Hello everyone! I have been on the JOH regimen plus an anti-viral for a week or so now and so far so good! I am getting over the shingles and still have a bit of that nerve tingling/pain but the vertigo has been at bay for over a week. I have been trying to reduce stress and am meditating and doing restorative yoga daily. My questions are: 1. I saw on the FB page called Meniere's Disease Support that most ENTs have been telling patients to use diuretics. I just started a gentle OTC one---- but am kind of scared of being on this because I think it sounds "whacked" in a way because I have always thought it is so important to be hydrated. Maybe though in the back of my mind it sounds reasonable because I have for years had aural fullness and maybe it would help with that? 2. One of my other symptoms has been waking up at around 2-3am and not being able to fall asleep. Some members of the FB page take benadryl to sleep better and they say it dries up anything that might be causing aural fullness. John of Ohio or others, would you caution me against these little treatments or do you in your opinion (and I know you are not a doctor) think they might benefit Meniere's patients? Thank you all for your support. I feel I am on my way to better health by eating a ketogenic diet, doing easy yoga, reducing stress, meditating, taking the JOH regimen plus an a
https://www.health.harvard.edu/mind-and-mood/two-types-of-drugs-you-may-want-to-avoid-for-the-sake-of-your-brain Thought you might be interested in reading this article about latest findings about Benadryl and Valium in people who used them longer than a few months.
Yes, LSD --- low salt, diuretic --- is the standard just walking in the door "prescription" the majority of ENTs mandate for their initial Meniere's presentations. Why? Because that's what all the textbooks and professors back at med school SAID to do. That approach was based upon the idea that the hydrops, inner ear fluid accumulation irritates the inner ear, causing Meniere's symptoms. Very, very reasonable. But, as so many have discovered, relief, if any, is moderate and short-lived. For many nothing useful changes. Frankly, if the LSD treatment were successful, not many would be searching this website for new stuff that actually works. When the textbooks were written, ENTs really didn't have much to offer. The disease was "idiopathic," without known or discovered cause. Hard to treat a problem for which its causes are unknown. This, however, is the 21st century. In the last decade or so, it has been discovered that in the majority of Meniere's cases (but not all, by any means), the main, root cause is a herpes virus infection of the inner ear tissues, or their associated nerves. Turn off the activity of the virus --- as does the prescription antiherpetics (most of them, anyway) and the lysine in my regimen--- and if given some time to "heal" proper inner ear function can return. (That healing can be assisted by the other things in my regimen, beyond the antiherpetic lysine.) The other things in the regimen (http://www.zoominternet.net/~kcshop/JOH.pdf) help turn down inflammation and facilitate proper, effective blood circulation. It can take time (often many months), but the aural fullness subsides in most cases. For improvement of sleep, try something like this cheap sleep mask: https://www.amazon.com/Comfortable-Adjustable-Position-Ultimate-Blindfold/dp/B014VYD7NW/ref=sr_1_6_a_it?ie=UTF8&qid=1510956954&sr=8-6&keywords=sleep+mask&dpID=419zXi5hgIL&preST=_SX300_QL70_&dpSrc=srch I have always slept pretty well; never thought I was sleep deprived. Had to go into Cleveland Clinic for some minor surgery. Had to stay two nights. Hospital, by regulations, had to keep the room doors open, so hall lights came in through the night and did disrupt my sleep. A very caring and discerning nurse saw my problem, and got a sleep mask for me from the main nurses desk. She said try it for a night, see what happens. I did. Wow! Did I sleep long and comfortably. Used it then at home, even without hospital hall lights, I couldn't believe how well I slept, how rested I was the next day. The deal is this. Until the last century or so, humans have never had any artificial light at night. Pure darkness. That's what our brains are adapted to. But in the modern world, the slight background light of even a clock radio penetrates eyelids, and disturbs the brain's circadian rythyms, never allowing deep sleep. Try it. It may take a few nights for you and your brain and eyes to get used to sleeping like a cave man. But it may just solve your sleep deprivation problems. Those can lead to and promote a host of systemic diseases, cardiovascular, neurologicalic, etc. May even help with Meniere's, as the "sleeping" immune system is strengthened. Keep us posted on how any of this works out. Stray rays from distant street lights at night can disrupt sleep. Go dark, go blind at night. Sleep will be much better. --John of Ohio
Thank you so much JOH! I will try it! I appreciate your help so much. I have been on your regimen for over a week and have had no vertigo. Yippee! So happy about that. Will keep you posted.
John of Ohio, First off...thank you so much for not just coming up with a regimen to help people...but just as important hopping on this website to help people more than a decade after you have rid yourself of MM symptoms. Thats says a lot about your character. I just started your regimen...I have had MM for 10 years (deaf in right ear, unsuccessful shunt, balance issues) you know the story...lol I was wondering if it is ok if I add magnesium to the regimen. I read that is helps with nystagmus. That is a problem I have quite possibly from the diuretic I take. In any case...I was wondering if its cool? Thanks again John...I am 38 and hope to have a lot of good years ahead of me...fingers crossed on the regimen. All the best, Mac
Magnesium is not merely "cool," it's essential. It's the central metallic ion in over 300 essential enzymes. With insufficient Mg, healthful enzyme production is suppressed. And, it is virtually impossible to get sufficient magnesium from modern diets. Foods today simply don't have enough (for a pile of reasons I won't lay here; would be several chapters). Now whether supplemental magnesium helps any of your Meniere's symptoms can only be learned by trying. It will not conflict with or affect your diuretic. Several magnesium supplements can be tried. The cheapest is magnesium oxide tablets. Not well-absorbed by some people, and like all internal magnesium supplements, diarrhea may happen. But worth a try. Take with meals and see what happens. A better, more adequately absorbed supplement is magnesium citrate. But, it, too, can cause diarrhea in some. It has that tendency in me. To get around it, I spray on my naked leg each morning 20 squirts of "magnesium oil," a saturated aqueous solution of water and magnesium chloride. I then rub this liquid into my skin, where it dries in a few minutes (while I'm getting the rest of my clothes in order). This way, the magnesium ions are absorbed transdermally, through the skin. Dermally-applied magnesium oil does not cause diarrhea; never disrupts intestinal function. Swanson's Health has squirt bottles of it; so do others. I slept much better after using it. Along with 7000IU of vitamin D-3, I no longer had periods of depression, and hay fever and allergies disappeared. Let us know how any of this works out. Check for info on the Internet regarding magnesium. --John of Ohio
John thank you for always sharing your knowledge and experience with us. Over a year ago I asked you about magnesium and you said that the citrate is great (well absorbed) on condition that it is well tolerated by me. I have been taking it since and the results have been great ( literally within such a short period of time). No more painful muscle cramps anymore that would wake me up every night. Are supplements safe for older teenagers?
JOH did the same for me SS, It took about two weeks for dizziness and Vertigo to fade away. I've been on it a year now. None of the oral steroid rounds, or diuretics helped me, Low sodium, hydration and JOH are my daily protocol.
John Of Ohio, You a good man... Thank you again for sharing your knowledge. I can't tell you how helpful it is when so many of us feel lost after years of dealing with "doctors" with no suggestions. I already put my order in on Amazon. I will let everyone know how it works out. I hope everyone has a great night. Mac