Meniett Device

Yes, I have had the device for 10 years. I used it for about seven of the ten. I had a 3 year complete remission after year one and stopped using it. I don't know whether the ear grommets or the meniett actually helped more. I do think I felt better when I was using the device. I think it quieted my severe vertigo some what. Until it didn't. The last 2 years of this disease it didn't matter at all that I used the meniett. The vertigo came on very strong and happened daily for months. I had to try something else, antivirals. I would have never known about them if it weren't for this board. They have helped me more than anything. I have my life back. I would not discourage you from using the meniett but if it doesn't really help, keep looking.

Best of luck!

 

If you can get an AV I would suggest starting with that. So you know for sure if it helps you or not. Not many people I heard of got relief with the meniette device but happy to hear you did Gardengal and sorry it didn't work out in the end. But thrilled antivirals are doing the trick for you

 

Good luck getting the AV, keep us posted.

 

I use the Minette - I started using it in April and along with a low sodium diet and 3 Lipoflavanoids a day, 1000 mg's of B-12 ( and valiums when needed) and the occasional decadron shot. I haven't had a vertigo attack since April 6th.... They say to use it 3 times a day but I use it 4 - 5 ( I called the company and also my ENT and they said you can use as many times as you feel needed) .... SO I use it before I go to work around 8 -- then around 11:30 - noon -- then around 3:30 and then again about a half hour before bed......

I am able to do the things I love again - I had a custom ear plug made by my ENT so I could go to concerts....went to an NHRA National race ( used the earplug and headmuff ear protection - with a hereo in my left ear) -- felt fine each time -- went to a concert Weds night - danced my butt off -- felt fine the next day just a little tired -the ringing in my right ear was no more or less than it always is -- going to another one on Sat night....also was at my parent's lake house last weekend and went in my brother's boat - wasn't sure how that was going to go -- but - felt fine - no dizziness at all..... Am able to ride on the back of my bf's bike (even though I have a full faced helmet I use my ear plug because of the wind - same with the boat) .... I don't get as fatigued nearly as bad as I used to where I could barely make it thru the day or when I was constantly nauseous..... I do still try to take a 2 hour nap on a saturday or sunday if I can... but it doesn't always happen.

So for ME personally- it has been a Godsend. So far. Getting the tube in your ear is nothing - If you have had a decadron shot it is way easier than that....

 

I'm glad you have been vertigo free since April that's wonderful But how do you know which is helping keep the vertigo away..the decadron shot or the meniette?

 

Ya know Vicki - I am really not 100% sure - what I do know is the first time I had a decadron shot it only lasted 3 weeks and then I had a pretty bad attack -- down and out for two days -- so I got another one -- that also lasted 3 weeks ..... then another attack.... since I started using the device and I had my last shot- its been 3 months - the longest I have gone in a very long time without an attack or getting nauseous or even lightheaded.... So I guess we will see... I am going to NOT go for another shot and just keep using the device and see how it goes.... always hopeful. My Dr is absolutely not opposed to trying AV's for me if needed and for that I am glad.....

 

Nickyschick - AWESOME!!! You sound like you are really active and happy. I am going camping tonight (a HUGE deal for me) and I am so excited. I feel like a real person again. SO glad you are doing so well and that the combo is allowing you do have fun!

 

Fingers crossed for you to remain vertigo free and your doctor sounds very enlightened! good for him!

 

Gardengal - good for you!!! Its so crazy to start doing normal things again - feels like we are always waiting for the other shoe to drop.... lol --or for us to drop - literally.

 

I have like 20 different interventions in place to help me manage this disease, so it's hard to pinpoint how much a particular one is working. I have been using the Meniett for around 8 years now. I feel it has helped me achieve some semblance of control over Meniere's.

Margie