Progress??

Discussion in 'Your Living Room' started by vitolony, May 19, 2015.

  1. vitolony

    vitolony Member

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    Apr 22, 2015
    That makes me happy. :)

    LOL. Yeah, roger low. There was pretty much ZERO added salt in anything I ate. Only what was naturally occurring in the food. I ate almost completely natural foods. Which was very healthy, but dang it's hard to live that way. I need a little flavor in my life! :)
     
  2. vitolony

    vitolony Member

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    Apr 22, 2015
    It's now been 2 months since my last vertigo attack. I've gone back to a nearly normal lifestyle. I eat almost what ever I want and do what ever I want. I was quite overweight prior to my life falling apart last summer, and the attacks and subsequent nausea caused me to loose a lot of weight, so I am not going to allow myself to gain it back. But my dietary salt levels are normal now. I still have off balance days, but I was eating a bunch of raisins, which I've since learned have a high arginine content and low lysine content. So that might have been causing the balance problems by encouraging herpes growth. We'll see in a couple weeks if cutting them out solves the problem.

    This forum has saved my life. Literally. I was contemplating suicide prior to embarking on the journey suggested by JOH, Vicki and others here in the database.

    In some ways, my life is better now than it was before. This season of my life has forced me to rethink what is important in life and reevaluate my priorities.

    Thank you all, from the bottom of my heart.
     
  3. Vicki

    Vicki Guest

    I am so happy for you, I have tears in my eyes. I hope your post fills others with hope. As someone once said,
    "Suicide is a permanent solution to a temporary problem."

    Every new day brings the promise of hope.

    Great update!

    raisins and walnuts did me in once last year, my 1 and only vertigo attack from eating way too much of them while being on av's
     
  4. serbian

    serbian Member

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    Mar 25, 2015
    All the best vitolony, this forum is such a great place. I could not agree more with your message
     
  5. vitolony

    vitolony Member

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    Apr 22, 2015
    That is my wish as well.

    Thanks Serbian. With the unfortunately broken state of much of modern medicine, this place is a godsend.
     
  6. Shill

    Shill New Member

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    May 29, 2014
    What does MAV stand for?
     
  7. vitolony

    vitolony Member

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    Apr 22, 2015
    Migraine associated vertigo. There is a post about it in the database that Vicki wrote.
     
  8. vitolony

    vitolony Member

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    Apr 22, 2015
    3 months and counting. We had a very rainy, cloudy, dreary day here in Colorado yesterday. I could tell that my ear wanted to make my day suck, but it just couldn't quite find the gumption to do it.

    I've upped my acyclovir dose to 2 a day for a while. I think my ears need a little more help for a while. I'm hoping that I can eventually go down to just once a day, but the last time I tried, I had a number of dizzy days. The more pronounced dizzy days have stopped after going back up to 2 a day acyclovir.
     
  9. Lisa

    Lisa Member

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    Mar 21, 2015
    Vitolony I was wondering how long
    You have mm? I was told that 6 out of 10
    People within 2 years it goes away maybe it's
    Menieres syndrome but I don't think there is a sure
    Way of knowing the difference.
    Was wondering for anybody with mav, is there
    Anything you take for that?
     
  10. vitolony

    vitolony Member

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    Apr 22, 2015
    How long... that's a difficult question to answer. I first became symptomatic in my mid 20's. I'm 37 now. However, in my mid 20's, the only symptoms were tinnitus and only very occasionally, vertigo. My vertigo back then was VERY short and gone quickly, so I never saw the doctor and didn't think much of it. Then 3.5 years ago, I had a very bad bout of allergies that seemed to settle in my ears. I lost some of my hearing and my tinnitus got worse. I had an MRI done to rule out a tumor and was subsequently diagnosed with Meniere's disease. I still didn't think much of it at that point. I had lost 30% of the hearing in my bad ear, but the vertigo hadn't started in earnest. Then last August came and all hell broke loose. 6 hour extreme vertigo attacks that happened to me @3-6 times a month. I lost 80 pounds in 4 months. :(

    So I've been fighting hard against this disease for almost a year, but realistically, I've had it for at least 3.5 years, and probably much longer. It just wasn't all that active until this last year.

    Vicki is the one you want to ask about meds for MAV. She is the most knowledgeable person on the forum when it comes to MAV.
     
  11. Vicki

    Vicki Guest

    thanks vitolony but japyr knows the same if not more than me and this post Lisa http://menieres.org/talk/index.php?topic=32.0
    from our database which I did not write, it was brought over to these new forums from the old to the new database by me, has all the info you need. Food triggers and meds. Also there is a flow chart I've posted previously for Dr Hains way of treating MAV.
    http://menieres.org/talk/index.php?topic=1045.msg31060#msg31060
    click to enlarge the flow chart image on the psot I just linked you too.
     
  12. James

    James ''Everywhere I go there I am'' GS

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    Here is the link to the entire MAV thread in the old database.

    http://www.menieres.org/forum/index.php/topic,29072.0.html
     
  13. Lisa

    Lisa Member

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    Mar 21, 2015
    Vitolony I am so happy you ate finally
    Feeling better !!! Thank you Vicky I will check
    Out the link
     
  14. nicmger

    nicmger Member

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    May 12, 2014
    Lisa I personally have never heard anything about what your doctor said about most Menieres going away after 2 yrs. I suppose if the attacks were frequent, long and severe it could be possible that the damage could destroy the nerve so that you would no longer go dizzy..
     
  15. linda

    linda Member

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    Jul 8, 2015
    MT
    I"hear" your desperation, I am a newbie to this site too, hope everything keeps IMPROVING! for you, hang in there!
     
  16. vitolony

    vitolony Member

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    Apr 22, 2015
    Thanks Lisa. So am I! :D
     

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