Just ranting

I am really sorry you are feeling so down. I get it about being overloaded with reading so much online. I search the internet daily for hours on end. My husband tells me that it is doing no good and just driving me crazy, but I feel like I have to do something. I'm not going to get better by just sitting there and changing nothing. It is all so confusing though. Every time I think "oh! this has got to be my "cure" I was looking for... nope". I am also in the process of going to a new doctor. My appointment is in January. I am hopeful that he will have more for me than my previous doctor who did the whole "steroids, diuretic and low-salt diet. Oh it didn't work? That's all you can do. See you in 6 months."

 

I get it. I was diagnosed as having the MTHFR gene mutation, but it's impossible to try figure out.

I have given up on supplements...I feel much better OFF them! I suspect there's something in the fillers that I react to.

So I am going to give CBD oil a try, I found a reputable supplier here in Australia. You can buy it online, the brand 'Charlotte's Web' seems to be a good one. You take it as sublingual drops.

 

Awesometx, my heart breaks for you. Please take my advice with a grain of salt but if brain fog is doing you in then you may want to address cutting that bad signal off with antibiotic injections. Again, I'm not knowledgeable enough to tell you what to do but you sound like you're in misery. This is a lot to deal with so you may benefit from talking to a therapist. Sometimes just talking to someone who understands can help. Wishing you all the best in finding a solution.

 

Okay Awesome, one thing is you have grouped a number of things together. Breathe. I have very bad tinnitus. I can't do anything for mine, so essentially I have made friends with it and try to focus on other sounds. Both help immensely. I understand being depressed about brain fog, but keep pursuing solutions as you feel more in control you will feel less anxiety. If you need meds I am sure you can find some that do not conflict with you. I am going on 3 years with this crap. I won't give up. I get anxious too when I clump.all my problems together. I try not to do that. Take care. I hope this helped a little..

 

I really hope you feel better. Just take it day by day. I'm suffering too and that's all we can do.

 

Redbird: You are in the company of those who do understand! Hope that helps a little! I find when I can sound off--and be understood--it helps a bit. Some days it's to my nephew--he is a great listener. Some days my husband--though he 'never' lets pain, etc. get him down too long, so has developed a 'this is what it is==so just accept it and go on-- attitude. He's supportive but no one truly understands but those here. Depression/anxiety are hard to deal with. A therapist to talk to does help. I did that for awhile. Tried various anti-depressants but they didn't help and caused bad side effects. Xanax helps but made me feel drugged--so I finally got weaned off of that. Recently, due to the musical tinnitus and bad dizziness--head pressure, my Ent put me back on the low dose of Valium--said 2 times a day. Well, that wasn't good for the 'day' part. So I'm just doing the night time dose. Had good day yesterday--then today have the tremors (another development) and feeling soooo dizzy--so took the Valium. Hoping that helps--we'll see. And the tinnitus has turned into 'musical' and the noise type is bad but having songs (two distinct ones--no voices, must music) over and over is very maddening at times. I'm sleeping with the CD player on with 'relaxing Cd ' to fall asleep. TV or anything with noise helps. Getting out helps as long as it's not in a big store or shopping center. Trying to do little chores around the house puts me down in my recliner for a few mins. Then it lets up for awhile and I say--"Thank you God"! So, days will be bad and days good--do seek some assistance with a doctor who understands. Let us know how you are and feel free to 'sound off' here anytime. We do care and understand !

 

In searching for tinnitus relief--came across the 'Starkey' remedy for tinnitus. It looks like a small hearing aid type device. You might want to look at it. I was on amazon's website looking up tinnitus relief. Found this among other things. It has a toll free number to check it out too. Might be something that could help. Maybe someone here has tried it or knows about it. I wear hearing aids already in both ears so not sure I can replace one ear (my bad one) with this. But thought about you. Let us know if you do and if it works well.

 

hey buddy i feel your pain;went bilateral again a few months ago and i believe i'm stuck with it now;got hearing aids but my right ear is ringing so loud i couldn't tell if my hearing aid was on or not;this site is great for understanding and compassion but you will drive yourself crazy trying new crap;been there and done that;this disease sucks my wife bless her heart keeps reading all theses "cures" and drives me nuts

 

This condition really is a vicious circle. Our symptoms make us worry and the worry can exacerbate the symptoms.

I know it's easy to say, but if you can relax a bit and not play the what if game, that can help. I used to try and find out the cause for every single vertigo attack and the things I read about made me so upset that it was not at all helpful.

Vent away, then try to get on with it. It's a waste of energy to worry about stuff that might not even happen. If it does happen, then you will cope with it.

 

I can relate to this, so much.

I've found CBD can be helpful about 30% of the time, which is better than nothing. I've heard allergy meds can help with ear pressure, but I haven't personally tried them as it seems every medication I take makes my vertigo go nuts. but I know that isn't the case for most people.

Vitamin D really helps with depression, and anxiety. I had to quit my anxiety meds because they made my vertigo way worse, and I take vitamin D every morning (I live in a place with very little sun). It's not as good as meds, but there are no bad side effects and its safe on your body.

There isn't a good fix for any menieres symptoms, which is a giant pain. I hope you find something that works for you.