I have been going through this for 5 years now and had all tests the brain MRI was the last one. I had to leave the company I was working for due to a safety concern. I have lost my hearing in my right ear, I have vertigo with nausea, I cant walk a straight line. I know my family they wish they could do something but they can't but being there to catch me if I stumble. I do have drop attacks where I just go to the ground, I have fallen down the stairs, into the bath tub I have given up on driving. As of now I don't have a diagnosis of menieres but have all the symptoms. My attacks last anywhere from 2 mins. to 24 hrs. I have a hard time in public I feel embarrassed to stagger around, My medical bills are taking its toll. Is there anything else I should expect????
Don’t let it take control over you,don’t give up. Find the best ear doctor in your area and get the proper testing done so you know what your dealing with. The sooner the better. As my doctor preaches no nicotine,alcohol,caffeine and try to keep a low sodium diet for starters. Hopefully you only have it in one ear and not bilaterally. There are more options if it’s only one side. Start reading the different posts there is a wealth of information here. Best of luck and stay positive.
I agree with what Woodsrider said. I am wondering why you do not have a diagnosis after five years. What has your doctor said? If it is Menieres, there are things you can do. If you have not tried antivirals, read about them here. They work for many people. If that doesnt work there are surgeries which may be right for you. Many people here can tell you about their experience with them. Good luck!
Thanks for the information. I did start out with the wrong doctors whom never mentioned menieres changing doctors was the best thing.
Ok, here is a question, I have up coming appointments with my Neurologist and ENT. Who would be the doctor that is most likely to give a accurate diagnosis?
Welcome to the forum. Your best bet would be a neurotologist. They manage diseases and disorders of hearing, balance and cranial nerves, the nerves that connect the ear and brain. They deal with treatment of hearing loss, tinnitus, dizziness, vertigo, tumors of the ear, hearing nerves and infectious and inflammatory diseases of the ear. In my opinion, you are much more likely to get a correct diagnosis from a neurotologist than a neurologist or ENT.
Hi! I hope I can help someone here. I researched marijuana for possible solutions to my Menieres disease. I found that the only solution for me was Prednisone, which I didn't want to take on a regular basis. I was experiencing 24/7 roaring in my left ear that was incapacitating. Since marijuana can be broken down into extracts that don't include THC, the part that gets you high, I found CBD is the one for inflammation, which is what the Prednisone was for. I ordered 250 mg CBD from a company called KOI. It can be used sublingually or Vaped. I am a vaper so that was the method I chose. I Vaped about a 1/2 ml over 6 hours, went to bed and woke up with no roaring in my ear! I am ecstatic!! I can't wait to tell my doctor! I have been so devastated by this disease I feel like I need to tell everyone of this miracle I found. This is not illegal due to no THC. It doesn't make you high. I can't tell you the effect of using it under your tongue since I didn't use it that way. Best of luck to you all. Oh! I paid $35.99 for a 30 ml bottle.
I tried the CBD and it seemed to help my anxiety initially, but I stopped it after about a week after I realized it wasn’t really effective for me. Besides, the one I was using was quite expensive.
I wouldn't give up so easily! There are many strengths and dosages, as well as methods of ingestion. You may just need an adjustment to the amount you need. They say start low and work up to the dosage you find effective.
Hang in there, Frustrated. I was where you are a couple short years ago but for the past 9 months I have been living virtually symptom free. For me, antivirals seem to be giving me my life back. Others have had surgeries that have changed their lives. Be prepared for your doctor meetings. Make sure they know the effect this beast is having on your quality of life. If you haven't started yet, keep a journal on your condition and any treatments you try. I wish you all the best.
I've had a lot of the symptoms that you have. Since Feb. 2017 when I started low sodium diet and Acyclovir 800mg (initially 3x/day) now 2x/day I have only mild symptoms. I haven't had vertigo with vomiting or the drunk walk in about 11 months. My best to everyone here.