Meniere's Disease: From A College Student's Eyes

Discussion in 'Your Living Room' started by Adam Rohrbough, Jul 17, 2016.

  1. Adam Rohrbough

    Adam Rohrbough New Member

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    Hey y'all! I can't believe I just now came across this website! Seems like a great community and tool for me to be able to use as I face this bump in the road! I would love if you guys checked out my meniere's disease story or 'testimony' if you will.

    Surely I can't be the only 19 year old college student to have meniere's disease, right??

    Anyhow, hope y'all enjoy!
    https://steemit.com/vertigo/@adamrohrbough/meniere-s-disease-from-a-college-student-s-eyes

    Just an update since I started the antiviral valacylovir, yes I know everyone says valtrex is better but I'll just give this a try haha, I have been vertigo free. So 5 days now! That's a big step considering for the past three months i was on a consistent schedule of having a vertigo attack every other day. Hoping this continues to get better! :)
     
  2. scott tom

    scott tom Active Member

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    May 14, 2015
    Hi Adam

    Welcome to the forum. Make sure you are taking the full dosage of valacyclovir for as long as it takes to get it under control. Also, check the brand of the generic. Some of us have had bad luck with certain brands. You can search the forums here to see which ones. If the one you're using works for you, then don't switch.

    http://www.mm3admin.co.za/documents/docmanager/6e64f7e1-715e-4fd6-8315-424683839664/00056616.pdf
     
  3. imback

    imback Member

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    Aug 8, 2014
    Welcome Adam. I hope you do continue to get better. I am glad you had a doctor that knew about the anti viral. You were lucky.
     
  4. Glynis K

    Glynis K New Member

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    May 1, 2016
    I could not imagine how difficult that must be.

    You are a trooper and an insirpation
     
  5. Welcome Adam. I look forward to seeing pics you post.


    Continue to fight!
     
  6. moodymom27

    moodymom27 Active Member

    Welcome aboard, Adam!
     
  7. BumbleBea

    BumbleBea Fallen Angel

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    May 13, 2014
    Hey Adam.
    You seem to have a real good attitude. That helps so much.
    I was on Acyclovir, went into remission for 2 years and it just stopped working. I never decreased my maintence dosage.
    Now I'm on Valcyclovir and it took 2 months to kick in again. Still some minor episodes but short and further apart in duration.


    Good Luck and welcome!
     
  8. scott tom

    scott tom Active Member

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    Bea, I'm glad to hear you're doing better again.
     
  9. BumbleBea

    BumbleBea Fallen Angel

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    Thanks Scott. Fingers crossed it continues. I wish everyone could find what works for them.
     
  10. Adam Rohrbough

    Adam Rohrbough New Member

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    Dallas, TX
    Thank you all for the good wishes! :)
     
  11. Adam Rohrbough

    Adam Rohrbough New Member

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    Jul 15, 2016
    Dallas, TX
    And just to let y'all know everything I am taking here it is:
    -Valacyclovir
    -Leucovorin Calcium
    -LDN (low dose naltrexone)
    - Mito Cell PQQ (basically just a multi-vitamin that supports my immune system)
     
  12. scott tom

    scott tom Active Member

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    Adam, what is your manufacturer and dosage for the Valacyclovir?
     
  13. BumbleBea

    BumbleBea Fallen Angel

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    Mine is Northstar manufacturer and I take 1000mg-3X a day. 2 months now.
     

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