I bring you tidings of joy!

Discussion in 'Your Living Room' started by PapaJoe, Nov 15, 2017.

  1. PapaJoe

    PapaJoe Member

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    The only foods I'm avoiding at the moment are carbs because my new FNP has me on the low carb alkaline diet.


    Back when I was here in 2009, one of the posters here suggested I cut wheat from my diet. That was the first thing that led me on my journey. Cutting out wheat helped, this led to me discovering I had 'leaky gut', and I fixed that. Two subsequent lab tests over the last few years shows that my gut is still healthy. Problem is, once the yeast gets into your system from the leaky gut, it's hard to get rid of.

    After 2009, my vertigo mostly went away, but I kept getting weird non-MM symptoms, and it took me a few years to track that down. It was a series of dental infections (three separate infected teeth, one botched root canal, so four instances of dental infection. These were missed by several dentists until I finally got (what I hope is) the last one last June.

    But while I was struggling to get the dental fixed, the yeast came back (the gut is still fine, this is yeast that got into my system back when I had the leaky gut).

    Of course, my regular doctor could never find anything wrong, but my new FNP took one look at my tongue and said "yeast!". When I looked at my tongue, it had one of the worst cases of thrush ever, and I hadn't noticed.

    Right now I'm back on my anti-fungal medications, and I feel better than I have in years.

    I would only return here to menieres.org occasionally because I had nothing new to add and I wasn't well.

    But I haven't stopped searching for a cause. That leads me to the dental. There was the PubMed paper that (I think) I posted above, but mostly because I've been PMing with some folks here where it sounded liked dental might be a common issue among people with MM.

    It seems like, since most people also have fungal or viral involvement, that you need two or three bad things to happen all at once to get MM. I had a 30+ year dental infection, plus a 40 year yeast infection, and my FNP's lab test shows that I have had, in the past, significant infections of CMV and HHV (but not active now).

    So I'm hoping folks will read the first few posts just to see if they have any of the dental risk factors.

    Having been where you are, I only wish I could cure every single one of you on here, because MM sucks.
     
  2. PapaJoe

    PapaJoe Member

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    If you want to know if you have a stealth dental infection, you need a dentist. And you need a dentist with a 3D Cone Beam x-Ray. Then you need to ask him to show you, using the 3D viewer, the apical area of every one of your teeth, even teeth than had previously been pulled.

    The apical area is where the root fits into the jaw. Regular dentists consider that to be 'endodontist territory', but most people don't see endodontists until after they know they have a dental problem. So you can have an infection (30+ years), and your dentist will probably never see it.

    If your regular dentist doesn't have 3D cone beam imaging equipment, or is unwilling to show you each and every one of your teeth in the image, find another dentist.
     
  3. Mac

    Mac Active Member

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    Papa Joe

    You are the man. Thank you for all of the suggestions.

    Does anyone have a holistic/MM dentist they would recommend in NJ?

    Just saw one close to my home and he was more like a used car salesman.

    Thanks!
     
  4. PapaJoe

    PapaJoe Member

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    I've been talking with an endodontist and a general dentist here, and I think if you find a dentist with the 3D cone beams who is willing to examine each the apex of each root, they should find any problems so you don't necessarily need a holistic dentist. But since you almost certainly have one or more other things going on (fungal, virus), I would suggest finding a holistic doctor.

    I don't have any experience with holistic dentists, but after talking with the endodontist last week, I'm confident that most dentists should be able to find infections if they have experience finding infections, and if they have the equipment and check every tooth apex (the tip of the root). Because I don't have experience with holistic dentists, I don't feel as warm and fuzzy about them as I do about holistic doctors.

    But you also need to see if you have a yeast problem as well as a virus problem too.

    So you might end up getting your teeth fixed, and treated for yeast and virus infections all at the same time.

    (Is anyone here taking anti-fungal and anti-viral at the same time?)
     
  5. PapaJoe

    PapaJoe Member

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    This will be my last bump. Nobody is posting, but I am getting PMs about this.
     
  6. solari

    solari MM.org Janitor Staff Member

    Admin Post
    Good stuff, PapaJoe! Thanks for sharing.

    Ray
     
  7. PapaJoe

    PapaJoe Member

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    Thanks, Ray.
     
  8. mbgphoto79

    mbgphoto79 Member

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    Thank for taking the time to lay all of this new info out for us Joe. It will certainly take some time to digest it all.
     
  9. PapaJoe

    PapaJoe Member

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    We have all (or most of us) tried the anti-virals (didn't SEEM to help me) and the anti-fungals (did help me), and they would help folks feel better. Some of you may have used the documents I compiled to talk your doctor into prescribing the anti-virals and/or the anti-fungals, so I do have a little experience tracking this stuff down.

    But we were missing a part, and it became clear after the last five years of battling numerous dental infections, and dealing with botched root canals, that dental was somehow related.

    Most of my fatigue/mood/brain fog is related to yeast, but most of my neurologic symptoms are related to dental infections.

    MM is, at it's heart, a neurologic disease.

    And, dentists are very, very, very bad about finding apical infections (infections inside and outside the tooth around the end of the root).
     
  10. scott tom

    scott tom Active Member

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    I'm glad you found your relief!
     
  11. PapaJoe

    PapaJoe Member

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    Thanks, but not so much relief, I still have significant hearing loss and tinnitus, but I look at it as stopping the progression of the disease. It shouldn't get significantly worse if you've cured the infections causing it.

