I haven't had any big episodes just little spins. Still exhausted. You all know me. I'm not one to lay around all day. I'm so disgusted with waiting for a major improvement. This is my last shot at anything helping me.
Definately not your last shot. You still have other options. You have to win not this hideous disease.
I stopped keeping the journal. I can say I haven't had a severe episode in days. Yesterday I drove 85 miles. Today I'm not experiencing any symptoms beyond being off balance sometimes but not all the time. I did notice when I went out to the grocery store that the heat is a trigger. Anybody else experience this? Anyway I'm hoping this isn't temporary and I'm on the upswing.
That's great news! Yes, heat always bothered me as well. But now it doesn't much anymore. I can ride my bike for an hour in 90 degree heat, sweat like a fiend, and still be ok.
Scott tom, how long did it take for your ears to get better after starting valacyclovir? My vertigo is pretty well gone still have alittle dizziness but the ears are still driving me crazy.
I was fortunate to have the vertigo stop within a few weeks, but didn't really pay attention to the other stuff until I noticed one day that the dizziness and other symptoms had disappeared. I think it was about a year before I realized that I was pretty much back to normal. Try going back up in dose for a few weeks to suppress the other symptoms you're having.
How many good days did I have? I stopped keeping the journal right away, sighs. I told a friend that I don't even know how I'm typing this except that I'm sitting and I don't to move my head. I don't want to lay down because I'm so afraid of the rotation whirling rotational vertical. I'm panicking too. I'm trying to control my breathing and typing this is taking some of my focus away from this attack. If I don't get to where I'm spinning I'll know if I'm having attacks they're not long episodes. Stress triggered. Family drama, a betrayal by the one I love most. Family secrets and confiding in a family member should be sacred. It wasn't this time and I'm hurt but right now I'm way more pissed.'then my son took it upon himself to groom my furry, long eared Maltese. He butcher this dogs court. I'd be ashamed to even walk him. I did try right after to clean him up a bit but I was so pissed I dint have steady hands. Deep breathe, release. The spinning seems to be slowing down and the panic breathing is almost under control but I think this diversion is helping. I took a KLonipin and I'm waiting for that to kick in for the panic. I'm waiting until I can crawl to my alternative treatment. The sooner the better. When I'm done here I think. My husband is saying that I ramble when I'm in and coming out of an attack. I told him to $$$$ off. I really need to be alone from this drama and talking to you seemed a good idea. Sorry for a rant.
I think it's passing. I don't even want to read what I wrote. More people should share these experiences.
Bumblebea i am so sorry for what you are goibg thru and the stress is adding to your symptoms. As bad as you are doing i wonder if you could up the dosagejust a little, is that kosher?
No, I'm at the highest dosage now. But thank you for your concern. Took a spin today but not for long.
Thank-you and yes it does. I did something crazy after my spin. The beach was calling me, lol. Had my friend drive and we sat for an hour then I had to hit the water. I got past the waves and paddled. It was an awesome experience. I needed that.
12:30 and here comes an attack. I don't know if I'll be able to time it as I took 2 KLonipin and I'm sitting up because I think if I lay down right now it'll be worse. I have my black dishcloth for my eyes and a bag for breathing through the panic attack. I always get both now again.
BumbleBea here is hoping you are doing a little better by now and attack has subsided. I am so glad you went in the water, yes, you did need that. Prayers coming your way.