Hello all I am new to this forum and just recently diagnosed With MD 6 weeks ago. I read some of The post and sympathize seeing how bad This thing can get at this point in have mostly symptoms My left ear of the volume going way down in between I get dizzy not extreme I was put on a diuretic And low salt diet already lost 17lbs prob fri The stress of this I suffering fr panic attacks And now depression feeling so scared that I wil go deaf I feel symptoms of slight Tingling around my my other ear but no Hearing problems yet anyway does Anyone know if this is common or is it likely I have in both ears? Also I there a good Book anyone can suggest on reciepes ? I have 3 kids a husband and feel like I Am now going to be a burden on them Don't want to socialize or go anywhere Bc of being dizzy or ear problems I see so Many positive people and want to be Hopeful but it's a lonely feeling Thank you
I posted this also in the Livingroom section Hi Lisa, You are not alone, we understand how frightening this disease is and are here for you. Please make a thread in this section, I saw you posted in the database. The living room is where you will get more responses and suggestions. I have great success with antivirals, so have many others. I have been symptom free for 2 years except for mild tinnitus. No vertigo attacks or dizziness since I started antivirals. Dr Gacek wrote a great paper on antivirals and his success rate is about 90% You can find that in the database section http://www.mm3admin.co.za/documents/docmanager/6e64f7e1-715e-4fd6-8315-424683839664/00056616.pdf (page 104 gives the doses) along with an even more informative articles documenting many doctors and studies showing a viral cause. http://www.sciencedirect.com/science/article/pii/S1568997212000092 You should also look into MAV Migraine associated vertigo (headache not required) and see of any applies to you. http://menieres.org/talk/index.php?topic=32.0 Many of us who have MM also have MAV
Thank you so much for you advise I didn't know that migraine Could be the problem suffered terrible ones as a child but not anymore Just headaches more often now will so ask about antiviral medication Is there one most recommended? I see my dr April 2 the diuretic and diet is not Helping wake up every morning with unclear hearing and now mild to tinitus thank you For you help
you're welcome Lisa, since you have a history of migraines and headaches MAV might be worth looking into too and the most common form of MAV happens w/o a headache, like I haveand control by avoiding food triggers. Yes in Dr Gacek's paper and clinical practice he uses valcyclovir now but he used to use acyclovir(which I take)on page 104 in his pda he gives the doses for av used for MM I would recommend you printing out Dr Gaceks paper and this one http://www.sciencedirect.com/science/article/pii/S1568997212000092 and showing it to your Dr. a lot of doctors will not prescribe an antiviral for Meniere's and need to helped into getting them to agree to it.
Yes I intend on doing that Vicki if my otologist Does not prescribe I Will ask my primary doctor . Have you had any success With steriod injections? Scared to try but the Prednisone I was originally put on (before They thought menieres) stopped all symptoms
I never did anything for MM except the antivirals and for me no need to do anything else..so far. My symptoms are suppressed.