Assumption is correct. No vertigo and no balance issues. I still sometimes get a feeling like uh-oh this is what it used to feel like when vertigo was coming on. But, this feeling only lasts a few seconds. Then I am fine. Sometimes this feeling happens when I am sitting at the computer and sometimes when I am driving. Not much any other time.
Santa, your story is so inspirational. I hope I get the results you have gotten. I also hope I can have a vodka drink every once in a while!
Don't tell the kiddies but I probably drink a little too much vodka. Gardengal. Love your name. Sounds like you r doing well also. Together, you, I and everyone else on this forum ,we are going to find a way to beat this. We have to do this for ourselves and future generations
I would like an opinion about the Lauricidin - I suspect that my issues are MAV but I don't really know as I've never had a definite diagnosis, I gave up on doctors long ago, anyway I was thinking of taking some of this but I recently had a flare up and I think the trigger was some coconut milk and coconut oil as it is the only thing I had added to my diet that was different SO since this stuff is taken from coconut could that mean trouble for folks with MAV? I know the Lauricidin website says you can take it if you have a coconut allergy but having it trigger a migraine is not the same as an allergy so I'm on the fence as to whether it's safe or not.
I guess you haven't read the book Heal Your Headache by David Buchholz, M.D.? He says "NUTS IN GENERAL - pistachios, walnuts, cashews, Brazil nuts, pecans, almonds, coconuts - as well as nut butters and extracts contain tyramine and are therefore potential migraine triggers." I know that coconut milk and coconut oil had been added to my diet and was really the only food I had added out of the ordinary so I was just suspicious that it had triggered this recent episode. It just makes me a little nervous to try the Lauricidin but on the other hand I would like to see if it would help. I was just looking for opinions as I know some people on here with migraine are familiar with the Heal Your Headache Book as this is where I found out about it.
I have read it but follow my own triggers and only during allergy season otherwise I'm fine with MAV foods
Key words in the information is that the ones listed are "potential" migraine triggers. It is my understanding that each person reacts differently so it is up to each person to experiment with the foods noted and determine which ones are triggers for them.
It's nice that you know your triggers but I still haven't figured out all of mine, every BODY is different and the reason I asked the question in the first place is because I suspect coconut being one of mine hence was hoping someone would know if this monolaurin might be a problem since the Lauricidin website says people with coconut allergies could take it, I was thinking it might not be like taking coconut oil or milks straight.
true everyone is different. Keep a journal and note what you eat or drink before the attack I get very obvious clues, if I eat a trigger food me ear rings off the hook loud and high pitched that it makes me nauseous. If I keep eating it a vertigo attack would occur. You can call the number on the site and ask them since you suffer from migraines will the lauricidin affect me as coconut does. Or ask a pharmacist about monoluarin and migraines.
Been 2 weeks for me since I posted last. Im still on the monolaurin. No vertigo at all. I have had bouts of brainfog, maybe dizziness? It feels like im about to spin but dont. Since the vertigo spell 2 weeks ago, I ramped back up the Lysine from 1.5g a day to 4.5g. Im assuming thats making a big difference, as before I was doing 3g a day and having a vertigo spell maybe once a month. When I went down to 1.5, I was getting attacks 2-3 times a week. I was also taking in a lot of arginine. So things are going better now that im doing 4.5g, and watching my arginine intake. I also went to an allergist, where I found out that im not allergic to anything. My nose has always been stuffed so I had xrays done. Turns out I have some massive buildup next to my nose. It looked bad on the xray sheet. The dr said it might be a cyst, but nothing to worry about. It is blocking my ent tubes though, so I have some meds to hopefully get rid of it and he said it might help my menieres symptoms. Also went to physio and learned some head exercises? You shake your head and focus on a letter a ways infront of you. Its supposed to resync my bad ear and might prevent the brainfog/dizziness. So a lot going on which gives me some hope things might keep getting better. Is Monolaurin meant to stay on permanently? I have about 1-2 months left. I might just let them run out and see if my symptoms return after. Hope everyone is doing well.
The allergist gave me Prednisone.. its for auto immune disorders? I took one this morning and had a bad dizziness spell with some spinning about 3 hours earlier. If my Menieres is caused by a virus, could taking Prednisone make my symptoms worse since it supresses your immune system? Sorry for all the questions, just trying to piece everything together.
Prednisone is a pretty standard treatment for MM, but it's just aimed at tamping down the symptoms rather than addressing any sort of cause - you usually take it for a limited period and it is super important to follow the dose tapering. I've taken it in the past for poison ivy and when I was first diagnosed with MM. Both times the side effects were pretty bad: wicked insomnia, and the second time my blood sugar crashed hard when I was tapering the dose. Unless there is a compelling reason to take the stuff I don't plan on doing it ever again. Your milage may vary.