    There will still be a detox phase needed, where supplements like the JOH regime will be very helpful.

    I'm convinced (after eight years of dealing with just about every kind of medical professional) that dental infections are very common, and dentists are not trained to find that kind of infection. So my main goal is to give everybody here a heads up so that you can pursue the dental angle if you'd like. I also want to here how many people pursue dental and discover that they did have stealth dental infections.

    I'm also convinced that systemic yeast infections are very common with western diets.

    And viruses.

    We've been chasing viral and fungal solutions (and that is the right thing to do), but the dental infection also brings a bacterial component. We have a trifecta.

    So maybe dental/fungal or dental/viral, or maybe it takes all three of dental/fungal/viral to put us into MM.

    But these biofilm infections occur throughout the body, in the joints, in the pancreas, in the stomach. So why do I think dental infections might be the common ground?

    Because, when a biofilm infection sets up, and that's what dental infections are, they eat glucose and poop neurotoxins. The neurotoxins are carried away from the teeth by the blood stream. When toxins hit the bloodstream, they flow through capillaries and they flow around and get lodged near two major nerve groups: The trigeminal nerve, and the vestibular nerve. The immune response to these toxins in the tissue around the nerves is, IMHO, what inflames the vestibular nerve and leads to MM.
     
  12. PapaJoe

    PapaJoe Member

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    I tend to forget that after looking at eight years of scientific papers, that this stuff isn't so obvious to everyone else ;D

    If anybody has any questions or would like me to explain something better, please let me know.
     
  13. PapaJoe

    PapaJoe Member

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    New study linking leaky gut and MM.

    Those who have been here more than a year or two may remember that leaky gut was the first of the systemic illnesses I identified in my search for an MM cause. Here is a new study.

    https://www.ncbi.nlm.nih.gov/pubmed/29248204 Intestinal permeability and Ménière's disease.

    An altered intestinal permeability, according to the two assays, was found only in symptomatic MD patients. The rationale for a possible relationship between MD and intestinal permeability is forwarded. The double-sugar test and FC quantification might be implemented in the MD diagnostic workup.
     
  14. marie

    marie Member

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    Joe,
    thanks for posting all this info. I appreciate you taking the time.
    The dental and cranial nerve info is of particular interest to me right now as I've been having pain since dental work and need to get back in.
     
  15. PapaJoe

    PapaJoe Member

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    Make sure you have them check the apical area of the roots in that area. That same thing happened to me with my last tooth. The root canal was botched, and I started getting pain (that I had never had before) in the area near that tooth.
     
  16. Bonlyn

    Bonlyn Active Member

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    Joe,

    Thank you very much for sharing this info, I have only recently joined the forum and have been reading through old posts. Like you, after cutting out gluten and egg my mm seemed to go in remission for a year.But recently I had a 12 day attack. I suspect that I also have leaky gut issues, but I have to tell you the doctors I have seen seem to not take leaky gut seriously and I was basically let go of as a patient by one of them because I wanted to pursue the topic. So I am trying to find a conventional dr that is open to holistic in northern suburbs of NYC. Thanks also for the tip about nystatin and lactoferrin. Wishing you the best! Bonnie
     
  17. PapaJoe

    PapaJoe Member

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    You are welcome. I got pissed off at all the ineffective doctors and started doing my own research
     
  18. srmophett

    srmophett New Member

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    Papajoe,

    Like you I believe MM could be disease that has to be fought on multiple fronts at times, which leads to not really finding the cause but just the cure or relief.

    I am very interested in the fungal and viral aspect of this though, especially since I took an anti-fungal a few years ago for a persistent two year infection of athletes foot. It took me a year and a half to get a doctor to prescribe something else other than an OTC or pharm creme for my athletes foot, I had to be a horses rear end and practically make him prescribe terbafine (sp) oral to cure it. The point I am making is that during the month I was taking the anti fungal I began feeling really well, as good as I felt in years, told my doctor and he just shrugged his shoulders and said good but he would not be prescribing me anymore unless the athletes reoccurred.

    So I am looking to get my MM regimen started in the next week with some type of anti fungal such as Nyastatin or something of the sort, I plan to stay on an anti-fungal for a while and add an antiviral and then the John of Ohio regimen. any suggestions?

    I totally agree with you on most doctors, they all preach take control of your health and healthcare and when you try to discuss it with them they do not have time for that, especially when discussing with a person of lower intelligence such as a patient!
     
  19. marie

    marie Member

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    Joe
    Just now read your response about my dental pain. I stopped seeing that dentist as I no longer trusted her work.
     
  20. AnneT

    AnneT Well-Known Member

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    Yes I have PVCs and have had several root canals. Some of them were extremely difficult (“curly roots”). Some failed and so I got extractions and a couple implants.

    My gut is happier off gluten.

    I sometimes get into an almost dairy ibuprofen habit to manage migraines and/or vertigo. I’m sure this is not good for any leaky gut issues. I’ve been off ibuprofen for a couple of weeks now, as I review and renew Dr Buccholz’ Heal Your Headache approach.

    I suspect one molar is brewing some problems...I don’t feel brave enough tough to pursue it right now (the thought of getting vertigo during a dental procedure-ugh) but I’ll get there.

    I brush 3x a day, floss 2x. Sometimes I use goldenseal. I’ll add the coconut oil - I’ve tried it before and like it.

    Thanks for sharing your journey and research.
     

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