting at my computer. Stumbled to bed and slept it off. It was after the third time that I was diagnosed with MD by ENT. Take diuretic, prednizone for week and cut out the salt. Both of those years the episodes started in January and ended in May. In January 2014, Vertigo. Six week later vertigo and then for the first time aural fullness. I thought I was just going deaf. Then I found this forum and discovered all the wonderful people here that have been studying how to cure this phenomenon. I wasn't so concerned with the vertigo ( since I only had it 8 times over a two + year period) as I was going deaf. So, I started taking acyclovir. After four days of taking the acyclovir my ear went clear. YEAH!!! I wasn't going deaf. Within four more days I started having vertigo every day/or other day. The first day was really bad with intense vomiting. The ear stayed clear for about two weeks. Then went full again. It was full for 5 weeks. No vertigo or dizziness during those 5 weeks. That's when I switched to Valtrex (valacyclovir.) Within four days my ear went clear again and I started having mild vertigo/dizziness. My ear has been clear for about two weeks now and I have been Having vertigo//dizziness every/or every other day. Each episode is not as bad as the last time. So, Pakrat, in my case I have had vertigo without full ear. Clear excellent hearing with some tinnitus ( the first seven times of full blown vertigo) Then ear went full and no vertigo for four months. Then it went clear when I started taking the AV's and that's when I was having vertigo/dizziness every or every other day. As far as your theory about if we keep the fullness and pressure down then we won't progress to the nasty stuff, I don't think that's the way it has been with me. I was/am tired of the vertigo/dizzyness hitting whenever it wants to, because it sure can ruin my day. I haven't had any episodes for two days. Soooooo, Maybe, just maybe just As Hollyflo was describing her first few days on valacyclovir it was causing the same sensations that the valacyclovir is doing with me. She says she can control the depth of the vertigo/dizziness by looking straight ahead and not turning her head left or right. That's the same with me, now. I do get a little wobbly, but I haven't fallen. My fullness is gone, tinnitus not as bad. I have been playing my acoustic gigs without an ear plug. I do plug when we do electric. Nicmger- I haven't tried the meclizine. My DR gave me a prescription for 5 mg of Valium and told me to take it as soon as I feel some Vertigo/dizzines coming on. It seems to be working. It must be helping but it does make me too relaxed and want to take a nap. But, I think meclizine did that too me also. Papajoe-- I have seen the ENT and have had an MRI (they said there actually is a brain in there). My gut health isn't bad I do 30 billion units of probiotics every day. I'm not ruling out MAV. I don't get headaches. My diet is pretty good. My wife and I are pescatarians. We abstain from eating all meat and animal flesh with the exception of fish. I have recently cut out caffeine, but I still have adult beverages occasionally. Vicki---I originally started with the BPPV and the eply maneuver, but it never did anything for me. Teesdale--I'm sure you just read what I said about taking the acyclovir and the valacyclovir. The acyclovir cleared my ear for awhile but that's when I started the Vertigo/////dizziness. Then it was like the acyclovir wasn't enough and the ear went full again, but no vertigo///////dizziness for five weeks. So, I switched to valacyclovir and the ear went clear again and the vertigo/diziness started again. I try to drink about 100 ounces of water every day. Since I stopped drinking coffee in the morning I start off with about 30-40 ounces first thing in the morning. Holly--I have watched a few different videos on the NUCCA and it looks like some high tech hocus-pocus. But, I really do hope it works for you. I know I had serious headache issues many years ago and my chiropractor/friend golf buddy would give me free adjustments in my back and neck. I haven't had headaches for years. I agree with you. I think the valacyclovir is penetrating into the virus better than the acyclovir and I have high hopes this is going to be the answer for all of us. I am on the two per day now for another 2.5 weeks and then I will try the 1 gram per day and see how that does. Happy Days and Good Health to ALL!!
It's all over the internet, but I usually go to Web MD first with whatever I'm thinking about taking. Here's a link. Look under cautions. Be real careful with high dosage Lysine.
