Hi Folks, New user/poster. Thanks for all the learning opportunities and great threads. Been "blessed" with this lovely disease for 3.5 years, and recently started Valacyclovir (1g, 3x/day) to see if it will help a bit. It has been two days I'm already feeling impatient for a result. : For those who have had success with A/Vs, how long did it take before you saw improvement? And what was your progression like? Thanks in advance!
I started Valcyclovir about a month after I started John's of Ohio regimen. I had some relief within a couple of months, and then within six months significant relief. Here I am a couple of years later without any symptoms whatsoever. For some time now, I have not even watched my salt intake at all. I have actually even got rid of the majority of the ringing. This took the most time to eradicate. I have considered scaling back on the routine, but honestly I am to scared to do so. I wish you the best. Stick with them, they work!
When i took them, the first teo days no change, the next day worse but different, days 4 and 5 the tiniest hint of intermittant improvement (distortion cutting in and out), from then on very gradual improvement in all symptoms, two steps forward and one back. After a month i judged a 60% improvement. From there are very very gradual perhaps aided by allergy treatment and general healing. At the two and three year mark, pretty good. My dr said back then, if you have ANY improvement in the first minth, continue for two more months. Not sure what the current thinking is. This is a fairly new approach and results are still coming in.
That's awesome...very cool story!! How long were you on full dose? I have been on 3 per day for 2 months so far. I have found them to be helpful. I am working with a nurse practitioner who will give me full dose for as long as I want...I am thinking at least 2/3 more months of 3 per day - then go down to 2 per day for several months? I am very interested in how you regulated your dose...Thanks!!!
I'm not positive but I think after 2 or 3 months I felt better, no longer afraid to drive due to dizziness and poor balance. I've been on AV for a year now and no episodes of vertigo for at least 6 months. I started on Acyclovir 800 mg 3 x day for 2 or 3 months and then decreased to 800 mg 2 x day. My best to everyone.
I’ve been on valacyclovir 1000mg tid for two months. First month was rough, symptoms were way worse and out of control for a while. Finally, the attacks spread out and lessened in severity quite a bit. Now, I don’t really have attacks but days where I feel “off” more than others. My main complaint now is that my tinnitus has gotten a lot louder, and I have a general dizzy “off” feeling almost all the time. I’ll take it if I never have another vertigo episode. I plan to stick with the AVs indefinitely as I feel they certainly have helped. Good luck!
Welcome! (and sorry you're here) MM can be multi-factoral. It can be linked to viral, fungal and/or bacterial infections in other parts of the body, and usually more than just one. I had all three at one time or another. Some folks here find relief with anti-viral medications, I'll let others speak on those mostly, but here is a scientific basis for viral causes: http://menieres.org/talk/index.php?topic=14.msg36#msg36 I have tons of viral antibodies from past massive CSV, HH6 infections, but no active infections. FWIW, the anti-viral meds did not help me. Anti-fungal medication did help me, and has helped other folks. I had very poor gut health and developed a long-term systemic fungal infection (which I'm still fighting). Here is a scientific basis for fungal infections: http://www.papadisc.com/MM_Nystatin.pdf The third part (for me) was discovered accidentally. I had a several 35 year old stealth dental infections from poor dental health as a youth, and subsequent botched root canals. To see if you might have a dental exposure, please check out this thread: http://menieres.org/talk/index.php?topic=2830.0 And you might ask your doctor about taking both anti-viral and anti-fungal meds if you don't get the relief you were hoping for. Good luck! PapaJoe
You might expect a few "set backs" as your treatment continues. Don't be discouraged. I'll add that I WAS discouraged when it wasnt"immediate" AND when I was once again hovering over the toilet, HOWEVER, found advice on this site which made sense to me. It WILL take time for this treatment to really take hold. Two steps forward, one step back. Stick with it. I have been on AVs and JOH for almost a year (mid feb). Trust me, I continue to deal with issues, but all in all I am much better than I was prior to this approach. I have also added betahistine to my daily routine, which I started in Oct/Nov 2017. Treating this "thing" isnt an easy fix. But I have faith that I will find better control as time passes. Patience and perseverence. Keep us posted on what is happening. It was great for me to have folks I could turn to for help.