Has anyone on here been misdiagnosed with Mienere's and it was MAV?

Discussion in 'Your Living Room' started by AEC, Dec 4, 2016.

  1. AEC

    AEC Member

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    Hi Everyone,
    Has anyone on this forum been misdiagnosed with Mienere's and it was really MAV? If so . What treatment did you have and did it help? Please anyone who even have both , what helped you.
    Thank you for your time.
     
  2. danni1979

    danni1979 Member

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    Hi i "apparently" dont have menieres but have mav,i have had 2 ents tell me this..i have symptoms incresbily similar to menieres(according to my ent there is a grey area where mav mimics menieres)i get the "classic" sudden increase of pressure one ear with hearing loss that ear and absokutley roaring tinnitus,other than tat my symptoms are day kn day out.Since my big bamg in march i havent had 1 day symltom fee which i think is where it differs from menieres.I get lots of head pressure,tingling in my face and head,nausea,sounds make me dizzy.I am currently on propranolol and pizotifen,but there are many medication out there for mav thankfully
     
  3. scott tom

    scott tom Active Member

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    It's a lot more common than you'd think due to the complexity of the diseases and the unwillingness of most doctors to spend the time. Mine initially diagnosed me with something completely unrelated after a five minute session.
     
  4. AEC

    AEC Member

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    Thank you for your reply.
     
  5. AEC

    AEC Member

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    Yes I am learning that now.
     
  6. AEC

    AEC Member

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    Are you getting relief from the mess your taking?
    Do scents or perfumes trigger vertigo for you ?
     
  7. danni1979

    danni1979 Member

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    I think theyre helping.No but i get a cracking headache lol.There are many people on the vest migraine fb pages im on who have been misdiagnosed menieres but had mav x
     
  8. scott tom

    scott tom Active Member

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    What's even more terrible is when a doctor convinces them to get a laby and promises that will "fix the problem 100% guaranteed". That does NOT fix MAV at all. I know two people who have had this nightmare.
     
  9. RedBird11

    RedBird11 Member

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    I have an appointment with a neurotologist in January that I know treats MAV. I am going to see him for a second opinion. I was diagnosed with cochlear hydrops (now I guess it would be Meniere's as I have had vertigo since) over 3 and a half years ago and my current neurotologist hasn't done anything to help. He tried the prednisone and diuretics. Neither worked for me and he pretty told me that's all he could do and just told me to follow the low salt diet. I have been very interested in MAV and asked him about it once and he told me migraine would not have anything to do with any of my symptoms, so I dropped it. Well, I cant shake the feeling that it may actually be MAV. I have a lot of symptoms that line up with it. If the new doctor tells me he doesn't think its MAV, fine I will accept that. He knows a lot about MAV. But maybe then he will agree to prescribe antivirals for me. My current doctor said "neurtologists don't prescribe anitvirals. It has nothing to do with the ears." HA. See why I want a second opinion?

    Anyway, my point is I think MAV is definitely worth looking into. :)
     
  10. AEC

    AEC Member

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    Thank you for responding. Any doctor can prescribe anti vitals.He doesn't know what he is talking about. When I go back to my Otolaryngologist I'm bringing up MAV.
     
  11. AEC

    AEC Member

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    I know that's horrible. I'm going to start eliminating the food triggers for MAV for the rest of the month and see if there is any difference. Then maybe I will know before I go back to the Ear specialist if it's MAV.
     
  12. danni1979

    danni1979 Member

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    AEC..can i ask?? What are your symptoms??
     
  13. AEC

    AEC Member

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    I have ear pressure, vertigo,very off balance, tinnitus.
     
  14. imback

    imback Member

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    Aug 8, 2014
    I think I have both but it has not been officially diagnosed.
     

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