AVs for 2 years, relapse or slight bump in the road?

Speedyhaze,
So sorry to hear that you are not feeling well. Drugs.com says there are no known interaction issues with L-Lyzine. They also say that doesn't mean there aren't any. You should check with your doctor or pharmacist though not your local health food shop.

I wish you all the best in combatting this beast. You have to stay vigilant. I've had this for 27 years and it has certainly morphed into different symptoms which require different treatments. I'm currently on the A/V's and the JOH Vitamin Regimen. I also have seen chiropractors and do the face, jaw, and neck exercises posted on this site by Hiro.

I was so depressed just 3 months ago but ever since I have been feeling great and trying to make the best of every non-dizzy day. I credit the A/V's mainly because not only have the dizzies gone away since I've been taking them but my hearing has inexplicably improved.

Hang in there.

 

I don't have any knowledge of the lysine statin connection, but trust your pharmacist on that.

If you talk to your doc about AVs, take these papers:



http://www.mm3admin.co.za/documents/docmanager/6e64f7e1-715e-4fd6-8315-424683839664/00056616.pdf

https://fhs.mcmaster.ca/otolaryngology/documents/recoveryofhearinginMeniresusingantiviraltreatment.pdf

 

Thank you so much for your support, I will definitely try the A/Vs route as so many people here have had success with them, to be honest I am happy to try anything at the moment. Will keep you posted on my progress.

 

Thanks for your advise, I will definitely do that when I finally get my appointment through although I am told it may be a long wait. Such a shame if there is a problem with Lysine and Statins as you speak so highly of the use of it, I am at least eating foods that are supposedly rich in Lysine but it's a bit difficult being a vegatarian. Thanks so much for your help.

 

sorry to hear "IT'S BACK". I totally understand. Hopefully it wont hit too hard. Pls keep us posted.

 

Hi Gardengal,

I know this is an old thread but I hope that you still see this. I have also had great relief from Famvir antivirals 750mg per day for several years. Previous to this I was disabled with daily attacks of vertigo, some drop attacks and violent spinning vertigo. I did reduce the dose down to 500mg after a couple of years but every now and then (6/8 month intervals) I would have to up this back to full dose for a few weeks as I would feel a hint of my symptoms coming back. This always seemed to work for me. I noticed in your post that you had a baby during your time in remission. Did you continue taking your antivirals during this time? I am now 9 weeks pregnant and my symptoms are rushing back with a vengeance. Dr. Gaceks opinion is that it should be quite safe to take a little w dose of famvir during my pregnancy but I would love to hear from others on the same position! I really hope that you once again found remission from this horrible disease.

 

Hey Gardengal,
How have things gone since this last post? I’m early in my antivirals but am considering procedures if they get offered, even if I do well for awhile on valtrex... so I’d really love to hear your update.
Thanks
AnneT

 

I've been following your thread and I'm just here to say I'm sorry and I know how you feel. This illness is really hard to explain to others and because we don't really understand it ourselves. It very frustrating and scary because when we're having a bad time we don't know when it will get better. When we feel good, life is great. Then bam, a setback changes everything. Hang in there and I wish you recovery from this flare up ASAP!

 

Be patient, Gardengal. It can take 2-3 months for the new A/V to kick in. Wishing you all the best!