Returning to where it all started

I refused the Mylan. They had another called Camber which is what I am on day 2 with.

 

As I enter day 4 of AV treatment, I noticed something very different is occurring.

Historically, my flare cycles are one to two months long. A flare since starting JOH consists of classic fullness/pressure and "the howl". It's a long slow cycle I have been trying to manage for the past 8 months. I have had no spontaneous dizzy spells or vertigo since 2 weeks into JOH. I consider JOH a blessing.

Last night I awoke to find all pressure and howl in my affected ear completely gone. Totally different then the past 8 month pattern. I still have tinnitus in my unaffected ear. Not sure that will ever go away as I have damage from my childhood in that ear. Today, things were weird as I had tinnitus shifting from right to left and back again. Slight popping noises in my left ear and a feeling like drainage like occurred in my teen years when I was a swimmer. Very strange day as I tried to maintain focus at work with these shifting noises.

I am trying not to read much into this past 12 hours other than to say something is changing. Good or bad, only time will tell. I was happy as I could hear clear symphony in my left ear today. Rachmaninoff Rhapsody is what I am listening to as I type this update. Tomorrow is a new day and it may all suck again. But today, the moment is a gift.

 

Hiro,
" Dr. Gacek's antiviral treatment is accepted because it is a part of clinical trials, and these trials are, again, of insufficient evidence from their community viewpoint",

I will credit this forum and Gacek's paper for the reason I am trying AV's. All other medications have been total failure to this point. Only low sodium and JOH have provided some degree of relief which I am eternally grateful for.

Thank you for your continued input.

 

So then I'll ask the question. Is there anyone on the Chicagoland area that is worth making an appointment with? If yes, what makes them worth visiting?

I'm two weeks and a few days into the Valacyclovir regimen. No real sign of discernible progress.

 

The problem with Chiro is they want you in twice a week. No way I can make a continous commute to Michigan and still work. I spoke with a Blair process Chiro named Frederick Schurger out of Springfield. They were insistent on twice each week visits. I did locate a more central NUCCA chiro I will visit once I finish 3 months on the AV's. I'm not sure where TMJ fits in my case. I know I have issues at C5/C6. I have also experienced whiplash on numerous occasions. In various car accidents as well as 10 years of sport jumping.

Thanks Hiro.

 

It's been a little over a month since starting in on Valacyclovir (3g/day). After about 5 days, hyperacusis set in and has not departed ???. Hearing in my left ear is about 50%. I am grateful I have not experienced any dizziness since going on JOH. I am making an appointment with my primary care Dr. to schedule an MRI. Time to narrow this down a bit.

We had a nice time down in KY on Lake Barkley this week. Caught my biggest fish ever at 11lb. ;D

 

Thanks Scott Tom for the reply. The only thing I am taking besides Valacyclovir is JOH, fish oil, red yeast rice and a multivitamin.

 

I'm considering going vege to see if it helps. I don't want to, but !!!!!!!!!!!!!!!!!!!!!!!

 

Well, I can say I tried.

Finished my 3 months of Valacyclovir. The hyperacusis set in and stayed steady the entire 3 months ???. I have now been off Val for 2 days and the fullness and sensitivity have started to fade. Time will tell if it is real or just part of the cycle. I never experienced any improvement the past three months, just the onset of the hyperacusis.

When my dentist evaluated me for TMJ, I was told there are no apparent signs in my jaw movement or wear on teeth.

I'm only taking the full JOH regimen at this point. Time to figure my next move :. At least I have been feeling pretty good .