I gave been taking the max dose more than 6 months. I'm going through benzo withdrawal still for a long time. I still don't know if the W/D is causing my ear and balance symptoms or if the Mienere's has been exacerbated because of the withdrawal. Benzos are evil!! I was taking it for anxiety for a year and it messed me up and I believe it made my inner ear so much worse. Anyone else have this experience with coming off benzos? My life sucks .
Coming off benzos is horrible for some people. Worse than heroin withdrawal, and much much longer. The withdrawal symptoms mimic lots of Menieres symptoms.
I remember you telling me that you had ear symptoms from it too. Yes it takes along time. I can't wait for it to be over. I hope it is the withdrawal and the Mienere's getting worse.
Yes, I did. It's very confusing because it mimics Menieres symptoms and you're not sure what's happening. But it passes. It might take awhile, but it does pass.
I don't know if I've taken it 6 months in a row, but definitely more than 6 months total. I reduce the dose (I've never gotten it to less that 2 gms/day), but then something causes me to have to go back up. I find that being on the JOH routine makes things even better.
Make sure you guys are not eating high arginine foods. That just feeds the virus. Especially avoid nuts.
http://prosurx.com/what-to-eat-and-not-to-eat-to-prevent-herpes-outbreaks/ http://www.herpes.com/Nutrition.shtml
I've taken it for more than six months and had great relief the first five. Been an absolute mess these last two months so I emailed Dr. Gacek. He recommended switched types of antivirals as in his words "it's common to develop a resistance". I am now on Famvir (for a week so far) and not seeing an improvement but trying to remain positive that it will turn around. Good luck!
"Common to develop a resistance"!! That's scary. But that does make some sense with my experience. I do avoid nuts, and I do better when I take lysine. I should probably talk with my oto about Famvir.
Thinking about this more, I am just having trouble lately with ear type issues-stuffiness, tinnitus, hearing. Maybe it has more to do with allergies. The Valtrex does seem to be taking care of the vertigo (which is huge--THANK GOODNESS!!!). So confusing.
I haven't heard anything on the other forums about developing a resistance. If anything, everything i've heard is that this is one of the few drugs that rarely conk out. But Gacek knows his stuff, so i guess it's true. It could be that the virus is mutating and you need another version to attack it.
I think there is more at work than a virus, in addition to the virus that is. Allergies, permanent damage to ear, other things, for instance, i remain sensitive to caffeine and it does affect my hearing and balance if i push it. That's just my two cents but 10 years down the road, that is what i think. Think of other serious viral infections like mono or chicken pox. They can do permanent damage that persists after the active period of the virus. They can come back in a slightly different form like shingles. They can leave the body compromised so it has a hard time coping with other stresses like lack of sleep. As much as i think antivirals were instrumental in my recovery i also think allergy treatment helped too as did long term healing, avoiding caffeine etc. All in all, i have been in pretty good shape for years now (knock on wood). I do not take antivirals now and have not for years. I do think they kept the disease from progressing and reversed many of the worst symptoms.
Sunflower seeds are high in arginine. I wouldn't eat them personally. http://nutritiondata.self.com/foods-012083000000089000000-2.html I don't know about pumpkin, but most seeds and nuts are an issue, so eat with caution.
I can't find pumpkin seeds alone, but this might provide some info: http://nutritiondata.self.com/foods-012083000000089000000-3.html? http://nutritiondata.self.com/facts/nut-and-seed-products/3067/2 Arginine is over 2000.
Withdrawal DOES pass. Even the hardest cases on benzobuddies find relief after a year or so. Don't let the scary stories wreck your hopes. Whether or not it's that or Meniere's is impossible to tell. I was so confused about it from day to day. Had no idea what was going on half the time. Let yourself recover from the withdrawal fully and then assess.