Hi, Wondering if anyone has tried craniosacral therapy and if they had any success. I have been off work for close to month now due to recent far up of violent vertigo attacks. I am on Valtrex and the JOH regime but the vertigo will not suppress. I need to find a solution.
I tried early on - didn't make a difference for me. Everyone is different. I do believe Nucca helped me though. That and anti-virals.
How much Valtrex do you take a day? I read some of your posts and if you are not taking 3000mg a day, you are not giving the antiviral a fair chance to see if it works or not. 1000 mg is way to little.
I have been taking 3000mg for 3 weeks. I was beginning to feel better but had a very bad attack last night.
3 weeks is just the start and many get worse before better because the antiviral and virus are in a battle so to speak. and many have setbacks too in the beginning. The fact you were feeling better is a good sign. My suggestion would be to stick to the 3000 mg for at least a month or 2 and then re evaluate. Just have your kidneys checked with a blood test to make sure things are okay. Also make sure your lysine intake is higher than arginine in your diet.
I was on Valtrex for a year at 1000mg a day and I was feeling much better then it all came back a month ago. I hope my amping up the Valtrex to 3000mg will get my vertigo under control. I am going to try cranioscaral therapy as well on Thursday.
I don't know for sure, but I don't think being on 1000 mg is enough Valtrex to suppress a virus in the inner ear, but the fact you feel worse after increasing the Valtrex could very well mean the Valtrex is now having an effect on the virus.
I am on the 1000mg/day for ongoing for Valtrex. But also have (at times) needed to bump it back up when I started to feel off. My sinus issues and weather changes definitely impact me.
nicmger but isn't that your maintenance dose? I thought you started at 3000mg? I got the impression tdoak did not start on 3000mg but on 1000 mg, correct me if I am wrong please.
Yes, I was only on 1000mg for 10 months first. Now on 3000mg. My vertigo attack this morning was slower, meaning the spinning was not as fast. I am able to stop it within a minute by staring at an object close to my face. The spinning was almost like tumbling forward.
wow that's great you were able to stop it and so quickly. I hope you give the proper dose a chance to decide whether antivirals help you or not. Keep us posted.
Had my cranioscaral therapy thus morning. I was impressed that the therapist was knowledgable about Menieres. It was very relaxing. He focused primarily on my ears. I felt crapppy before and felt the same immediately after. About 2 hours later I was feeling much better. Then I went late this afternoon to my regular appt. where I have neuro and laser therapy along with balance exercises. They noticed my balance was off, leaning toward my bad ear so they did the caloric stimulation in my affected ear. It did not cause any problems. They tested my balance again and it was better. Then 15 min later I had a vertigo attack. The Dr. Was able to observe what was happening and my eyes were nystagmus. My eyes did not do this during the actual stimulation. The Dr. believes the acoustic nerve is being overly stimulated causing the vertigo. This was the first time I had an attack with a professional present. Well I could not continue my therapy. He sent me home with device to send electrical signals into my ear. He wants me to use it twice a day. I see what this brings.
Hi Travis, Sorry my previous email got sent before I started. Sorry to hear the attacks have returned. I have taken several Craniosacral therapy sessions with a training physiotherapist. It helped the tinnitus for a short time, but did not stop my vertigo attacks. I hope you can get the right dosage. Maybe accupuncture?
Re: Cranioscaral Therapy? Moved to steroid injections Hi, At the begging of last week I was mediating and I had the start of a 20 HR attack. I did not have violent vertigo this time but constant dizziness that was very strong and heavy brain fog. I could not do anything. I was also not able to sleep so I was up all night. I had ant appt. at the Dizziness clinic in Toronto (90 min away) and really did not think I would survive the trip. Nluckily I had arranged before hand for a colleague to drive me. The interesting thing is that as this serious attack was happening my tinnitus was getting quieter, first time in a long time. I would note that I had been on 3000mg of Valtrex for 3 weeks before and had to go down to 1000mg as my prescription my family doctor gave me ran out. At the clinic I had to be helped in. I decided to try a steroid injection......it was not a pleasant experience in my condition. It took about 10 min and then had to lay on my side for 20 min. I also talked the ENT into giving me 3000mg of Valtrex, but she would only do it for 3 weeks. I was told if the steroid was going to help it would take at least 24 hrs and of course it is only temporary. The ENT explained the concept with the injection is to help get over a bad spell. I got my new Valtrex script filled within 2 hrs and took the pills in the drug store. Later in the evening the dizziness began to subside and by this point the tinnitus was gone. I was slew and slowly over the next 24 hrs the dizziness went away. I have gone back forv2 more injections, the last one going today. I can tell you the second was very painful, but again it is short lived. As the ENT said people experience a lot of anxiety having a long needle injected I their ear drum. This is best I gave felt months. Of course do not know if it is the injection or the stronger dose of Valtrex. I saw m family doctor yesterday for a regular check up to fill out paperwork as I was off work for 5 weeks. I told how I believe the Valtrex has helped. I asked her to allow me to take higher dose (3000mg) when I was having a bad spell. She strongly refused, only agreeing to give me 1000mg a day, albeit I can have this ongoing. So this posting is both an update and a question. Has anyone else been able to Oder Valtrex online without a prescription? I would like to a bottle on hand to up my dose if I begin feeling off again. Thanks
Sorry I missed this! Yes, the 1000mg is my ongoing dose. I was on the 3x1000mg for 2 months (a month longer) and then tapered down to 2x then 1x.
Tdoak - did your dr bother to "explain" why she wouldn't let you take an extra pill now and then if needed? Not saying to do this....because it is lying.......you could always tell your pharmacist that you "lost" the prescription bottle and ask for special approval for a refill. Sometimes insurance will pay, sometimes you have to pay cash. But it would give you 30 pills as a buffer "just in case". For me when I am feeling off, I only have to take 1 more pill for a day or two. I don't have to jump back up to 3 for a long period of time. So 30 pills would give a nice backup plan. I will say that I honestly have lost a med bottle before. I just had something filled (believe it was a steriod for sudden hearing loss). Went thru airport security, went to get my belongings and dropped my purse all over. Thought I had everything until I got to my destination and unpacked and realized that my pills were missing. It was a fiasco being out of town trying to get a new prescription but I did manage it. So far haven't had to "lose" my a/v prescription. LOL