Hi All, I wanted to share this with you all. My Meniere's specialist just got back a few weeks ago from a conference where there was extremely positive data shared regarding those of us who have lost hearing from just having this disease, Gent, Laby, VNS..etc...I was the one that had the VNS and been very successful but little I had was affected. And not my "hearing" but ability to recognize words..so sounds like a jet plane (like it did before) but a hearing aid would only make the jet plane noise louder (so wouldn't help) and I can only make out about 1 out of every 5 words if that. They presented documented clinical trials under way as well as abstracts about a new treatment that is underway in California. I had a host of other things to discuss with him but have a follow up appt and will get the actually name of the specialists and the medical institutions so we can all follow. He said they are about 3 years out (and after being in the medical field and pharmaceuticals this is a good time frame) and have had success with actually taking nerves from other areas and the body and regenerating them into patients ears and these patients are having their hearing return. He has quite the CV (resume) and attends conferences here as well as globally. I will keep you all in the loop. But how positive that they are actually getting positive results. We all now this might not come to fruition, but having positive clinical trials under way is a good sign. Have a good week, Nicole...Orlando, FL
Me too! I wonder if this will get rid of the Menieres symptoms altogether or will just restore hearing? That's a good question to ask.