A year on JOH & acyclovir. 2 mo on betahistine & pycnogenol. Back in ER...

Have you been taking 1500 mg or 3000 mg of lysine each day?

--John of Ohio

 

so sorry you are not feeling well. from what I gather from your post you were taking joh, acyclovir serc and pycnogenol and was still having vertigo and needed to take valium? If that's the case I would say they were not helping you if you were on the correct doses.

Also I think you were taking to many different treatments at same time, I have no idea how they interact with each other, but that's just my opinion.

If it were me I would try eliminating one treatment at a time slowly and see how you feel. See which one helps, which one doesn't.

I hope you feel better soon!

 

To presume that any of what was being taken, prescription drug or supplemement, was the actual cause of the recent erruption of symptoms is not reasonable. If any of those were the actual cause of the re-eruption of symptoms, why didn't they cause this previously? For a period of time, relief was gained.

Something has changed, and it's not what's being taken therapeutically. The "take one at a time" approach presumes that only one therapeutic agent will bring relief. I tried that, for several years, when I devised my Meniere's treatment regimen, and no single agent offered relief; only a carefully-administered combination.

Dosages and dosage frequencies can be crucial, especially with lysine and the prescription antiherpetic drugs. Sometimes those have to be adjusted.

--John of Ohio

 

I was asking first if he was taking all of those treatments for a year and still had vertigo..thats how it read to me.
if that's the case its not recent. I asked for clarification on that in my first sentence and if that is what he meant, a year is a long time to be on several treatments and not get vertigo relief.

 

He stated "For the past year or so, I've been able to control the vertigo/vomiting attacks with valium and zofran within a couple of hours if I don't move and stare at one spot." But his thread title said a year on JOH, acyclovir etc etc". so seems he was taking all those treatments and still had vertigo and had to take valium to shorten the attacks.

 

Thank you for the clarification, if you received any improvement on acyclovir you may want to switch from acyclovir to valcyclovir and see if that helps you even more. What doses of acyclovir have you been on and for what duration? Were you following Dr Gaceks dosage recommendations?

Did you feel better before adding the SERC and Pycogenol?

 

I'm sorry that you are suffering once again after finding relief. For those of us who have fortunately found permanent relief we do of course pass on what had worked for us. You touched on the subject in your post about avoiding certain dietary triggers. That's what has worked for me, I have been symptom free for 5 years and fingers crossed don't feel that I will ever suffer again as long as I am sensible and avoid my triggers.

If you haven't started from scratch with food and drink trial and error in the past, maybe/ perhaps that would be a good idea to give it a go now.

Wishing you well

Frank

 

Lack of adequate sleep and stress are my two major triggers. Caffeine not at all. Stress is a hard one though because when this "thing" becomes active it is stressful, and then that creates more attacks. Vicious circle.

I agree with Vicki and think you should try moving to the valtrex anti viral at the full recommended dose. It is worth a try.

I also agree with Vicki (I learned the hard way) that by throwing everything but the kitchen sink at it all at the same time makes it virtually impossible to know what is working. And for me it was depressing to take so many different pills and not find relief. I also know that in those situations we want and need to feel better soon so it is very hard to try things in a slow methodical order.

Good luck

 

Hi there, I started my journey thread on valcyclovir about few weeks ago. The recovery is slow but steady.

Are you still having your symptoms?

Few things for you to take note:
- You cannot take valcyclovir if you have kidney and liver issues.
- This pill is not cheap.
- You have to be patient.
- Side effects, I have yet to seen any, but other people experience some vertigo.

If you are ready, follow the valcyclovir (Valtrex) STRICTLY and do not add any other regimen at all and see what it does to your present symptoms and let us know.

My guess for my side is that, the virus might have built a resistance to the acalcyclovir on a short time basis and hence switching to valcyclovir would be better for me.

Hope you get well soon.

 

adding to jaypr's post be sure to stay away from foods that have more arginine than lysine, if your MM is caused by a virus. Even on acyclovir when I would eat those types of food I would get symptoms

 

this database is excellent and you can search any nutrient
http://nutritiondata.self.com/foods-000089000000000000000.html

high in lysine vs arginine

http://nutritiondata.self.com/foods-009083000000089000000-1.html

 

The best advice I can give you is put this shit behind you once and forever, I am sympathetic to the laby. There are some people on this forum who have had basically double laby's/have zero vestibular function from this disease. They don't come around much because they are off living life.

One rides motorcycles/dirt bikes, runs his own company, one is a doctor, one has walked many many 5k races and hikes on places such as the Grand Canyon.

Do not let this shit run your life.

 

John, look back on previous posts, I found proteins interfere with lysine. I take lysine first thing in the morning but usually have a cup of decaf coffee soon after, with milk. Could that be an issue?

Milk is loaded with proteins. Would be best to take the lysine at least 20 min before the coffee and milk, to keep them digestively separate.

And there is no demonstrated or physiological reason to stop lysine while taking any of the prescription antiviral drugs. To do so is simply to reduce the suppression of the herpes viruses being attacked by both the drugs and the lysine --- but in different ways. Lysine simply does not interfere with or reduce the effects of the antivirals. If you want to play research scientist and try to determine which is more effective, individually, lysine or antivirals, go ahead and take only one at a time, and see how that works (if you could somehow tell in any quantitative way). Were it me, and I still had Meniere's symptoms, I would not try to play scientist; rather, I'd try everything possible to reduce or eliminate my symptoms. In combination, lysine and the antivirals have that greater chance.

There is not a shred of evidence, conjectural or authentic, that lysine somehow interferes with the efficacy of antiviral drugs.

--John of Ohio

 

Hi Info, I stopped almost everything else for my first week with Valtrex to see if Valtrex is kicking in anything positive for me or not. For me, it was the almost daily evening dizziness spells that I was getting after a long day at work, the Valtrex stopped that.

In my previous post, please do check with your doctor as to whether if your body is suitable to take Valtrex or not.

Have a blessed evening.

 

Hey guys evenw hen ist an older post i have a question. Iam from Germany and we only get Betahistin so i can say it makes better some symptoms but ist no relif or somthing live is still hard to manage. So is somone here who have expoereince with acyclovir in Germany? i mean did somone get it from his doctor? or maybe a tip what i ahve to do to get it?
How its written on another post Many Doctors are verry sceptical and doesnt complain about their current methods.

But i guess i should try it. so thank s guys iam open for tip

thanks

Dennis

 

should mean life* sorry iam writing to fast.