I am still having my thyroid levels adjusted As well hoping for the best form6 weeks Was feeling great and then it all started again And found out thyroid was still too high But while thyroid leveled out forma while Was great. I think there is def a connnection.keep us posted And good luck.
I read that having Meniere's like symptoms from another disorder or allergies, autoimmune is called secondary EH, Meniere's is called primary EH. http://www.menieres.org.uk/information-and-support/symptoms-and-conditions/endolymphatic-hydrops Endolymphatic hydrops Endolymphatic hydrops is a disorder of the vestibular system in the inner ear. It is thought to stem from abnormal fluctuations in the fluid called endolymph which fills the hearing and balance structures of the inner ear. This condition results in a distended endolymphatic space and is referred to as endolymphatic hydrops. Endolymphatic hydrops is referred to as primary or secondary. Primary (idiopathic) endolymphatic hydrops Primary idiopathic endolymphatic hydrops, known as Ménière’s disease, occurs for no known reason. Secondary endolymphatic hydrops Secondary endolymphatic hydrops occurs in response to an event, such as head trauma, allergy or an underlying condition, such as an autoimmune disorder. Symptoms The symptoms of endolymphatic hydrops include tinnitus, dizziness, fluctuating hearing loss, imbalance and a feeling of fullness/pressure in the ear. Who is affected by endolymphatic hydrops? Ménière’s disease and endolymphatic hydrops are often used synonymously. Ménière’s disease is idiopathic, meaning that if the cause of vertigo is known the diagnosis cannot be Ménière’s disease. People diagnosed with Ménière’s disease are thought to have endolymphatic hydrops; however not all people diagnosed with endolymphatic hydrops have Ménière’s disease.
I read that too Vicky and I think that's what I have (secondary ) but drs only say menieres Since they can't be sure of a cause. I get very confused trying to figure it All out and do my own research. I have Learned more through this forum then Through any doctors.
I can so relate. At Kaiser, you have all these MD's…ENt, neurologist, audiologist, PCP and they only ever look at one aspect of this and seem to always be saying I should talk to this other doc. It does get quite frustrating. My current ENT just wrote me that my recent bout of nausea can't be from Meniere's because it isn't an ear issue. She wants me to go to my neurologist and PCP who will send me back there. It all get so depressing..
I just got my thyroid numbers back and I am in normal range. We are hoping that this will cause my ear symptoms to subside so I am going to give it a couple months. ENT also put me on diamox, a different diuretic to see if that helps. If those don't help he mentioned 1.) electrical stimulation, 2.) putting a tube in my ear and injecting a steroid. I don't think I am going to take the #2 route. I may have him prescribe the antivirals instead. I am desperate for an answer. I see that many of you have thyroid issues too and am wondering if anyone has had this go away once your thyroid is back to normal? Thanks!
I had MM decades before I had thyroid issues.. My thyroid values have been normal for 10 years now since being on synthroid. It had no effect on my MM. Only until I started acyclovir 3 years ago did my MM symptoms stop.
Janicer my mm symptoms occurred the Same time thyroid was hyper, went away Dramatically for 6 weeks when thyroid Was norm but now thyroid is hypo and symptoms Returned. So I start over again. Hoping Like you it's the thyroid too. I can't wait to See how you feels when it's adjusted watching for You updates.
Menieres is more of a syndrome than an actual disease. In some of the literature it's referred to a constellation or a syndrome. So far - Knock on wood - I seem to have secondary. My symptoms are constant. No attacks, no sudden onset. I haven't had any vertigo attacks at this point but I have low frequency hearing loss, tinnitus, and aural fullness that varies over time. It never goes away. It hasn't lead to a vertigo attack but it changes and gets better/worse over time. Some days I have dizziness and motion isues that is slight to obvious to none. Some days it's there ... some days it's not. Hydrops is often tied to Menieres. However, some of the more recent research has shown that it may not be the actual cause. Check out http://www.dizziness-and-balance.com/disorders/menieres/menieres.html#causes for some recent theories. I can't find it off hand but another site I came across asked that if hydrops was the cause, how may times could the membrane in question rupture before it never healed? I'll try to find the article/site and post it as a reply if I can find it.