http://www.ncbi.nlm.nih.gov/pubmed/26742910 There is a full text but one has to pay for it. Eur Arch Otorhinolaryngol. 2016 Jan 8. [Epub ahead of print] Endolymphatic duct blockage: quality of life assessment of a novel surgical technique for Ménière disease. Gabra N1, Asmar MH1, Berbiche D2, Saliba I3. Author information 1Division of Otolaryngology, Head and Neck Surgery, Montreal University Hospital Center (CHUM), University of Montreal, 1560, rue Sherbrooke East, Montreal, QC, H2L 4M1, Canada. 2Department of Statistics, University of Montreal, Montreal, QC, Canada. 3Division of Otolaryngology, Head and Neck Surgery, Montreal University Hospital Center (CHUM), University of Montreal, 1560, rue Sherbrooke East, Montreal, QC, H2L 4M1, Canada. [email protected]. Abstract The aim of this study is to evaluate the quality of life (QOL) of patients treated by endolymphatic duct blockage (EDB) for Ménière's disease with a dedicated questionnaire. This is a retrospective cross-sectional study which included 54 patients diagnosed with severe, refractory Ménière's disease according to the AAO-HNS criteria and treated with EDB between 2010 and 2013. Answers to the first 38 questions have assigned scores from 0 to 4 (0 corresponding to the poorest QOL). A preoperative score called S1 was calculated as follows: S1 = sum of preoperative question scores/maximum possible preoperative score ×100. The same formula was used to calculate the postoperative score S2. The change in QOL score, S3, was then calculated (S3 = S2-S1). All answers were analyzed anonymously. Statistical analysis was done using Student t test and Chi square test. A response rate of 89 % was obtained with the Ménière's disease outcome questionnaire. The preoperative (S1) score was 21.4 (±12.6) and the postoperative score (S2) was 64.6 (±21.6) with a change in QOL (S3) of 43.3 (p < 0.001). Postoperatively, 89.9 % reported no Ménière's attacks (p < 0.001). Seventy-nine percent (15/19) of the questions showed a significant improvement after surgery. These results show that EDB is associated with a significant improvement of the QOL of patients suffering from severe Ménière's disease.
Thanks Vicki, I'm always encouraged by your posts! Just wish the US would get more involved in these studies.
Well, that does sound like a large percentage of those of us who have had the shunt surgery, are doing well. I am in that category, in that I have had 'no vertigo' since my surgery in 2012. But, have had moments I thought it was 'about to happen' and as those of you know who read my posts--I have daily lightheadedness, head pressure and mild balance problems that really are quality of life altering. Not having vertigo is a 'big thing' and I'm so thankful for that. Hoping that part continues to be good!
I posted a few days ago one of the complications of the shunt is dizziness, maybe that's what you are experiencing.
I remember reading about duct surgery A while ago on this forum. I wonder if this is More recent and getting more attention for availability. I certainly hope so
Well, I can certainly attest to that! Although I had it before the shunt surgery too. Lately it is 'over the top'!
I too read this and have contacted (phone, email) the clinic for a consult. The Dr. is in very high demand, apparently, so hoping I can get an appointment. I've progressed to the point of daily dizzy/vertigo spells, so at this point I'm even wondering how I'd make it from California to Montreal for the procedure. Vertigo on a plane doesn't sound like a lot of fun (as if vertigo is ever fun!). I hope anyone else who does this will post updates. I'd love to hear if anyone has done it or had any success (or failure).
so sorry to hear this gfsound hopefully the EDB will do the trick for you, I don't see why not...fingers crossed!
I found this account on a forum by someone who had the EDB done in the Netherlands. His doctor has seen Dr Saliba and did a few EDB surgeries. This person had the EDB is has great success with it. But since it was not Dr Saliba who did the surgery after it one of the clips moved so he had it redone and fix the clips and that did the trick. If anyone is interested in reading this account of his experience with EDB This is the transalted page. There are 4 pages of posts with the person named sjaak.wolfert givng updates https://translate.google.com/translate?sl=auto&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=http%3A%2F%2Fforum.nvvs.nl%2Fforum%2Fmeniere%2Fviewtopic.php%3Fp%3D108440%26sid%3D56009ebfd24949a87355c5195b95881d&edit-text=&act=url