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Wondering

Discussion in 'Your Living Room' started by rwj6001, Jan 9, 2018.

  1. rwj6001

    rwj6001 Member

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    I've been thinking of my next move, if the JOH regime fails. I mean, I'm hoping that it doesn't, and I've committed to six months of it before making any further decisions, but................so far, six weeks in and no change......I've just recently bumped the Lysine up to 4500MG daily from the 3000mg to see if that will cause any changes.

    Anyway, what I've been wondering is.....if the JOH fails does that mean that anti-virals probably won't work either? I mean the Lysine in the JOH is primarily for fighting the herpes, isn't that what the anti-virals do as well?

    Just contemplating the future and these things pop into my head.

    Thanks!
     
  2. June-

    June- Well-Known Member

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    No it doesnt. Try antivirals. Though JOH does have some ingredients designed to slow down the replication of the virsu it is not the same thing nor as powerful in the antiviral arena. If antivirals work for you they work, if they dont they dont. You would really be shortchaning your self and perhaps suffering when you dont have to try to theorize an answer.
     
  3. Pupper

    Pupper Active Member

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    yo yo yo. don't be theorizing. just do.
     
  4. Onedayatatime

    Onedayatatime Active Member

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    For me the JOH has provided relief. Been on it for 13 months or so. The AV's had no positive affect. I actually had a negative affect from my 3 month experience of AV. So what am I saying? stop presuming and try all the low impact options. Things like JOH, diet and AV's are a no brainer. None of them involve "the knife".
     
  5. mbgphoto79

    mbgphoto79 Member

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    I started AVs almost seven weeks ago. I didn't feel better at all until about a week ago. I felt waaaayyy worse the entire time after starting AVs. It can take up to three months for AVs to work, so don't give up on JOH. Keep in mind, this type of treatment is working in the premise that not only does the virus need to be tamed, but healing needs to occur. All of this takes time.
     
  6. rwj6001

    rwj6001 Member

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    I wasn't theorizing anything, nor do I have any intention of short changing myself any and all options for any kind of relief. I was simply asking a question.

    I appreciate the feedback and I understand.

    Should the JOH fail (which I won't know until at least six months have passed) I will definitely explore the anti-virals. As a matter of fact I've already mentioned the idea to my doctor in an email discussing various topics that I've read on this forum and am looking forward to his input at my next appointment with him.

    Thank you!
     
  7. Pupper

    Pupper Active Member

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    RWJ, I was just playing about the theorizing thing. I thought it was funny how June used the word.

    Anyway, hope we didn't discourage you from coming back hear. I just read most of your posts. You're the $150 hearing aid guy.

    Seriously though, why haven't you gotten on antivirals yet? They have a good reputation for being successful if you have a virus. Which you very well might have.

    I need to buy that hearing aid and keep it on my keychain because I often forget to bring my expensive one.

    You're from NW Ohio. I was too. What town?
     
  8. rwj6001

    rwj6001 Member

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    Pupper,

    I'm a big boy, someone would have to work awfully hard to offend me and even then I wouldn't stop coming here, I'd take it up with them personally.

    There is way too much valuable information exchanged here through personal experience for me to not come back AND I hope I'm also able to help someone, even a little bit, through my own experience.

    I do appreciate the feedback and as I said previously I will be looking into the AV's as soon as I meet with my doctor on my next visit. Until then I have been diligently using the JOH regime and have high hopes for it working on me.

    Sometimes, I just get into a funk though and start feeling sorry for myself and wondering about the future......playing a lot of what if scenarios, you know? I usually try not to go there because......well, what if the world ends tomorrow? Hahaha, but seriously, its kind of a losing game thinking about things like that and I just try not to go there.....but I do like to have a plan and that was was a question that I had been wondering.

    I believe strongly in the viral theory, it makes sense to me and I know my history so I think for me it is the most likely cause. My dad was diagnosed with MM right about the same age as I was and because of that I also think there is a genetic link, not so much in the MM itself, but in certain physical and genetic characteristics that make me more susceptible to MM through a virus. I could be wrong, but that's what I believe.

    I'll be pressing my doctor for his thoughts on the subject of AV's and may even press him to write me a script for them, it can't possibly make the situation any worse, but I'll wait and see what he says. I have an appointment with him in a few weeks.

    I am the $150 hearing aid guy, although I would prefer not being known for that :) I would much prefer being known for my sharp wit and intelligence <wink, wink>

    I'm in Toledo, Ohio.

    So, question asked and question answered! Thanks again to everyone for the continued feedback!

    Take it easy!
     
  9. mbgphoto79

    mbgphoto79 Member

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    Exactly my thoughts on the newfound info about the genetic link. MM isn't "passed down", but the factors that allow the inner ear to be compromised are. My chiropractor asked me if I had any Jewish ancestry, apparently that's one of the predetermining factors. Almost seems like he knows more about MM that my ENT...

    My wife is also from Toledo.
     
  10. Pupper

    Pupper Active Member

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    I am from Toledo.

    I am Spartacus.

    Interesting about heredity. My dad had 2 serious episodes of Bell's Palsy. His face has since returned to normal and he had some reconstructive surgery. I think the theory on BP is that a virus makes a facial nerve go haywire. But not sure. He developed nearly debilitating migraines at 19 and has had a headache nearly every day since then. He's not Jewish but pretty close.
     
  11. My mom doesn't have vertigo, but does have terrible tinnitus, ear pressure and migraines. My grandfather had vertigo and my uncle has numerous ear issues but not vertigo. I definitely think there is a genetic component! BTW - I'm from Cincinnati. Maybe Ohio is the culprit??
     
  12. June-

    June- Well-Known Member

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    Rwj, sorry if i came off judgemental. I answer too quickly sometimes. My real intended point is that all of us here, not to mention the doctors, often talk like the answer is known. It isnt. It really isnt completely known by anyone. What most of us here have found is it is trial and error but antivirals are probably leading in success. Good luck, you most likely will find something that works for you, just judging from what people report back here.
     
  13. scott tom

    scott tom Active Member

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    I totally agree. JOH did nothing for me. Antivirals cured me.

    I also take 3000 mg of lysine per day. Hit it with everything.
     
  14. tornadito68

    tornadito68 Member

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    I think there's a huge genetic link. My grandpa had MM really bad. One of his daughters, my aunt has MM, And a few of my Grandpa's nieces (my mom's cousins) have MM too.
    K
     
  15. scott tom

    scott tom Active Member

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    The family link also fits the virus theory. You are much more likely to catch a virus if you are close to someone.
     
  16. June-

    June- Well-Known Member

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    I seem to have developed an odd thing where i do not retain immunities to herpes viruses. At age 59,i developed cmv mono. It took a while to dx because the dr did not suspect at that age i wouldnt have already had that virus which most people have had by adulthood. But the lab tests showed it was a first time infection of cmv. A few years later i developed EB mono, same result. Dr’s find it odd. It is as if something wiped the slate clean as regards these antibodies. If it is proben to happen again they will pack me off to an infectuous disease specialist. My point is just that menieres and other auto immune people may not be ‘typical’ and some of the rules and tests might not always apply.
     
  17. June-

    June- Well-Known Member

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    Coincidentally or not, it was months after the very bad cmv that i developed cochlear hydrops.
     

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