I have been vertigo free for 4 and 1/2 months since getting tubes in my ears and using the Meniett Device. It is not a cure, but it is keeping the symptoms of Meniere's Disease at bay so I can enjoy life and (work too). I stopped the acyclovir about a month ago and am now using Monoloaurin, am currently taking 1 and 1/4 tsp three times a day, am still following JOH, I do not always get the lysine in, that is why I am taking Monolaurin which can be taken with meals. I have made it through some spring storms without vertigo, I hope it continues throughout the summer. I have introduced most foods back into my diet, I still try to stay away from foods high in arginine. I pray this continues, the device is expensive but it has given me my life back. I did cut down to part time at work, but I am getting close to retirement, plus the days that I do work (two days a week) are 12 hour shifts on my feet pretty much the whole 12 hours, I still get exhausted from work. Has anyone else had luck with the Meniett Device, I would love to hear from you.
I have used the Meniett for about 6 years. It has controlled the Vertigo. I do get night sweats when the weather changes. This is my problem just this week. I have a tube in my right ear and my hearing is 70% loss. I can't hear the pulsing noise. Not sure if it is the tube or a build up of wax. I was at the Dr. 6 weeks ago and everything looked good. Anyone else have this happen? Long time member - Sharyn
scott tom, I stopped the acyclovir because I am taking Lauricidin Monolaurin and JOH, If the vertigo comes back, I will ask for Valtrex, I needed help fast with my vertigo in order to keep working and the Menniet device worked! I had been on the acyclovir for 4 months, I did continue with it for awhile, I have made it through some pretty severe weather changes this summer, storms which always set off my vertigo last summer, I really think it is the Menniet device that has helped me the most. I hope and pray it continues to work for me! But like I said, if the vertigo comes back, I plan on asking for the Valtrex, but the name brand sounds VERY expensive! So I hope I don't need it.
Hi QueenB! I am so glad to see some one else has good luck with the Meniett device! I have tubes in both of my ears since I have bilateral Meniere's. Sometimes I can only faintly hear the pulsing in my right ear, I don't know why, I do get my ears checked on July 5th, which I am glad about, to have them checked for wax and to make sure the tubes are still in place. The hearing improved so much in my right ear after starting the Meniett device, but the hearing in the left ear has not improved, except once in awhile the fluctuating hearing allows me to hear better!
I also have the procedure done in the office where he shifts the crystals. Do you know what the name of the procedrue is? My doc is leaving the area and I now have to find another otolarynagolgist.
While the device may be helping with symptoms, it is not suppressing the virus, or preventing further hearing loss and damage to the ear. Valacyclovir does both.
Do you have this done? My doc is leaving the area. I have a problem with hearing in the affected ear. It could be wax or the tube is out. The Assistant doesn't want me to go to a ENT, as they don't have the right equipment. I live in the Bay Area, anyone else here? Dr. Stewart Ort is leaving the CA Hearing Institute.
How many others here have tried the Meniett Device? I know they're expensive but what is the ball part range? Has it helped everyone here that has used it?
It was about $3,500. I had to pay up front. Since I have Medicare it was eventually paid back to me. I would recommended it. This is the first time that my hearing has gotten worse. In the earlier years several meds were tried but didn't work. The Meniett was a final resort and worked I wonder if there is anything now for the hearing. I also use Adivan for vertigo and dizziness.
I am making payments of $282.00 a month for 13 months. The good thing about the Meniett device is that if it didn't show a big improvement in the first 6 weeks, it could be returned with all money back. My hearing improved with the Meniett device, not 100%, I still have to wear hearing aides, but I know when I hear Better! and I love it. The audiogram showed hearing improvement too! But the most important thing was that the Vertigo symptoms left! It does not kill the virus, that is why I still follow JOH and am taking the Lauricidin Monolaurin. JOH regime has helped with my brain fog! The OTO who prescribed it for me lives 400 miles away, he had the ENT put the tubes in my ears and the ENT follows up, the ENT was not familiar with the device, but now he is! Having both of my ears affected is not easy, but thanks to the Meniett, I have my life back!
A good way to test your Meniett to see if it is working.... Try it in your good ear, if you have one. If you can hear it pulsating then the treatment is working. I called my Oto and have an apt today to see if there is wax build up or the tube is dislodged. Customer service, at Meniett, said I could be having a Meneries event. This would be new for me, so I am concerned as to what the problem is.
I'm surprised Medicare covered it. I know my insurance company doesn't because they consider it experimental.
I've been using the Meniett for around nine years. Eventually my insurance covered it, which was such a blessing! I use it regularly, three times a day. Each use is only about five minutes, so it's not a huge time commitment. I've had so many tubes in my ears that the hole never healed over when the last one fell out, four years ago. It appears the hole will be permanent. The only problem now is that I cannot get any water in my ears. I had a specially moulded earplug made for showering and heavy rainfall. The Meniett is just one intervention I have in place to help control Meniere's, but I've been doing very well so I'd be crazy to stop any of them!
I used the Meniette device for about 8 months.... the cord stopped working and it was on back order for FOUR months - so I was without the device for that long -- in that time I did not have an episode and all my lifestyle changes I had made in the past two years seemed to have helped - i only had 2 attacks in the last year so I don't use the device anymore. I am going to get the tube taken out of my ear on the 28th - tired of wearing ear plugs to shower and I really want to be able to ride my jetski and go swimming without worrying about it..... If I find that my episodes start up again I will go back and get the tube put in. I bought mine used from a woman who didn't have any luck with it - $700. She only used it for 3 months though so I am not sure that she gave it enough time.
Nickyschick, hope your episodes continue to stay at bay! Those stories are always encouraging to me! and to others too, I am sure!
I wasn't using the Meniett every day and began to feel very dizzy and hearing was worse. I went to see the doc on Thursday and the tube was dislodged. He was able to inset a new one and I am feeling better. I still feel a little off which I would expect. I will start using the Meniett tomorrow. I don't use ear plugs when I shower and I haven't been swimming since i have a bladder problem and I avoid the clorine. There is a Otoneurologist in Oakland, CA. I was worried that I would have a difficult time locating a doc as mine was leaving for the East Coast. I was told that an ENT can't do the tube, so I was worried. I hope to feel better after the weather settles down. Lots of wind lately. Thanks for listening...
Hi Everyone, Does the Meniett Device help with other symptoms? Such as Ear Fullness and Tinnitus? Thanks!
This is the second time the tube fell out. Fortunately, the hole did not close in. I now know that I have to go sooner when I start to hear changes. My balance is still not perfect. I start a new class at the hospital for balance. I have trouble looking up and down. This may be a challenge. The wind has settled down, but it will be hot next week. Neither of these conditions are great for Meniers. I hope to take a train trip next month. That should be ok, I hope.