Hello everyone! This is my first post. I'm a long time vertigo sufferer (five years, fairly consistent.) I don't have some of the typical Meniere's symptoms, but since its been so long since I came down with vertigo, my doctor wants me to try the treatments for Meniere's, as an attempt to get my symptoms more under control. This idea sounds kinda fishy to me, but lowering the salt in my diet and trying a few supplements and medicines seems harmless enough. I'm willing to give it a try. He also wants me to stick my head in an MRI again. (Typical doctor. Can't make a diagnosis these days without some kinda machine that goes "Ping!") So, this low sodium thing... today is my first day measuring my sodium. I didn't have a very high level in my diet before, I used myfitnesspal to analyze my typical intake, and it was around 3000 mg. I've got it way down today. Should be about 1500 after I finish dinner. Two questions: What should I expect as my body gets used to living with less salt. Is there a detox period, like when you get off caffeine and you get a headache? For those of you who use sodium management to control your symptoms: How long did it take before you new that this was going to work? My doctor didn't give me any sense of how long I should do this before deciding if continuing is worth it. Thanks for your help.
Hi and welcome. MRI's are important to rule out more serious causes of vertigo since there is no medical test for Meniere's. I don't know many who have gotten there symptoms under control with just reducing their sodium intake. but many have had improvement reducing sodium along with other treatments. For me personally sodium intake has never been an issue. 3000 mg a day is 1000 mg above the daily recommended requirement. If your testing comes out fine then I suggest you check our forums database for antiviral treatment for MM. Many of us have success with antivirals controlling vertigo due to MM. Good luck and keep us posted.
also since you don't have typical MM symptoms might be worth your while to check out the thread in the database about MAV migraine associated vertigo (headaches are not required) symptoms mimic MM in many ways.
You mentioned "supplements." Which ones? Many are used in my Meniere's Treatment Regimen, here: http://www.zoominternet.net/~kcshop/JOH.pdf Keep us posted on your progress. --John of Ohio
Thanks for taking the time to reply, Vicky and John. I'd like some feedback from someone who has had success with using a low sodium diet. Specifically, how did they feel as they made the switch and how long it took before they knew that it was successful. John - I'm not sure that most of the herbs and supplements I take are relevant because I have a case which is at least partially migraine related. But you may be interested to investigate the herbal supplement, pycnongenol. I didn't see it on your list. I have not tried it yet, but I just saw an expert in vertigo disorders and he says its promising as a treatment. It should be coming in the mail any day, but it is said to take up to three months to work. The literature says that it works by increasing the blood flow to the ear, which could trigger real healing, not just symptom relief.
There is a long thread of pycnogenol postings on this board here: http://menieres.org/talk/index.php?topic=333.0 If this bears out, I'll add this to my regimen (awaiting reports). --John of Ohio
I am going to order Pycnogenol on my next order. I have taken it before few years ago. I think it is good for health generally. Will keep you guys posted when I start to take it. John, any comments on colostrum spray to which Vicki posted previously on Immulonax, sometime ago
For myself I have a maximum of 1000mg a day, all I get is foot cramps Lately I have been trying to increase but I haven't been well
Bare feet I was big sodium user. When I had to learn how to manage my intake better, I really didn't notice any physical reactions whatsoever. I was also put on a diuretic and drink a lot of water. I hope this answers your question.
Thanks Bumblebea. I've had a pretty big reaction these first few days. I lost 5 lbs in 48 hours. My vertigo/migraine thing seems better, but now I feel light headed. (Interesting that the people on this board are among the few I can reasonably expect to know the difference between vertigo and light headed.) I found it really easy to get my sodium WAY down and harder to go moderate. If I eat the recipes I found for low sodium stuff, I'm way low, and if I where to eat my old recipes, I'd end up high. I only ate 1000 mg a day for two days, which is a big change for me. Honestly, I think the difference that I'm feeling is most likely placebo affect. I so want something to move me towards wellness. Oh, well. I'll take what I can get.
I wouldn't worry about the weight loss, I lost 15kg when I first had my first attack which put me in bed for a week,
The sodium thing seems to be the first line of defense in our medical system. I dropped to below 1000 mg/day…never ate salty processed foods so no huge change..and took diuretics. Both of these religiously for about 6 weeks. No impact. Then the JOH regimen kicked in and I also started AV's now for almost two months. When I stated that, I dropped the diuretic and have since loosened up on the sodium restrictions. I think the low sodum and diuretics caused me the most dizziness. Gone since I stopped that. Vertigo hasn't been my biggest issue with MM. Hope that is helpful.
A low sodium diet may not be enough as diuretics will also help. I started a low sodium diet back in April and after about 6 weeks it seemed to kick in as my ear symptoms got better. It lasted for a couple of months and then I slacked off a bit so my ear also got worse. Then in September I started getting dizziness/vertigo episodes on a regular basis. My ENT sent me to a neurotologist and she mentioned how you really have to go hardcore on the low sodium diet. She also upped my diuretic dosage by 50%. After a number of weeks my ear is again somewhat better and the vertigo is less frequent. She did say though that it shouldn't take 6 weeks for a low sodium regimen to kick in. It doesn't work for everyone though and truth be told, I am taking some of the JOH supplements but not at the suggested dosage. I go back to her in January and if I don't feel I've made much improvement I'm goign to request anti-virals which we did discuss.
I also forgot to mention you really need to limit sodium to 1000mg or less per day which is not easy, especially with the holidays coming up.
I take it Zotjen, that the under 1000 thing has worked for you. My doc recommended 1800. The new theory being that a nice even salt intake is more important than a low salt intake. But if you read between the lines, they are still just guessing. I might try going under 1000 once I feel stable here. I think it would be easy to do since a cook a lot anyways. The only problem I've had so far is with bread. It turns out that even fancy whole grain breads are high in sodium. It's because salt is added to work as a balancing mechanism on the yeast.
I have a secret weapon for holidays. I'm a vegetarian! People are just relieved when I tell them that I'm bringing my own dish. I usually bring enough to share, but not a Huge dish. People are curious and will want to try bite, but in a meat focused family like mine, they are filling up on other stuff, so i just bring enough for everyone to have a 1/3 serving. The key I've found is to make my food look and feel like an appetizing addition to what's already being served. That way I don't get pity for being "left out." I also ask the host to keep a few of the sides as something I can eat. So tomorrow, I'll have them hold out some greenbeens before they cover them with salty, bacony goo. If you're a meat eater, I imagine you could bring special gravey and stuffing. Just make it a different flavor than what's being served so it looks like an addition instead of a subtitute. For dessert, I'm making my own pie - pumpkin with coconut milk custard instead of milk and a fancy-brand spelt crust that I found at whole foods. Don't tell, but I hope no-one else eats this. I want leftovers. Of course, I'm speaking from the perspective of someone who is attending, not hosting, a big family meal. There are different ways of working different arrangements, I'm sure.
Mid-June 2014 I was hit with meniere's. I am still in the experimental phase with medications. To control sodium, I went to a 1500mg/day Na diet. I felt fatigued so I went up to a 2000mg/day Na diet am doing "ok". I do not measure Na, just monitor serving sizes. If I am exercising I increase my Na to compensate for Na loss during workout. Consistent Na levels throughout the day is the key. Any changes you make to your diet give it two weeks or so to allow your body to adjust.