beginning of the end

you may want to look into a systemic fungal infection and try nyastatin or monolaurin which is supposed to get rid of fungal infections as well as viral and bacterial infections.

 

or you might have MAV

 

The issue is blood flow to a place in the body locked inside a bone. A virus, or indeed any kind of infection is going to cause inflammation. When something like the inner ear becomes inflamed, that's going to restrict blood flow even more. Bone doesn't give, so the pressure increases. That slows delivery of the curative agent to the affected area. Can take weeks and indeed months before results are seen.

That's one reason why things that work like JOH have a number of components intended to improve blood flow.

It's also why chiropractic care can also be effective at treating or at least helping to mitigate the affects of this disease. When C1 and C2 are misaligned, they can impinge the arteries feeding the inner ear.

 

vitolony, that analysis makes sense. I haven't tried chiropractic, but I did have my massage therapist wail on my neck, and it didn't seem to help.

Vicki, I did read the info thread about MAV. Your point is well taken that it's far more common/statistically likely than MM and often misdiagnosed. The description didn't seem to match my experience though, I have very little vertigo (I knock on wood every time I say that), and my symptoms are constant not episodic. They don't fluctuate or seem to be tied to any triggers.

I don't suppose there's a way to be tested for a systemic fungal infection?

 

You can be tested against candida antibodies, LessA2.

 

I don't want to push the idea on you but what you just posted does match MAV:

"A more common type of MAV and difficult to diagnose is when there are less distinct episodes of vertigo or there is no headache at all. Approximately 50% of vertigo attacks related to migraine occur in headache-free periods. Furthermore, migraine dizziness is often felt as chronic dysequilibrium (the feeling you have walking down the street after too many glasses of wine), lightheadedness, a swimming drunk feeling, floating, or a feeling of being disconnected from the world (also called derealisation

chronic means ongoing, long lasting.

 

I should have been clearer when I said "my symptoms are constant not episodic" - I was referring to hearing loss and tinnitus, not vertigo. Does that still sound like MAV to you? That particular excerpt only deals with vertigo.

 

I think the antiviral so would help IF they work for you.

Constant vertigo is not joke, we all know that. I'm not certain what medication, if any, would be prescribed for MAV, but I would treat it as Menieres to be sure.

Disclosure: this is just my opinion and only having read the last page I may not have all the facts.

In either case I wish you well and hope you get to the root of your diagnosis or relief soon.
For me, the antiviral took 2-3 months before I saw positive results. Seemed like one day I said wow I feel good.

Good luck

 

Since you feel disequilibrium and do not get many vertigo attacks and antivirals didn't help at all then I would give MAV treatment a try and start with the food triggers.

 

Well...I might have spoken too soon. My hearing and tinnitus are actually a lot better! Woohoo! I guess it happened gradually and I didn't notice it for a while - was waiting for something dramatic like a flipping a switch. Maybe it's the weather or something - it was better last summer too and then suddenly got bad again in the fall. But I'm going to enjoy it while it lasts anyway, and keep taking the OPC. And it's always reassuring to know that the ear damage isn't irreparable so far. Fingers crossed, even tho that makes it hard to type!

 

So does that mean you are going to keep your OPC bottle? Bummer. ;-).....

Good for you!

 

Letter to Santa: When something is working, NEVER let yourself run out!

Anyway, now that you are out, it will be interesting to see if you experience any changes, either to your Meniere's symptoms or legs/circulation issue.

Please keep us posted. We all love a Guinea Pig

 

That goes for the OPC *and* the vodka, right?

 

Santa--after I just replied to your post and posted again--I saw this one I'd read before but forgot you mentioning the Meclizine you take too. My doctor told me 'not to take it' when I had vertigo--instead insisted on Valium (said it would help with vestibular issues and Meclizine, though it might work, that in the long run, could actually 'mess up' the vestibular system). That is why I have been reluctant to take it--and until the last few days had not. See my post in response to yours and others on my 'dizzy days' lately. I explained about taking it again last night. I do hope you are 'hanging in there'. I too love to sing in our church choir--occasionally sing solos--I've done that for 55 years now--am in my 70's, and had to drop out of choir due to this. Plan on going back in the fall--giving it another try. I still sing on occasion, but the choir effect gets to me--the sound of my own voice makes my head vibrate and can make things worse for me. Have you found that to be the case with your involvement with music--instruments, singing, etc.?

 

Do you have a similar problem in restaurants Santa? When I go out to eat, the ambient noise in a typical restaurant is very uncomfortable for me.