Hi everyone, Recently I posted a question, Is This Meniere's and got some good responses. I have had MM for about 20 years. I went about 3 years before my episodes were diagnosed through a day of testing. My MM is confined to my left ear. I have very little hearing left in that ear. I have not had a serious attack where my ear felt to be ready to explode and the tinnitus really strong since last June but have had numerous small dizzy spells - about 8 or 10 per week that last for only about 15 minutes each. The fullness and loud tinnitus is not severe. I have seen a few ENT's but no one seems to have any new answers. One response I had in that post is that I may have one of the following: SCD, DLP or MAV. I tried to find the first two and had no success but MAV turned out to be associated with migraine headaches. From the age of 8 or so I had migraines and they were so severe that I had to take pain relievers rectally. Then when I was about 40 they seemed to have gone away. I have had the aura things though through the years and in fact had one this morning. By that I mean pulsating snake things that surround my vision which last perhaps an hour or so. I haven't had a true MM attack since last June but for the past year my balance has been very poor and seems to be getting worse. Any suggestions on what I can do now would be greatly appreciated. Can PT help with my balance? Thanks much, Ken Glaser - Denver
Please read my post "It has been a year". I'm trying to spread the word that there is a trigger that many people with Meniere's may not know about. It is TMJD. I learned that I have this after reading the story of a woman named Susan who started to Facebook sites. She was dx with Meniere's for 25 years and went through some pretty bad things and surgeries, but later found out she actually had TMJD. She is now symptom free. The two sites she started are called Meniere's No More and Meniere's: Vertigo, Tinnitus, TMJ. Many of us on the site have found that our trigger is actually TMJ. I didn't have pain so I never knew I had it, and that's similiar to a lot of us who are currently in TMJ treatment.