I searched Dana White in the forum but didn't see this posted. This is a procedure done in Dusseldorf Germany where they spin your own blood then inject it back into you. Dana white got completely cured of Meniere's by doing this procedure. I have been trying to find if other people have gone there and what their success rate was but I'm not finding much info. Here's more info about Dana https://www.youtube.com/watch?v=apN_ryC-Bv0
I was not aware that he said he was cured. The last I heard he said that it helped to reduce symptoms.
we have threads about Dana white on these forums, if you check the archives from the old forums. We also have a member who went to Germany and got the same treatment as Dana White.
I think to say anyone is "completely cured" of meniere's is a misunderstanding. He most likely has his symptoms under control. Many of us have our symptoms under control but we still have meniere's.
If you check more Youtube videos about him and menieres you'll see he actually says he's 100% cured and he's eating whatever he wants (source: https://www.youtube.com/watch?v=I3O0IKYO_s4 ) He's had a shunt done before this procedure and another procedure as well before doing this orthokine procedure in Germany. How did it go for the member who tried the procedure in Germany? I never checked the old forums since its telling me to use the new forums but good to know.
I think the point redwing was making is that to this point there is no "cure" for Meniere's; absolutely if Dana White (or others) are in control of their symptoms and regaining life that is a huge positive thing. But the word cure may not be accurate. Also, I believe that even with the treatment to which you are referring there have been some success and some that it did not help. My personal belief is that it is reflective of the variability of this disease and is also a major factor why a cure has not been found. Each person seems to react different; each person responds differently to each potential treatment. But again, striving to find a treatment that works for you and controls symptoms is the target goal. Good luck
this is his latest update on these new forums http://menieres.org/talk/index.php?topic=955.msg29511#msg29511
Thanks Vicki, looks like he's doing well, of course we don't know which one has helped, the Orthokine or SS but we know it's one of the two which is great. For the other folks, yes maybe cure is not the right word, but we need this word "cure" in what I call our "brain cloud" to stay optimistic and creative in finding it.
I always see the glass half full and I believe there will be a cure someday. I found a way to control my symptoms but I know I am not cured. I will never give up hope that someday we will all be able to say I am cured!
IMO given that SS treatment take people at least 1 year or 2 to feel good, if they even do, I would think its the Orthokine treatment making him feel this good so early on.
Vickie I could also throw into the mix that he might be in remission. I had periods of months of remission. Just a thought
True redwing it could be remission but I believe people know if they are in remission or if it is a treatment is working. At least I knew for sure and since I never went into remission in 47 years. I was getting vertigo attacks everyday for a few months when I started the antivirals. On 4th day of av's the vertigo attacks stopped There is no way I suddenly went into remission while taking an av for first time. Starting a new treatment and symptoms subsiding at same time is too coincidental for it to be remission. OFC it can happen but it would be a rare IMO
Oh I didn't know that about SS taking 1-2 years to work, actually yesterday was the first time I heard about SS, so that's good to know! So then it does seem like the Germany treatment works then, he just needed more serum.. It's very tempting and I may opt for it, the only obstacles of course now are fear of the big straw needle they describe and how much blood they take I think its nearly 1.5 litres and whether this procedure may have any other side effects or problems down the line. However since they don't add anything it seems like a very natural procedure using your own blood etc. I also haven't tried anti-virals or JOH regimen properly. Regarding Dana whites quick recovery it could be that the shunt and other procedures he had tried before Orthokine in a way actually helped open the area for the Orthokine to work properly also but having read the archives it seems the Dr. in Germany says there is a 80% success rate in Menieres patients with improvement in their symptoms according to gfsound Also from just a little that I know, the serum produces anti-inflammatory proteins, I'm thinking if we know what proteins or amino acids are anti-inflammatory, couldn't we just supplement with them and get the same results?
There is a dr in FL, NY, TX, and CA that will do reginokine. FL and NY will do it for menieres. You have to have some orthopedic issue for TX or CA to take you. It costs a lot! No insurance accepted. I have heavily considered doing this but I am trying av (with great success) first. I did also go on an "anti inflammatory diet" bc they make you eat that way after you get regenokine, I figured I might as well eat that way before the injections.
As others on the thread mentioned Regenokine only causes the inflammation to come down. It should help with all your symptoms but they may come back over time. I wasn't able to confirm but it seems that some people have had the treatment multiple times to keep symptoms at bay. The folks in NY and FL are the same group, just different offices. The cost is close to 20 grand and requires you to be there six business days which could run the costs up more. I've heard the clinic in Germany will provide the treatment but you really have to push them. (Or have another issue that they focus on.)
NY is much closer to me then anywhere else so that's good to know. I just wonder if there is any difference at all between the German procedure and the New York procedure. Also is Reginokine and Orthokine different words for the same thing? What price did they quote you? I'm glad you're having success with AV's I've yet to try it, I'm just awaiting my MRI results first before embarking on that. Also this is not something I can really afford but if it means taking out a loan to get my life back then it's worth it. However if this is something that needs to be done every few years I don't think I can handle that. If it's a one time thing then yes. Well if that really is the case where you have to go back then that wouldn't work for me at those prices. But do you have links or sources where people said they had to go back again?
This is SOOO true. When I started JOH, the attacks didn't immediately stop, but they did immediately become less severe. Once I started taking lysine, I was never any deafer after an attack. Before, I would be deaf as a post after an attack for days to a week or two when some of my hearing would inevitably return. But not once I started lysine. Then the attacks slowly tapered off and stopped all together when I added the anti-virals. Something was obviously being done to the root cause of the disease. I would still be rocking and rolling(vomiting and spinning) if not for anti-virals and JOH.
I know someone who had the Regenokine treatment in NYC for Meniere's. It cost him $14,000. and lasted a little over a year before he started experiencing symptoms again. He had been told that he may have to have a second series of treatments but originally I he did so well that it wasn't necessary. Now he is thinking of trying the antivirals as another treatment with Regenokine would be very costly again, but he is still glad he did it because he had a year of living normally again.
with the Germany treatment they need to go back for a second round of treatment I think after 6 months of the first for it to be a complete treatment, if I recall correctly from gfsounds posts.
here is the complete thread on old forums, his latest update is on the new ones which I already posted the link to before http://www.menieres.org/forum/index.php/topic,37574.0.html