Hi all, I hope I am still welcome here even tho I was recently told I don't have MM. I still believe that I have it. But the good news is that I most likely will not lose the hearing in my right ear. I related to all the symptoms of MM and relate more to the people here. I went to a tinnitus site but they don't seem to have multiple symptoms or the layers of grief that we have here. I hope you still all accept me even after latest diagnosis. I am taking vestibular physical therapy which is helping. I am starting to play tennis again and biking so that feels good. I hope everyone is well. I do still feel so much a part of this fellowship here. You are still my family. XO Sally
Hi Sally, as for me I fine with you being here. If anything said here can help you that's wonderful. What is your diagnosis?
I was told 25 years ago that I had MM. Then just recently I was told that I most likely have Labyrinthitis. He said I don't have any MM symptoms but I have all of them! Vertigo, deafness, tinnitus, ear fullness, and brain fog. The only thing I don't have is violent dizzy spells. Mine are small and not frequent. So I was a little baffled. But I have been on this site for many years and I relate to most things said here. I don't relate to just tinnitus. At this point, I am not going to battle trying to find out what I have, if it gets worse, I'll deal with it. If it stays the same, I still have to deal with it. This is still my family.XO
No, but I'm pretty sure I have MM. Doctors don't know everything. I think there are different levels. It doesn't really matter at this point. My hearing is gone in one ear and it will never come back. My tinnitus is 24/7 for 25 years, and I have low grade vertigo. I still feel crappy, there isn't much that can be done. I know how I feel. I just get better support and wisdom here. XOXOX
Interesting, the OTO I went to agreed with the ENT that sent me, that I have Menieres, even though at one time I had only been dizzy 4 times in 2 years, Pretty bad vertigo each time, he said he thinks the MM affected my hearing more than the MM affected the vertigo, I have had more vertigo since then, be glad if you don't have it! But my vertigo is gradually getting better since it has been 2 and 1/2 weeks since I started the acyclovir, and about 4 or 5 days since I started Lysine, going to start the next supplement of JOH regime tomorrow, the tinnitus is still there, hearing is stillnot the best, but yesterday I didn't get the light dizziness until late afternoon, and today I haven't had any light dizziness at all, still hoping everything will help the tinnitus, hearing loss, ear fullness and brain fog too as I continue with the regime and anti viral. Good luck to you! '
Are you still on acyclovir? I'm new to site. Have all your symptoms along with eyes not tracking right. Does acyclovir help?
I am taking acyclovir and starting JOH regime, if everything works I will take it forever! So far I am finally starting to feel better, no dizziness now for 3 days, having tinnitus again, but also there is weather changes going on and a lot of stress at work. It is three weeks today since I started the acyclovir, I am going to stay on the high dose a little longer because of all the stress at work now, also I am getting tested for allergies in one week and was told to not take any ativan or meclazine for a week before I am tested. This is a wonder site with people who understand! And very knowledgeable!