Hey angrychicken how have you been? good to see you posting but hope you are still doing well on AV'S Qntario Only thing I know about Prednisone and MM is people take it when their have sudden hearing loss it brings back their hearing, but I don't recall anyone saying it made them have vertigo, hopefully more who have taken it will respond I never have. I don't know how long people stay on monolaurin you can google it and see what others do with it, there are tons of post by people on all different forums who take it given to them by their doctors and other medical professionals, but since we are assuming we have an HSV ( I ma sure my MM is caused by an HSV) it may be something one needs to take ongoing unless it really does kill off a virus then our dream comes true!
A week later after I received my 2 bottles of monolaurin, i was at my clinic and told my usual nice doctor about this coconut thing and the cures of it and the discussion you guys had about why doctors do not usually endorse such as this product claim or so due to profit margin. I told him about the HIV claim etc. Anyway, to my surprise, he encouraged me to take it and showed me a picture of a bottle of virgin coconut oil on his phone. He told me to take it slowly and not rush and take it for general health. Now last week, after i bought it, i told him about it. And he is keen where i bought it as it is cheaper etc. LOL Well, the taste of it, is normal, just like some familiar Asian desserts made with coconut stuffs. But it is written there, 2-4 tablespoons of it. if i go over 2 tablespoons, it will make me uncomfortable on my chest for an hour as it is oily. So i only take this whenever i am at home as well as my monolaurin pills in the office. Cheers to coconuts..
Hi- Loooooonnnng time lurker, posted a couple of times under a different name. Long story short, I stumbled on this thread, and as I've been having some horrible issues, I was hoping I could find some of this stuff and try it. I was out of town, but luckily the local green market had some so I got it. Took 2 tabs today, and we'll see how it goes in the long run. Good luck, everyone! On 3: MENIERE'S SUCKS!!!
Hi everyone This is sort of a “good news”, “not so good news” and “I don’t know what to make of it” update. The good news: I’ve been vertigo free for 6 weeks as of last Friday, June 12th. How I’ve managed that is beyond me considering all the stress and difficulties I’ve faced the last couple of weeks and in particular the last several days. Those of you who have been following my posts may already know that I’m the executor of my late brother’s estate and that has proven to be far more stressful than I could have ever imagined it would be. I’ve recently faced fines and possible imprisonment for not turning in some paperwork by the assigned due date because I needed the signature of my brother’s widow on it before I could file it and she kept ignoring the requests from both myself and my lawyer to come forward and sign the paperwork. I’ve been harassed by my ex SIL (brother’s ex-wife) by text messages, voice mails to my cell phone, private messages on Facebook, messages on my home answering machine and by her showing up unannounced at my front door one morning. Sadly, I’m learning the hard way that money brings out the absolute worst in people. But I digress……. The not so good news: Even though I’ve not had any full blown rotational vertigo attacks, I’ve had numerous close calls. The worst was one day late last week. My head was so swimmy that it made me nauseous to the point that I started to gag (I hadn’t eaten anything that day so there was nothing in me to throw up) and had to take a 5 mg Valium sublingually and lie down for a while. Which brings me to…… I don’t know what to make of it: I don’t know if all these little close call episodes are merely due to stress or if I need to increase my dosage. Right now I’m taking one and a half tsps of Lauricidin 3 times a day. I’m thinking maybe the virus(es) are still active in me and haven’t been sufficiently destroyed yet? Maybe I’m expecting too much after just 6 weeks and I need a little (or a lot) more time for the monolaurin to fully work? In any case, I believe I may up my dosage to 2 tsps 3 times a day and see if that helps with all of these odd little episodes I’ve been experiencing. As always, I’ll keep you all posted. Wishing you all my very best for vertigo free days and for the beast to forget where you live and find his way back to his underground lair where he belongs. Peace, blessings and good thoughts to all of you! Lulu ♥
wow Lulu that's terrible what you have been going through I am sorry to hear this. I hope things calm down and get better for you. I've did some reading and people have stayed on lauricidin for a year or more http://www.amazon.com/Lauricidin-227-gram-8oz-jar/product-reviews/B004I8SMOQ Also some say they are taking higher doses than you are, but I don't know the proper dose so I cant say what dose you need to be on, but the stress which you have been having is extraordinary and I would think that is what caused your setbacks. Stress is a major trigger for the virus. I would think any of us on antivirals or whatever would have a setback going through what you are going through. HUGS!
also not eating all day can make one feel sick, dizzy and nauseas, your blood sugar might have been too low.