DR said nothing more he can do.

Cheryl, Please don't resort to suicide, there are many options you might not have tried.
Have you tried antivirals? JOH? MAV?
Tried an antifungal if none of the non invasive treatments work? Looked into EDB surgery?

When you say falling down do you mean drop attacks?

 

....Allergy testing? Gluten intolerance? TMJ?

 

Antivirals have a 90% success rate, and a laby is 98%. You've got a lot of hope.

 

Hi Cheryl - Please try to see a different ENT - No one should be telling you there is nothing more that can be done!!! Do you have the ability to see another ENT? Have you gotten second, third or fourth opinions? I am going to try antivirals - perhaps this will help you too. Don't give up!!! Susan

 

Cheryl, I agree with the others. Get another doctor!

Many people here have experienced good results with anti-virals.
VNS or Laby Surgery - honestly I would think that would be a very good and viable option, your ear is already "shot", the surgery would eliminate all vertigo caused from that ear. I have said, and meant, many times. If this disease was constant and impacting my life significantly I would demand the full surgery VNS or Laby.

Don't let the doctor or your mind get you in a thought process that nothing can be done. Not true. There are options for you and in my mind really boils down to what you believe is best. Anti-virals work for many, not all - would take some time to know for sure. VNS or Laby surgery you would have the recovery time but would know that the bad ear can never cause you vertigo again.

Good luck - and i would like to add that I am thankful that you are still a part of this world.

 

http://www.nucca.org

Consider using this website to look up a NUCCA chiro in your area and going in for a consultation. It's helped so many with inner ear issues. If you are on Facebook please consider joining the Menieres, Tinitus, vertigo, TMJ: Menieres No More. Private group. TMJD so doesn't have to have jaw pain. TMJD can cause inflammation of the tissues around the inner ear. A panoramic x Ray of the jaw may help diagnosing TMJD. There are so many avenues for you still to investigate.

 

Some people are able to get their regular general practioner dt to prescribe the anti virals. Doesn't matter WHO writes the prescription, perhaps your regular MD will give it a try.

 

cheryl, i am such a newbie on this site but i would definitely try another dr. I go to a nurse practitioner and she has gone along w every request started me on antiviral as soon as i showed her what JOH told me to take her, she also prescribed me acupuncture which helps and my therapist is also started me on the upper cervical spine treatment, he knew all about it ...there were no nucca chiros in my rural area. Call around to see if you can find a therapist who does acupuncture, i think this is quite common anymore, and my insurance pays for all of it. The only advice i ever got from an ent was no salt, i pick my nurse pract any day

 

In my time dealing with this, a good portion of the time I feel like the ones that specialize in Meniere's are the ones that are least open to trying. The specialist will tell you everything that won't work, will tell you that they can't do anything for you - but never actually try anything! Those that are more general will review Gacek's studies, realize that there really is no "harm" to try antivirals and at least be more open. That has been my experience anyway.

 

Suicide is the final (and selfish, according to my better half) option when all else has failed. Make sure that you have exhausted all possibilities before saying your goodbyes. If you haven’t tried AVs then your planned exit was premature, to say the least!

 

My ENT and his entire group are useless when it comes to meneieres

My GP wrote a prescription for Valacyclovir. 3,000 mg per day for a year. After three months no more vertigo, aural fullnes or brain fog. Been almost 10 months now with no vertigo, aural fullnes, or brain fog.

Please try to find a GP that will work with you.

I carried copies of all my research to my GP and he thanked me for helping him help others with Meneieres

 

Keep trying. I struggled for 6 months with 2-3 episodes per week until I found what works for me. In my case it's the water pill Dyazyde combined with Betahistine. I hope you can find something to work for you.

 

The symptoms of Meniers can be discouraging, especially when you have more bad days than good days. Have you tried a diuretic? The doctor put me on it about four months ago. I am taking a 12.5 mg pill twice a day, plus I am counting my sodium and trying to stay under 1500 mg a day. Now I have more good days than bad days. It has been tough learning to eat less salt, but I've realized it is worth the effort. I feel so much better. I'm not cured, but the bad days are not as close together as they once were. (My symptoms have been aural fullness, tinnitus, loss of hearing/distorted hearing in my left ear, disequilibrium, and after a few days or a couple of weeks of these, I will have a big attack of vertigo with the room spinning.)

 

Cheryl get in touch with bulldog through PM .
He has a friend that had the vns in both ears and is doing really well. I am sure he would talk to you about what you are going through. I do know that after his double vns his eyes , feet , body took over and has allowed him to have a near normal life. It did take about I believe he said 12 to 24 months before he adjusted. I was told his life is not perfect but he can function and he will never have vertigo again. I imagine Bulldog will be along soon and post some info for you . Never give up and let this monster win. Good Luck Larry