Hi, I'm Cristina, I write from Florence, Italy. Sorry for my bad English I have the disease of Ménière for 10 years, 8 years I was very well with just 1 vertigo a year, but lately it is terrible, a dizziness after another and I also did 3 infiltrations of gentamicin. I read Joe's pdf and I'm trying to take probiotics, garlic, apple vinegar, vitamin E and C, Pycnogenol and lemon bioflavonoids. I'm also limiting sugars and Prosecco (which I love ) Hearing has dropped a lot and tinnitus is constant, but they are not my concern! I only fear vertigo! Advice to give me to keep them away? Thanks for ❤️ Cristina
Hi Cristina, I am new to this forum too, but not new to vertigo or menieres. I have recently started John's regiment also and have noticed a difference. Don't forget the vinpocetine and the vertigoheel. I wasn't able to get the vertigoheel here, but I read it is easier in Europe. I am taking cocculus indicus instead. Prayers have helped for me too. I know you said your english is not the best, but if you have time to read through old posts that has helped me. Blessings to you. Bonnie
Welcome. You have found a great forum and hopefully we can be of assistance. I'm by no means an expert, which means I will let them chime in with their informative greetings. I have had MM since 2003 and like you it was manageable until the last year or so. I'm currently taking antiviral medication 3 times a day as well as most of the JOH regimen. I use Valium, meclizine and zofran to stop attacks, and it usually works fairly well. Good luck and again, welcome. Matt
Hi Cristina, Welcome to the site. The vast majority of people find partial or full relief through various methods and are able to live quite normal lives. This forum has the really hard cases, as most people move on after they get relief. Don't assume that you'll be one of the tough cases. The odds are greatly in your favor. So don't be discouraged. Try everything. There are several things that can cause Menieres-like symptoms. You can find an exhaustive list here: http://www.dizziness-and-balance.com/disorders/index.html You should first have yourself checked for all the possibilities by various specialists. Be sure to get the full workup. For example, without an MRI, you cannot rule out tumors. Without a high-resolution scan, you cannot rule out SCD. There are a a lot of different tests for different things. Get a second and third opinion. A lot of doctors spend less than 10 minutes looking at your file and then make a diagnosis. A lot of folks here have been diagnosed with one thing (e.g. Menieres), only to find out years later they had something else (e.g. MAV). The treatments for these two illnesses are vastly different! Check your diet. MAV can often be controlled with diet. Viral-related Menieres requires that you control your Arginine-Lysine ratio in foods. A lot of folks have found relief from antivirals. Obviously, this doesn't work for everyone, but for those of us who are viral-related, it works about 90% of the time (this number is based on published data by Dr. Gacek in peer-reviewed journals). This is a good place to start reading about antivirals http://www.mm3admin.co.za/documents/docmanager/6e64f7e1-715e-4fd6-8315-424683839664/00056616.pdf https://fhs.mcmaster.ca/otolaryngology/documents/recoveryofhearinginMeniresusingantiviraltreatment.pdf Many people have found relief from various supplements. The most famous one on this board is JOH. You can find his regimen here: http://www.zoominternet.net/~kcshop/JOH.PDF If you think you might have MAV, read this book: https://www.amazon.com/Heal-Your-Headache-David-Buchholz/dp/0761125663/ref=sr_1_1?ie=UTF8&qid=1498501145&sr=8-1&keywords=heal+your+headache There are many other regimens that have worked for others, so be sure to read all the threads on this site. There is a wealth of information here that has been built up over 20 years of experience. Even if nothing works, don't panic, because you can always get a labyrinthectomy, which almost certainly will end your vertigo problems. Just make sure you know which ear is bad and that you're not bilateral (even then, you can laby both ears in a last resort scenario). Lastly, while it's good to listen to your doctor, also listen to your body. You are your best advocate. If you think your doctor isn't giving you the best treatment, get another opinion. Keep searching. Most people who found this site eventually left because they got better. Many of the remaining folks are the really tough cases, so don't panic and assume that you'll be one. Think positive and get started on your journey with both eyes and ears open. Good luck. We're here to help.