Hi guys! I was registered here years ago but can't recall what my ID was. Anyways, Ive had menieres symptoms since I was 17-18, formally diagnosed when around 23. I just turned 33. I'd say symptoms are typical. Dizziness, vertigo, nausea, loss of balance, fluctuating hearing loss, and tinnitus. Something new just happened though and I'm not sure if its Menieres or something else. A couple hours ago I could feel my "tells" that a vertigo attack was coming. Typically not a big deal anymore as long as I get my meds down fast enough. I popped a couple meclizine and went about my business. The vertigo attack came fast and intense like they always have for me, but instead of a left to right nystagmus as it has always been it was down to up. I did a quick check with Dr. Google and didn't find much. Anyone experience this change before? My only other symptom that is somewhat new is drop attacks. They started a couple years ago but luckily Ive only experienced them a few times in that span. If it matters, my bad ear is worse than its ever been. Everything sounds garbled, my hearing test 3 weeks ago was -95 db. In between attacks my hearing doesn't really recover like it used to. Doc thinks I'm bilateral, left ear showing a small drop off over the past 3 hearing tests. (1.5 years) Sorry for the novel, I thought a little history might be useful. I have to make this board a regular stop again. I forgot how much a little support can help.
hi ya tell me about Drop attacks? What is that? Wish I could clarify the nystagmus direction but I do not know the answer to that one. Your doctor? All the best Nick
Same with me. I've had different directions to my spinning. I don't know if it matters though. Usually mine is a diagonal 10 to 4 type spin.
Ill mention it to my doc next time I go in. It hasn't happened since. Drop attack for me is a very brief complete loss of balance. Basically if you're up, you're going down. But then you can get right back up again lol. For me I don't get any nausea or lasting effects from it, not sure how it effects others.
Sorry, Bodama, I cannot comment on the change of direction with the spinning. Mine has always been left to right. I thought nystagnus was the rapid, out of control eye movement unrelated to the spinning? On the drop attacks, in 26 years of battling this beast I thankfully have only had one drop attack. To me it was as if a giant black hole opened in the center of the earth and instantly sucked me to the ground. "Luckily" I was already in the middle of a vomiting session in front of the toilet so I didn't have far to fall. Good luck and I hope your latest issues are not a result of going bilateral.
Mine was always the room spinning to the left! I've also had a couple of drop attacks--and they are no fun either. However, one time, as I was leaving the hospital--after going there due to a vertigo attack, I was sitting in the wheelchair ready to leave--and suddenly the room did the top to bottom attack!! Everything in front of me turned upside down and made me fall to the right--bruised my shoulder on the handle of the wheelchair--and nearly went out of it! My husband caught me and the nurses ran over, got me into bed and I said 'get me a meclizine right away--they did and I chewed it up--and the vertigo went away fairly quickly but left me 'drained'. They kept me overnight for observation. I don't have it anymore--since the Shunt surgery--thankfully. But--as you can see, if you read my posts--have awful head presure/dizzy feeling daily that makes quality of life not very good. Hope you get relief soon.
Eye jerks are usually in the direction of the offending ear. There can be vertical movement but much more rare. I would talk to you doc. How do you know the direction? Mirror? Or how the room is moving? As a note I had my first attack when I was 20. I am now 63. There is life along the way. One day at a time with a top notch doc. Google Dr Hains writings on your type of nystagmus. I think he talks about it. Good luck.