Santa, I am disappointed to hear you suffer even when your ear is clear. Give plenty of time for the antivirals to work. I just came back from my Oto/Neuro today and he emphasizes that the Valacyclovir is the better drug. The bio availability of this drug is superior to plain old Acyclovir. Apparently, Acyclovir is the older drug and when Valacylovir came out it was supposed to be able to do everything Acyclovir could do but only better and more efficiently. Also, and as reported by many on here, me included, the conditions will generally worsen when you first get on the antivirals. Brave it out for awhile, even a month or more, and your condition should improve. I'm no doctor, but this is how I best understand it. I wish you and everyone on here great success with their treatments. Unfortunately, we are alone, as the medical world is way behind on this condition. As another little side note, at the University of Sydney, I heard they just wrapped up a Meniere's Symposium, and one of the worlds greatest Meniere's researchers, Dr. Daniel Brown, gave a lecture there. As I understand it, Dr. Brown runs the only Meniere's research lab in the world located at the University of Sydney. He also has a few videos on You Tube as well that have some good information in them. I am hunting around to find out what was discussed over the weekend though. It would be nice to hear some good news.
Santa - I have lorazapam (same as valium) that I take by putting under the tongue when the full vertigo hits. However, as you said it does make you sleepy so not something that I would use often and is also highly addictive so another reason not to use it that much. But when I had the month stretch earlier this year that I was dizzy (not room spinning) but move the head and feel dizzy, walk feel dizzy, look at something dizzy that is what I took the meclizine for - and it helped THAT. Does nothing for me on full on vertigo with room spinning violently around and around. And hard to say if it made me tired because during that month I was constantly tired - probably because of the off balance and nausea 24/7. I know I was still able to watch my nieces for the week so definitely didn't knock me out. Definitely try the BPVV maneuvers. I used one that is out on the internet called somersault maneuver. For me, it was "easier" to do correctly and it worked the couple of times that this is the issue. I think perhaps that the reason the dizzy part is a bit worse right now is that the a/v is starting to attack the bad and your body which has been overcompensating for that is struggling to catch up. Hopefully this is MM final hurrah!
I saw the invite too and spoke to someone who attended, he might upload some videos of the symposium. If he does I will post the links.
Found this link on the U. of Sydney lecture via Google - haven't listened to it yet just passing it on. http://www.youtube.com/watch?v=rMl5wxMgKfI One question on AV's, am I wasting my time on Acyclovir? Has anyone had prolonged success on just Acyclovir or is it just temporary and Valyclovir is whats really needed to put the virals down?
i do not face any vertigo/dizziness/or spinning, they stopped ever since i started Valtrex... I am in my 3g finishing 2nd week soon. My hearing is still not fully back yet. But not dipped to zero anymore, i am expecting more to come back. But one thing, i noticed, that could be due to Valtrex, during my office work, I do find myself feeling sleepy easily nowadays even though I have about 5-7 hours of sleep daily. Is this what anyone is experiencing also?
Thanks for the link, its from June 2014 though not from the symposium. I have long term success with acyclovir. I am on my maintenance dose for about a year now. January 2015 will be 2 years of being vertigo free. I have Meniere's for 49 years.
As another little side note, at the University of Sydney, I heard they just wrapped up a Meniere's Symposium, and one of the worlds greatest Meniere's researchers, Dr. Daniel Brown, gave a lecture there. As I understand it, Dr. Brown runs the only Meniere's research lab in the world located at the University of Sydney. He also has a few videos on You Tube as well that have some good information in them. I am hunting around to find out what was discussed over the weekend though. It would be nice to hear some good news. [/quote] Dr brown is definitely not the only one in the world doing mm research. Why did you think that?
He didn't say he was the only one in the world doing research did he? Actually it is said that Dr Brown's lab is the only lab totally dedicated to Menieres research.
@Enjoy. If I had only 5-7 hours of sleep a night, I would be unable to handle the disease. I 'go down' 8-10 hours a night. I recall reading-hearing that rest is not negotiable with Meniere's. I wouldn't put your tiredness necessarily of the AV. Others?
I agree, for me if I don't get enough sleep and get tired it is a major trigger for me. Lack of sleep and stress are the two major triggers (that I have found) for me so far.