8) Hello! I'm new here, no MD dx at this point. I see my ENT on the 9th. I got tinnitus in Feb 2010 so I saw an ENT then, but he said not to worry. I started getting migraines in the spring of 2011, have had four episodes of crazy rotational vertigo since Aug of this year, the last one on Christmas eve. they were each about four hours long. I go to bed when it starts and then fall asleep, but it's restless and I keep waking up to see if the room is still spinning. My right ear hurts, itches, feels blocked. I didn't think there is any hearing impairment but I'm super sensitive to the sounds and was disappointed to read that this is a sign of hearing problems. I should also mention that I have systemic lupus, so when the room started to spin I figure it's just lupus which is hard to predict and always comes up with new strange things to bug me. I was diagnosed with lupus in the fall of 2009. I also have raynards, and sjorgrens - a veritable pack of autoimmune disorders. hoping it will go away. I don't want it.
Hi dizzychick, so sorry to hear you are dealing with so much. From what you wrote I would suggest looking into MAV, Migraine Associated Vertigo, there's a great thread about it in the database section of these forums. MAV and MM have very similar symptoms and many times it is misdiagnosed as MM, on the other hand many of us have both MAV and MM. I hope you find what works for you to get symptom relief.
No hearing loss may point to MAV I recommend an Neurotologist not a regular ent. Good luck, nice to meet you
thanks so much - I will keep it in mind. With these vertigo episodes I didn't have a headache though... so, doesn't that rule out MAV? Otherwise the duration and circumstances make them seem like a migraine to me too, but, again no headache, I am under the care of a neurologist, for the migraines and also some neurapothy and balance issues that have been bothering me since the lupus dx. He has done several mris in the past few years, but I think he is mainly looking for MS, which he always says he doesn't think I have. I really don't like going to him because he always wants to do an MRI and they get expensive. But if the ENT wants a new MRI anyway I'll have the Neurologist do it. At least I've negotiated a discount with him. I think the lupus throws a ringer into the mix for the drs to figure out.
no, many do not get headaches with MAV, I don't its more common not to get headaches with MAV than too get one, please read the thread in the database it will explain it all to you.
A more common type of MAV and difficult to diagnose is there is no headache at all. Approximately 50% of vertigo attacks related to migraine occur in headache-free periods