Meneiers and Fatigue

Terry,

The conazepam can make you feel sedated. I think our bodies work over time trying to overcome the effects of Menieres. I, too, have had this for 20 years and the fatigue was at its worst when I was working.

Since I’m retired the attacks are fewer and the fatigue is manageable. I think there is a connection to the stress this disease brings and the fatigue.

Are you taking the clonazepam daily, or as needed?

I hope your appointment with your doctor on Monday will get you some answers.

 

Do you mean you had gent injections as a treatment for mm? If so, how long ago? I have heard occlipsia can get better with rehab/walking after gent. Could fatigue be a side effect of the script? I am having active symptoms right now too, woke up to spins this am. Sorry you are going through this.

 

Meniere's and fatigue? May as well say fatigue and Meniere's. To me they're almost one and the same.

Don't mean to be short and flippant, but umm, I'm really freakin tired...

 

Hi Terry,

The reason you're feeling so fatigued is due to the Meniere's effects on the brain. Meniere's
is not just an ear issue, but even more is a neurological issue.

The inner ear is sending all kinds of wacky info to the brain cells, and in turn the brain
is working triple-overtime trying to decipher and translate those electrical impulses
into sounds and/or motions. The "brain drain" from an active Meniere's ear is tremendous,
and can wear you out even if you're just sitting around.

Clonazepam (Valium derivative) is only going to make you even more fatigued.

Meniere's. like epilepsy, is episodic, and can lay dormant for an indeterminate
amount of time, and then just rear it's ugly head once again.

I've lived with Meniere's for most of my life, and IMHO it is much more of a neurological
issue than a otological one.

 

Yep. All roads lead to Rome.

Don't lose heart! You're in good company. Many of us struggle with fatigue.

 

I don't take any benzos but I have felt tired for about 26 years about the time I first noticed off and on hearing deficit in my left ear. Fast forward 2? years, I was dx with MM. Not working now and I pace myself. I have some sedentary hobbies; reading, needlework and crafting.
Best of luck to everyone here. I find this disease a challenge.

 

Ummm...that's not what I said, but it is indeed factual.

I'm not upset, but please don't quote my post and then edit it to
reflect your own thoughts. Thanks.

 

That's so weird Autumn. Why would you do that? LOL.

 

I didn't even know you could do that. Weird.

 

I think a major source of the fatigue is the quiet extra work our brains are constantly doing to balance and strain to hear.

For me, one of the huge benefits of being on the antivirals is that the fatigue has greatly reduced. I think that is because for me it solved the balance issue. I also no longer have that constant nagging nausea slight dizziness (at best).

 

Hi Mike!
I do apologize. Rest assured, I have no desire to do as you describe, but obviously, that's what happened! I'm gifted.

 

You guys both know me well enough to realize that I leave no unintended consequence unturned‍♀️

 

For a while I had a small number of hours in a day when I could be productive. Getting on anti-virals supported by a subset of the John of Ohio regime got me my energy back, and I am able to contribute to my family again--through part-time work, parenting, and house care.

 

I'm ::ahem:: almost 40...and at first I drove myself into the ground trying to do everything just like I did before I became so sick. Bottom line: My body now says,"no," at times. It doesn't matter what age you are, or how fit and physically active you were before you became ill. It's a disease. You do the best you can day-by-day. Once I learned to accept this, then I could start living a more productive life based around what I am NOW capable of accomplishing, when I am capable of accomplishing anything. The hardest part for me has been feeling like I let people down now because I was such a, "go getter," before this disease took a strangle-hold.

 

Autumn - have you seen an increase in ablility to function and commit to future plans with your surgery?

 

Meniere's is exhausting - even when I am feeling "good" I am still fatigued... I just literally have to push thru it or I would never get anything done.... If I am particularly exhausted I will try to take a nap when I get home from work - just lay down for a half hour - I try to take a nap or sleep in on the weekends.... Valium helps if I feel like I might be getting dizzy - sometimes I can stave it off sometimes not.... But it doesn't make ME personally any more or less fatigued than I am daily.

 

" Just trying to tread water here and manage. Not doing a good job lately."

This one hits close to home Robbitl. I leave for work at 4AM, return home around 5:30PM. I am down to 999 days till my target retirement date. But who's counting? Meniere's is what made me set a hard date. My youngest also graduates a few months prior.

"Tread Water", just a little while longer.