Hello. Just thought I'd stop in and ask a serious question, my personal update is below if anybody remembers me from six months ago. The question is, how is it possible to go on a date (I'm dead serious) when you never know when a "bout" is going to happen? What I mean by this is do you tell your date straight away that you have a condition that may require the date to end before its over, or just go in "cold" and roll the dice? My boring update (if anybody is interested) - it turns out I don't actually have Meniere's but a variation of labyrinthitis or MAV that has something to do with my syringomyelia. Won't bore you with the technical details but it has to do with the CSF flow and pressure. Inner ear was "blown out" from either extremely high CSF pulse pressures OR contaminated. Bottom line - my dizziness and balance issues are the result of a very rare disorder, and there is no real fix for this. Despite the depressing news I stuck with the JOH regimen as best I could all this time. I believe that the increase in perfusion and nutritional support was a good idea. I dropped the L-lysine since it's not viral related. So thanks again John wherever you are. (gets REALLY boring from here - skip this part unless you are super bored yourself) Anyways, as most of you know by now you REALLY need a good support system at home to help you get through this. Sadly, such was not the case with me. I really needed my g/f to step up to the plate and help with basic house stuff that I used to do (shopping in particular) and after eight months of dealing with dead weight I can say that my feelings are pretty dead. Unfortunately, she won't move out but I am wiped out a lot of the time and dealing with that "shut in" feeling. Not to mention my work is fairly physical and it's all I can do to make it through the night. One thing I've learned - all this really can test your relationship to it's limit. So I've been looking at Zoosk and other sites just to see what is going on. The last time I went on a date, there were no "dating sites" or texting or anything like that. Back then, all I had to work with was actual, real conversation and body language. This should be fun. :
I say tell them up front. If you don't and then u have a bout who knows what your date might think. Is this person a drunk and been sneaking drinks behind my back? It's always best to b upfront. If they can't handle the fact that u have these bouts then u don't want to b dating this person anyway. This world is full of beautiful loving, caring people. I do know some people that have had success finding someone special on the dating websites. Good luck!!
(Hit send too soon.) The reason I ask is a syringomyelia is a cyst in the spinal cord. It has nothing to do with Menerie's-like symptoms. Just curious.
I would tell the truth. But even before that, I would first deal with your current girlfriend and part ways/live in separate places before beginning a new relationship. Not sure a new relationship would understand both issues. Plus the added stress of your current living situation is probably not helping.
Thanks, yes syringomyelia is very rare and apparently not well understood. I have been diagnosed by two neurologists and a neurosurgeon who all concur that my dizziness is subsequent to syringomyelia. Can you please post your professional credentials and experience with syringomyelia before diagnosing me over the internet? Cedars-Sinai also lists dizziness/vertigo as a predominant symptom for SM based upon clinical historical pathophysiologies? If you have further insight above and beyond these medical experts then please, by all means speak up and post your clinical opinion? Thank you
RV, a little defensive, huh? If you read the question properly, my curiosity, not my diagnosis, was how the doctors decided it was syringomyelia. Wile I understand syringomyelia can cause dizziness, I did not know it could cause other symptoms of Meniere's- ear fullness, tinnitus, progressive hearing loss. Therefore, my inquiry was more to understand if the tests you had to confirm your diagnosis should/could be a implemented for people suffering from MM-like symptoms, but might be misdiagnosed. Relax, man.
Spot on...X 1000! From what you've written, another relationship is the last thing you should be considering. You still got one in the house, and that issue will have to be dealt with first. My first thought was: "Since when does yet another relationship make life easier?" It don't. Get your ducks in a row first, get your health under control, and then maybe consider a relationship. JMHO, of course.
I have been on dating sites for over a year before my diagnosis and since. I found it harder to relate before my diagnosis…about my condition saying only that I was navigating a health issue. Now afterwards I reveal it straight away. It's kinda a real nut cutter because men who only want 'fun' relationships aren't for me anyways and the ones who are loving, caring and realistic are willing to explore with this factor as one of many in the over-50 crowd. Mostly, I have found very understanding men. I agree that this disease requires simplification of one's life…not adding more stress and complexity. Even if I were super woman I wouldn't be on a dating site with a live-in at home. Just dishonest. I have recently withdrawn from the dating sites for a time. I recently got ADA….meaning a qualified medical disability designation. This has gotten my into the Department of Rehabilitation for vocational assessment and job reentry support which wasn't available to me without a bona-fide medical disability. I feel that becoming financially sustainable and stable again is a precursor to having a healthy relationship and again going for the simplicity of going through this process first. I think it is the kind thing to do for men who might be interested. Ok…hope that is helpful...
I lost interest in the opposite sex for a while after getting mm but I am not sure if it was mm or the fact It was being with the same woman for 16 years and all my ex-girlfriends never returned my calls. One thing is for certain though, I could always pleasure myself if I had too, which was a lot. Sex is overrated IMO
I have had MD for over 20+ years - but after having several episodes in my 20's and progressively losing my hearing over the years... I went thru a period of about 10 years where I only had one or two vertigo episodes.... then it hit me like a freight train last summer again ( aside from the tinnitus and hearing loss I hadn't had a vertigo episode in ages - I almost forgot about them) - THe first one happened at work and I was vomiting at my desk - My son had to come get me and drive me home - my bf met us there and carried me up the stairs ( as I am carrying a bag to puke into because I couldn't stop throwing up I was spinning so bad) - - multiple episodes a WEEK - more hearing loss -- I had been with my bf for a little over 2 years at that point ( and he is alot younger than I am too) - so I felt like OMG - first of all - I can't believe that he is seeing me like this - puking - diareha - spinning - laying on the bathroom floor- having to get up at 1 am, 3 am, 5am to walk me to the bathroom because I couldn't see or walk or find the walls - it was awful.... I thought for sure that he was probably going to be like " hey its been great - I really love you - but I think I will go find someone my own age - lol" -- But he has been SO great- he has researched the disease with me - he has embraced the low sodium lifestyle - he figures out how to cook low sodium and that I stay between 1200 - 1500 mg a day-- looking up recipes etc..... he makes sure that I get enough rest - we LOVE to go to concerts together -- I had a custom ear plug made for my right ear -- ( tonite we are going to see Kid Rock) - so last night he cooked- he did the dishes and he made sure we got to bed early because he knows tonite will be a later night for us. I don't know where this man came from but I thank God for him every day. He has seen me at my worst and is still here. So I say all that because yes there ARE people out there who will stand by your side- obviously your mate is not that person.... But before you go looking for someone else -- please end this relationship first. You say " She won't move out" - is the place you live yours? Do you own ? Rent? Have you told her that you don't want to be with someone who isn't willing to support you and help you figure out a regiment that will keep you on an even keel?